lymphedema

I've been living with lymphadema since shortly after my node dissection because of the staph infection that followed. There are varying degrees from mild to severe. It's important that you find a physical therapist who is trained in lymphadema management. They can teach you massage, exercises, how to bandage your arm, fit you for a sleeve. There are also many things you need to do to protect that arm including no lifting over 15 lbs. (although my therapist prefers a 5-7 lb. limit),no needle sticks or blood pressures in that arm, no scrubbing or back and forth motion, no really hot water or sauna, no cuts, scrapes or scratches, keeping the skin moisturized. There's a lot more. One of the best websites out there is www.lymphnet.org.
Good luck! If you have any questions, feel free to e-mail me. Diane

I have been dealing with this since my reconstruction surgery. I knew that I had a risk of developing it and took every precaution. A nurse in the recovery room inserted and IV even though it was clearly posted not too. I stayed in the hospital for 13 days with fluid into my arm through the IV. I have found a clinic with therapists to be the best thing. Besides helping my arm it is a nice massage for and hour. Depending on the severity the visits can be up to 3 times a week and then slowly lowered. Your insurance should pay for this. Just remember, baby that arm. No IV,BP,INJ ever in this arm. The sleeves I have plenty of, fashion statement not but they due have alot of colors to chose from. Good Luck Girl!