ACUTE LEUKEMIA SURVIVOR

britrice
britrice Member Posts: 3
edited June 2023 in Childhood Cancers #1
I WANTED TO BE IN CONTACT WITH SOMEBODY WHO HAS HAD THE SAME EXPIRENCE OF ACUTE LEUKEMIA AND SIMILAR TREATMENTS.
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Comments

  • Unknown
    Unknown
    #2
    This comment has been removed by the Moderator
  • lindazame
    lindazame Member Posts: 46
    #3
    Hi Britrice,

    In 1998 I founded the long term survivors discussion list at ACOR. We have over 300 members including some of the leading physicians who work with patients with late effects. You can join our group by going to www.acor.org and clicking on mailing lists and joining the LTS group. If you have problems with that you can write to me directly (zame@earthlink.net)
    Healing thoughts,
    Linda Zame
  • erica10
    erica10 Member Posts: 30
    #4
    hi britrice. i'm erica and i have acute lymphotic leukemia. I'm usually on the chat you should try to go on there sometime. If not that's cool too. I'll go on a check. go to the personal webpages on this site i'm erica10. you can leave me a message i'll write back. well got to go. See ya!
  • sorcharose
    sorcharose Member Posts: 15
    #5
    Hi, I had ALL at the age of 3 and a half. I'm 25 now. That makes me cured for about 19 years. If you are interested in a chat (or have any questions), please feel free to drop me a line on the C.S.N. email sight, sorcharose
  • VT101
    VT101 Member Posts: 1
    #6
    sorcharose said:

    Hi, I had ALL at the age of 3 and a half. I'm 25 now. That makes me cured for about 19 years. If you are interested in a chat (or have any questions), please feel free to drop me a line on the C.S.N. email sight, sorcharose

    Hi, I also had childhood Leukemia. Mine started at 2 and a have years old till I was about 7 or 8. I'm now 30. so that makes about 22 years now. its a tough fight when your that young. take care and many happy years ahead.
  • SwimCoop
    SwimCoop Member Posts: 17
    #7
    britrice I've been a survivor of luekemia since 1995 if you ever want to talk let me know.
  • haidamaid
    haidamaid Member Posts: 1
    #8
    Hi, I also have ALL, am 55 years. I was dignosted 8/13/2001. Right now I am in remission, but have to take cemotheropy for two years. And if I make that than I will need a bone marrow transplant.
  • Donnie
    Donnie Member Posts: 2
    #9
    sorcharose said:

    Hi, I had ALL at the age of 3 and a half. I'm 25 now. That makes me cured for about 19 years. If you are interested in a chat (or have any questions), please feel free to drop me a line on the C.S.N. email sight, sorcharose

    I also had ALL as a small child. 18 months old. I'm 26 now., so that makes about 24 years for me. I clearly remmember the last time I went for a bone marrow check when I was probably about 4 or 5. Don't remember much beyond that. Dr. Gross (his real name :) haha) told me he never wanted to see me again :) 24 years later, and I have only the most minor side effects (and none of them are directly due to the leukemia itself). Feel free to contact me anytime.
  • Donnie
    Donnie Member Posts: 2
    #10
    Donnie said:

    I also had ALL as a small child. 18 months old. I'm 26 now., so that makes about 24 years for me. I clearly remmember the last time I went for a bone marrow check when I was probably about 4 or 5. Don't remember much beyond that. Dr. Gross (his real name :) haha) told me he never wanted to see me again :) 24 years later, and I have only the most minor side effects (and none of them are directly due to the leukemia itself). Feel free to contact me anytime.

    By the way, I'm Donnie :)
  • 1984to1994
    1984to1994 Member Posts: 14
    #11
    Diagnosed at 2 and 8 with ALL. I am now 22.
    Ken
    shadow2137@hotmail.com
  • acsteen4life
    acsteen4life Member Posts: 3
    #12
    haidamaid said:

    Hi, I also have ALL, am 55 years. I was dignosted 8/13/2001. Right now I am in remission, but have to take cemotheropy for two years. And if I make that than I will need a bone marrow transplant.

    hi my name is Vanessa, and i had all when i was 9 and then again at 12, now im 15 in march so i know how you all feel! i had a bone marro transplant and have missed almost 4 years of school in my short life. im now in high school and all is well, if anyone wants to talk please dont be afried to contact me. i may be young but my knowledge goes way beyond my age.i hope someone who needs this information see's this. and just remember everyone, live strong, wear yellow, and theres know such thing as its too late
  • marysn1
    marysn1 Member Posts: 2
    #13
    Hi, I am a student nurse in Lincoln Nebraska. I am working on a project for school and I need to interview someone who has leukemia. This can be done through email or a chat room to maintain confidentiality. Would you be willing to help me out?
  • nicolebear27
    nicolebear27 Member Posts: 6
    #14
    1984to1994 said:

