Skin Lymphoma

hzeckel
hzeckel Member Posts: 6
edited March 2014 in Skin Cancer #1
I am interested in talking to people who have what I have, which is Cutaneous Anaplastic Large Cell Lymphoma. It is not Mycosis Fungoides and it is closely related to Lymphomatoid Papulosis. It is rare enough so I realize I may not get any replies.

Comments

  • Unknown
    Unknown
    #2
    This comment has been removed by the Moderator
  • hzeckel
    hzeckel Member Posts: 6
    #3
    unknown said:

    This comment has been removed by the Moderator

    Thanks. Will do.
  • dbrown296
    dbrown296 Member Posts: 1
    #4
    In June of 2002 I was diagnosed with primary cutaneous lymphoma (B Cell). I recieved 6 cycles of CHOP/Rituxan and 25 radiation treatments. I am currently in remission and have a nice scar on my back as a reminder. I would be glad to answer any questions I can, I realize we didn't have exactly the same type. Good Luck!
  • brianjw
    brianjw Member Posts: 9
    #5
    dbrown296 said:

    In June of 2002 I was diagnosed with primary cutaneous lymphoma (B Cell). I recieved 6 cycles of CHOP/Rituxan and 25 radiation treatments. I am currently in remission and have a nice scar on my back as a reminder. I would be glad to answer any questions I can, I realize we didn't have exactly the same type. Good Luck!

    Hi. Hope you're OK. I have cutaneous large B-cell lymphoma. I'm 59. Started in 2002, had 6 repeat lesions on upper body and head, averaging 1 new one every 6-9 months. All have been treated with ionizing radiation till now. My doctors want me to go to R-CHOP now. Slight consensus. My lead oncologist lost the fight to keep me away from chemo. He's a chemo specialist. What can you tell me about R-CHOP? I'm terrified of what 6 cycles will do to me.
  • AuthorUnknown
    AuthorUnknown Member Posts: 1,537 Member
    #6
    brianjw said:

    Hi. Hope you're OK. I have cutaneous large B-cell lymphoma. I'm 59. Started in 2002, had 6 repeat lesions on upper body and head, averaging 1 new one every 6-9 months. All have been treated with ionizing radiation till now. My doctors want me to go to R-CHOP now. Slight consensus. My lead oncologist lost the fight to keep me away from chemo. He's a chemo specialist. What can you tell me about R-CHOP? I'm terrified of what 6 cycles will do to me.

    Hello,

    In case this person is no longer checking this discussion board frequently, you may want to contact them using the CSN internal email system. You can do this by clicking on the envelope icon below their original message.

    Best wishes on your treatment.

    Take care and be well,

    Dana
    CSN Dana
  • brianjw
    brianjw Member Posts: 9
    #7
    AuthorUnknown said:

    Hello,

    In case this person is no longer checking this discussion board frequently, you may want to contact them using the CSN internal email system. You can do this by clicking on the envelope icon below their original message.

    Best wishes on your treatment.

    Take care and be well,

    Dana
    CSN Dana

    Thx!

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