A Very Happy Girl!!!!

andreae
andreae Member Posts: 236
edited March 2014 in Colorectal Cancer #1
Hi Everyone!

Hmmmmm.... Debating, should I thank everyone for being such sweethearts or should I share the news? I guess I'll be kind and I won't keep you guys in suspense (as cancer survivors and caregivers, I think our lives have just about enough suspense!).

And so, I marched into the office and read the reports myself and everything is looking good. My nurse apparently can't read the french! My liver is still clean as a whistle (thank God!) and the mets. in my lungs are stable! I was so unbelievably HAPPY! Yeah! I also had a productive talk with my doctor (which, as we all know, is a near miracle) and he is thinking ahead and is encouraged by the response. He reminded me that the baseline CTs to which we compared the new CTs were taken back in September and October and I only started on the new protocol in late November. So, he's thinking that maybe the lesions did grow and maybe even shrunk from the chemo.. The bottomline is that it's hard to speculate, but we do know that the cancer has been stable for 4 months. That's great news to me! We also discussed his future plans and he said he would consider pulmonary resection or ablation if the chemo cleans up most of the tumours! Finally, the doctor told me that we would look into a stem cell transplant (if my brother is a match) if the meds and surgery get me into NED and there are no visible tumors. Happy dance, happy dance! I am overjoyed! So for now, I'm just going to continue on the oxaliplatin/Xeloda regimen at a higher dose and we'll see what happens. And this brings me to the best news of all - my next CT isn't until April! I have been granted some breathing room - just got to go in for my treatments but no more anxiety!

As for my mother - well, she's relieved that everything is stable and she was happy to hear the doctor talk about future treatment (I guess cause this implies that he believes I have a future). I also told her that she can't cry around me because it's too hard to watch. I am trying really hard to be strong but her tears make it that much harder. We used to be able to cry about it together, but I tried to explain to her that I'm now past the point of crying. I need to devote all my energy to being happy, enjoying my life and getting through treatment. Hopefully she understands.

On another note, I wanted to thank all of you. Your words of encouragement and reassurance were comforting. Emily, thanks for your advice. My mother is actually a juicer fanatic (do you happen to have any long lost relatives??? He, he, just teasing) and I was never much of a meat-eater. I also wanted to say that your sister is a remarkable woman - it must run in the family. I, like most on the message board I imagine, derive much strength, hope and wonder from her story, as well as yours. Thank you for sharing. Also Stacey, I really appreciate your message. I have taken your words to heart. I FEEL fine - wonderful in fact. I actually feel and look about 200 times better than I did last year at this time (I was diagnosed on January 15th 2003). I guess the bottomline is that I'm responsible for creating and perceiving my reality so, as long as I am mobile and feeling good, I am going to live my life. Thank you all so much and I send out a million hugs and kisses to all (although, the kisses might freeze before they get down to the US...)

Lots of love and good thoughts,
Andrea

Comments

  • nanuk
    nanuk Member Posts: 1,358 Member
    cool beans, girl..keep the attitude. Bud
  • spongebob
    spongebob Member Posts: 2,565 Member
    (as they say in Montana)....

    YAAAA-Haaaw!!
  • Lisa Rose
    Lisa Rose Member Posts: 598 Member
    Hi Andrea ,

    That Is Great News!!!
    I was praying that your Dr would have some positive news just anything at all, and i am so happy he did. But on another note I don't think I would ask his receptionist to read anymore reports.

    Lisa
  • jsabol
    jsabol Member Posts: 1,145 Member
    Great news, Andrea,
    and good for you to be clear with your mom. Is she willing to post on a different board ...like "Emotional Support"? There are others who know what she's feeling, and you are right to let her know you need her strength, not just vice versa.
    Since my diagnosis, I remind myself that everyone has a future and it is what we make of it. Are we fortunate to have had a wake up call?
    Hang in there and keep up the good work. Judy
  • 2bhealed
    2bhealed Member Posts: 2,064 Member
    Hey Baby Girl!!!

    That is wonderful news!! So happy for you that you are taking steps to stay strong.

    About my sister....she was remarkable in many ways. If you talked to her on the phone even up to the end you would never have known she was sick (or dying for that matter). She had enough attitude to keep the sun shining. I knew we were near the end when on my visiting day she finally admitted that she couldn't take it much longer. Was the first time she had admitted it to me. That was a Wednesday. By Friday she was slipping away and Saturday she was in the hospital and she died on that Tuesday morning....a week after she had finally admitted that she couldn't do it anymore.

    Her daughter will be 12 this month.

    So glad you took matters into your own hands and marched in there. If we aren't watching out for ourselves in these areas, those mistakes can wreck havoc in our lives.

    peace, emily who is snowed in and loving it!!
  • Hi Andreae! I am so very, very happy for you and this great news. I guess you took my words to heart when I said I don't want to hear anything but good news from you. You keep fighting that fight girl and I just know, it's a gut feeling I have about you, that you will win. No surrender, sweetheart. You enjoy every day...you deserve it.

    Hugs,
    Monika (the fellow Canadian from Ottawa who is so grateful to be in Southern California....ahhh, land of sunshine, beaches, warm days, yadayadayada)
  • pattieb
    pattieb Member Posts: 168
    unknown said:

    Hi Andreae! I am so very, very happy for you and this great news. I guess you took my words to heart when I said I don't want to hear anything but good news from you. You keep fighting that fight girl and I just know, it's a gut feeling I have about you, that you will win. No surrender, sweetheart. You enjoy every day...you deserve it.

    Hugs,
    Monika (the fellow Canadian from Ottawa who is so grateful to be in Southern California....ahhh, land of sunshine, beaches, warm days, yadayadayada)

    Andrea I am so happy for you keep up the good work
    Pattie
  • kerry
    kerry Member Posts: 1,313 Member
    You go girl!! God be with you, you are blessed and I will keep you in my prayers. We all love good news.
    Kerry
  • StacyGleaso
    StacyGleaso Member Posts: 1,233 Member
    ANDREA!!!!!!!!!!!!!!!!!!!!!

    I am SO happy for you! I literally think about you every day and pray that everything will work out for you. When I read your postings, I try to imagine how I would handle everything at your age. YOU ARE SO BRAVE! And being a mom, I have to tell you that you are making your mother SO proud...you have no idea. It's hard for a parent to mentally go through something as serious as this...we wish everything would happen to us, and not our children.

    Ok...so I think we all need to work on planning the celebration...does Vegas work for everyone? Or how 'bout a nice tropical oasis?

    Suggestions welcome...

    Stacy