bad news from the bone scan

jeancmici
jeancmici Member Posts: 665 Member
edited March 2014 in Breast Cancer #1
Hi Gals,

Thank you all for your replies. Despite all those good wishes, the sacral area is completely filled with mets - some in upper back - one bad spot and a rib or two on the cancer side. Now need test to see about lungs and liver.

Today was MUCH harder than the first diagnosis. I will be on Femara and Zometa which the onco prefers as long as one does not have kidney problems ( I wonder if it could precipitate kidney problems.) If I insisted, I could have Aredia, but he thinks the results are better with Zometa.

Prayers for all of us!
Jean

Comments

  • ksfc
    ksfc Member Posts: 251
    #2
    I'm so sorry you didn't get better news. It sounds like you have a plan and I'll be sending prayers that your liver and lung info is better!
    Take care - Diane
  • hummingbyrd
    hummingbyrd Member Posts: 950 Member
    #3
    So sorry jean...did doc say anything about radiation? I had my mets radiated, teased my rad onc about 'spot welding me'. I know a lady who had bone mets from breast 'spot welded' over a 20 year time period.
    I do take zometa and yes it can cause kidney damage, so they should do blood tests with each treatment. One of the best things I did was get a port...NO MORE IV STICKS! Thank you very much! I will pray that lungs and liver are clear. My CEA is still on the rise so I get the pleasure of a colonoscopy next month. OH BOY! am I excited NOT!
    Hang in there girl, just keep on one day at a time. Remember, that's how we got this far. God bless, I luv ya. hummb
  • jeancmici
    jeancmici Member Posts: 665 Member
    #4
    hummingbyrd said:

    So sorry jean...did doc say anything about radiation? I had my mets radiated, teased my rad onc about 'spot welding me'. I know a lady who had bone mets from breast 'spot welded' over a 20 year time period.
    I do take zometa and yes it can cause kidney damage, so they should do blood tests with each treatment. One of the best things I did was get a port...NO MORE IV STICKS! Thank you very much! I will pray that lungs and liver are clear. My CEA is still on the rise so I get the pleasure of a colonoscopy next month. OH BOY! am I excited NOT!
    Hang in there girl, just keep on one day at a time. Remember, that's how we got this far. God bless, I luv ya. hummb

    Yes, radiation is in the plan too - and I think kidney tests too each time. My blood tests in July were ok - as was my yearly chest x-ray. I think those bone mets were on low - and just recently took off. Same with my original lump. I swear it wasn't there and then a few nights later it was. Seeing the evidence on scan pictures did me in today - but I'll recover soon and do what I have to as we all do - there are so many of us in the same boat.
    Love,
    Jean
  • cruf
    cruf Member Posts: 908
    #5
    Jean! I'm so sorry to hear the news but you are a fighter and I know you will do your best to work thru this. Don't give up. My thoughts and prayers are with you. HUGS!! Cathy
  • hummingbyrd
    hummingbyrd Member Posts: 950 Member
    #6
    jeancmici said:

    Yes, radiation is in the plan too - and I think kidney tests too each time. My blood tests in July were ok - as was my yearly chest x-ray. I think those bone mets were on low - and just recently took off. Same with my original lump. I swear it wasn't there and then a few nights later it was. Seeing the evidence on scan pictures did me in today - but I'll recover soon and do what I have to as we all do - there are so many of us in the same boat.
    Love,
    Jean

    Hey, main thing is you got in and got this diagnosed. Now we get down to business eh? Same with my lump, not there in april, 4 cm size lump in june. In the words of arnold, 'if it bleeds it can die'. Same with cancer 'if it grows we can kill it'! ZAP, ZAP, ZAP it just was not the tumors lucky day.
    I go for a colonoscopy Wed to rule out mets to the colon. Row, row, row your boat gently down the stream.....hey down in front, please don't rock the boat. Batten down the hatches we're in for some stormy weather! We'll ride this one out too and be blessed for it.

    Giving all the honor and glory to God in all that I do. God bless! hummb
  • DeeNY711
    DeeNY711 Member Posts: 476 Member
    #7
    hummingbyrd said:

    So sorry jean...did doc say anything about radiation? I had my mets radiated, teased my rad onc about 'spot welding me'. I know a lady who had bone mets from breast 'spot welded' over a 20 year time period.
    I do take zometa and yes it can cause kidney damage, so they should do blood tests with each treatment. One of the best things I did was get a port...NO MORE IV STICKS! Thank you very much! I will pray that lungs and liver are clear. My CEA is still on the rise so I get the pleasure of a colonoscopy next month. OH BOY! am I excited NOT!
    Hang in there girl, just keep on one day at a time. Remember, that's how we got this far. God bless, I luv ya. hummb

    Byrdie, I had a colonoscopy in 2000 and they give you medicine so you don't remember any of it. You just zone out and wake up later. Not to worry. Love, Denise
  • DeeNY711
    DeeNY711 Member Posts: 476 Member
    #8
    Jean, this is exactly what we all dread the most, and I can understand why it is even worse than the initial diagnosis. Over these past 8 months, I have found the greatest comfort in messages posted by those who explained all of the options available to those with Stage 4 metastatic; especially their description of their reasonably normal lives. We will all keep you in our prayers. Love, Denise
  • jake10
    jake10 Member Posts: 202
    #9
    hummingbyrd said:

    Hey, main thing is you got in and got this diagnosed. Now we get down to business eh? Same with my lump, not there in april, 4 cm size lump in june. In the words of arnold, 'if it bleeds it can die'. Same with cancer 'if it grows we can kill it'! ZAP, ZAP, ZAP it just was not the tumors lucky day.
    I go for a colonoscopy Wed to rule out mets to the colon. Row, row, row your boat gently down the stream.....hey down in front, please don't rock the boat. Batten down the hatches we're in for some stormy weather! We'll ride this one out too and be blessed for it.

    Giving all the honor and glory to God in all that I do. God bless! hummb

    The colonoscopy is no big deal. You just kind of sleep through it and don't remember much. The prep however was invented by a sadist! Hope the findings are good. Beth
  • jake10
    jake10 Member Posts: 202
    #10
    I was so sorry to read your post. But as hummingbird says, people get radiation for bone mets for years and live normal lives. I am praying your lung and liver tests are good news. Happy Thoughts! Better Times! Beth
  • blossomtime
    blossomtime Member Posts: 98
    #11
    Was so sorry to hear your news. But you seem to be on top of this. Fight, fight, fight. Will keep you in my prayers. Was interesting to read some of the comments about how their tumors showed up so quickly. I felt the same about mine. Not there one month and 2 months later 4cm. I always felt my dr did not quite believe this and I had problems with guilt that I had missed something important and some of this was my own doing. So it makes me feel better that others say theirs came up suddenly also. Keep us posted on how you are doing!!!

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