    Diagnosed at 2 and 8 with ALL. I am now 22.
    Ken
    shadow2137@hotmail.com

    hi i am 24 and was diagnosed with ALL when i was 4 and i have been in remission for since age 7. i wanted to talk to and meet others who share trhe same experiences with me. my whole life i have been in denial about my childhood and now i am ready to face it. if anyone wants to share their story with me i would really appreciate it.
  • nicolebear27
    nicolebear27 Member Posts: 6
    #15
    marysn1 said:

    Hi, I am a student nurse in Lincoln Nebraska. I am working on a project for school and I need to interview someone who has leukemia. This can be done through email or a chat room to maintain confidentiality. Would you be willing to help me out?

    i had leukemia when i was a child if you still need someone to intervies i would be willing
  • nicolebear27
    nicolebear27 Member Posts: 6
    #16
    sorcharose said:

    Hi, I had ALL at the age of 3 and a half. I'm 25 now. That makes me cured for about 19 years. If you are interested in a chat (or have any questions), please feel free to drop me a line on the C.S.N. email sight, sorcharose

    hi i had ALL when i was 4 and have been in remission since age 7 , i am trying to meet people who want to share their story's.
  • AuthorUnknown
    AuthorUnknown Member Posts: 1,537 Member
    #17
    nicolebear27 said:

    hi i am 24 and was diagnosed with ALL when i was 4 and i have been in remission for since age 7. i wanted to talk to and meet others who share trhe same experiences with me. my whole life i have been in denial about my childhood and now i am ready to face it. if anyone wants to share their story with me i would really appreciate it.

    Hello,

    If you find someone you would like to contact, you can send them a CSN internal email. To do this, click on the envelope icon beneath their original email. You can also search the personal web pages by clicking on the link on the left hand side of the page.

    Take care and be well,

    Dana
    CSN Dana
  • julia456
    julia456 Member Posts: 1
    #18
    nicolebear27 said:

    hi i am 24 and was diagnosed with ALL when i was 4 and i have been in remission for since age 7. i wanted to talk to and meet others who share trhe same experiences with me. my whole life i have been in denial about my childhood and now i am ready to face it. if anyone wants to share their story with me i would really appreciate it.

    Hi,
    I'm 25. I had ALL at age 6. I never wanted to speak about it until I was 19. And suddenly, at 19, I became very interested by the subject and started to want to know everything about it. I'd very much like to speak about it with others who had leukaemia in their childhood.
    I don't have bad memories about all that.
    Julia.
    PS: I tried clicking on the envelope icon, to send e-mails to those who have already left a message here, but I didn't get anywhere.
  • AuthorUnknown
    AuthorUnknown Member Posts: 1,537 Member
    #19
    julia456 said:

    Hi,
    I'm 25. I had ALL at age 6. I never wanted to speak about it until I was 19. And suddenly, at 19, I became very interested by the subject and started to want to know everything about it. I'd very much like to speak about it with others who had leukaemia in their childhood.
    I don't have bad memories about all that.
    Julia.
    PS: I tried clicking on the envelope icon, to send e-mails to those who have already left a message here, but I didn't get anywhere.

    Dear Julia,

    I am sorry to hear you had a difficult time with the email icon. I have tested it out and it appears to be functioning correctly. You may want to try it again. If you are still having problems, you may want to try contacting the individuals directly through the CSN email system and feel free to contact us at webmaster@acscsn.org.

    Take care and be well,

    Dana
    CSN Dana
  • Vickie78m
    Vickie78m Member Posts: 3
    #20
    AuthorUnknown said:

    Hello,

    If you find someone you would like to contact, you can send them a CSN internal email. To do this, click on the envelope icon beneath their original email. You can also search the personal web pages by clicking on the link on the left hand side of the page.

    Take care and be well,

    Dana
    CSN Dana

    I had ALL when I was 8 then again at 12 I am now 29
  • babygurl84
    babygurl84 Member Posts: 8
    #21
    Side Effects from treatment...
    Hi my name is kristi, I had ALL at the age of 20 months old and underwent treatment till i was about 5 yrs old. Ive been in remission for about 18 yrs. Im 24 now. But over the past 3-4 yrs. mostly i have noticed cliches here and there mentally,in my social life and in the work environment that are most likely long term side effects from the treatment that have begin to become more of an issue the older i get. Has any else experienced the same? If so are there test to determine these disabilities or treatment to fix them?
    Kristi

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