Adult Survivors of Childhood Cancers wanted

I studied psych in college, so I think yours is a wonderful research topic. I am also survivor of Wilms Tumor (Stage IV, unilateral, FH) and the proverbial 2nd malignancy: Thyroid cancer. Mmm boy. Would love to help with your work! Email me: lindseyv@cablespeed.com

Hello my name is Nell& I was diagnosed w Leukemai (ALL) in October of 1979& was transplanted on April 25,1979I spent about 6 months in the Hutch In Seattle,Was..Now its almost 24 years later & I sam STILL WAITING on eye hand coordnation!lol & to whistle wonder what thats like? lol ppl that have a life they live it BUT U HAVE NEVER FOUND OUT WHAT LIFE IS ABOUT UNTIL YOU HANG OUT WITH A SUCCESSFUL TRANSPLANT RECIEPANT!!WE DO KNOW HOW TO PARTY!!! ~{:0)

My name is John and I am a survivor of acinic cell carcinoma in the parotid gland, a most rare tumor, especially at 13, when it first showed. I was diagnosed in '98 at the age of 15, but didn't know it was malignant until after the biopsy. I'm now one month away from my five year anniversary (which will mark me as cured) and I can say that my view of the world has changed drastically since that day. I would love to participate.

longtermsurvivo said:

Please do the right thing as a survivor you know right and wrong, so you know what wrong with the system. So change the the system. Gave the right back to the survivor not the doctor and the book writer. Right to know why at test, why at study, what it mean. Don't be a 411 specialist. Stop make us pay for follow up study and test and **** with no answer. I'm a survivor who don't not put with crap.

I hope you don't mind me emailing you. I say your statement on the website I just visited.

My wife is 44 and she has had 7 spinal operations because of a tumor at the base of her brain stem. She's had it since she was 8. 3 years ago, she became quadripeligic. We found a food suppliment that we discovered is a major biochemical breakthrough. It's actually in the PDR, and also in chapter 56 of the 1996 edition of Harper's Biochemistry textbook. Numerous, even thousands of journals have been written about it.

Anyway, to make a long story short, she now walks. Her last MRI showed that the tumor has calcified. Needless to say, we are very excited about it.

We have discovered that many people are recovering from all types of auto-immune problems. Even MS, asthma, arthitis, lupis, and the list goes on & on.

If you're interested, I'd like to talk to you about it. You can call me at (262) 745-2337.

God bless,

Glenn Lewis

cpink13 said:

I am a medical professional (30 yr old) who's main reason for entering my chosen career was my personal experience with cancer (astrocytoma at age 9)
chris pinkerton PA-C MMS, cpink13@yahoo.com

Hi, Cpink! This is the first time I am joining any chat on the net. I also survived a astrocytoma at the age of 11. What kind of med professoinal are you. I never talked to anyone else who had one. Mary

I am 46 years old and was diagnosed with Ewing's Sarcoma at the age of 15 in 1973. I am a member of a Long-Term Cancer Survivor's Study through the University of Minnesota. I was treated with Chemo and radiation at M.D. Anderson in Houston. Let me know if I can help.

Sandra

scsimodem said:

My name is John and I am a survivor of acinic cell carcinoma in the parotid gland, a most rare tumor, especially at 13, when it first showed. I was diagnosed in '98 at the age of 15, but didn't know it was malignant until after the biopsy. I'm now one month away from my five year anniversary (which will mark me as cured) and I can say that my view of the world has changed drastically since that day. I would love to participate.

Hi John,
My name is Amy. I'm a survivor myself. I also had a rare tumor, Medullablastoma, I was 12 when I was diagnosed. The tumor I had was a spidery tumor that wrapped around random nerves and crushed them. From that I'm deaf in my right ear and I have no sensation on the right side of my face from my eye to the edge of my chin. I have been cured since 1989. I'm glad that you only have a month untill you are pronounced cured. When it was my time my doctor said,"DON'T COME BACK NOW, HEAR!" Have a great pronounced and congratulations!!! Sweet4u2

Sweet4u2 said:

Hi John,
My name is Amy. I'm a survivor myself. I also had a rare tumor, Medullablastoma, I was 12 when I was diagnosed. The tumor I had was a spidery tumor that wrapped around random nerves and crushed them. From that I'm deaf in my right ear and I have no sensation on the right side of my face from my eye to the edge of my chin. I have been cured since 1989. I'm glad that you only have a month untill you are pronounced cured. When it was my time my doctor said,"DON'T COME BACK NOW, HEAR!" Have a great pronounced and congratulations!!! Sweet4u2

7yr old son with medullablastoma
You give me hope Amy. We just found out yesterday after my son had finished his chemo and radiation regimen, that a tumor had grown back within a months time. If you have any input I would greatly appreciate it. Take Care of yourself.