Non Hodgkins T-cell Lymphoma

MY HUSBAND HAS PERIPHERAL T-CELL LYMPHOMA. HE IS IN STAGE II. HE HAS HAS ENLARGED LYMPH NODES IN HIS CHEST.HE HAS HAD ONLY ONE TREATMENT OF CHOP. WE ARE GOING TO DANA FARBER CANCER INSTITUTE MAR. 7TH. HE JUST TURNED 50. WE ARE LOOKING FOR SURVIVORS ALSO. LET US KNOW IF YOU FIND ONE.

jnova said:

Hello Baddad. I recently battled T-Cell lymphoma (stage III), and I am glad to say that I am in remission and feeling better than ever. I was treated at Weil Cornell Medical Center in NYC and underwent CHOP chemo as well as a stem cell transplant. I would love to talk with you about my experience.

I WOULD LOVE TO TALK TO JNOVA! I AM 50 AND HAVE PERIPHERAL T-CELL LYMPHOMA STAGE II.I HAD ONE TREATMENT OF CHOP AND GOING TO DANA FARBER AND MEMORIAL SLOAN KITTERING FOR SECOND OPINION. I DONT KWOW WHAT TO EXPECT. I WOULD LIKE TO TALK WITH YOU ABOUT YOUR EXPERIENCES. MUCH OF THE FEAR IS NOT KNOWING. BADDAD

jnova said:

Hello Baddad. I recently battled T-Cell lymphoma (stage III), and I am glad to say that I am in remission and feeling better than ever. I was treated at Weil Cornell Medical Center in NYC and underwent CHOP chemo as well as a stem cell transplant. I would love to talk with you about my experience.

MY NAME IS RON. I WOULD LOVE TO TALK TO SOMEONE WITH SOME EXPERIENCE IN THIS. I AM GOING FOR MY SECOND TREATMENT OF CHOP NEXT WEEK. I REALIZE THERE IS A LONG ROAD AHEAD FOR ME. KNOWING WHAT TO EXPECT BRINGS LESS FEAR. IM ALREADY HAVING SIDE EFFECTS FROM CHOP. YOU CAN ALSO REACH ME AT WEEPLESSWILLOW@HOTMAIL.COM LOOKING FOR SOMEONE WITH INFO AND EXPERIENCE WITH THIS. THANKS

didi1031 said:

Hi, I am new to the site. I was diagnosed with T-cell NHL in 12/2001. I underwent CHOP and RT and was in remission for a whole two months. Now, I am going to undergo a bone marrow transplant. My brother and sister are both a match. Is it a lot like what you went through? I am really concerned and very scared. I am alone most of the time and have too much time to sit and think. My husband doesn't like dealing with it so he works all the time and is not home until I am in bed. We never talk, and I am just so lonely through all of this. Please send me a message and help me better understand what I am about to face - ALONE.

YOUR NOT ALONE! I am 31 and was just diagnosed with aggresive anaplastic large cell lymphoma with T-cell phenotype, stage 2. I am undergoing chop, I have had 2 treatments.

I felt so bad for you when I read your message, I have a very supportive husband and I couldn't do it with out him. If there is anything I can do for you let me know or if you just want to chat my e-mail is Jbowgett@cs.com

Hello.. My name is Melissa, and I'm 20yrs old... I was diagnosed with T-Cell non-hogkins lymphoma in Sept.'02... I had a tumor in my chest the size of a soccer ball and spots on my kidneys... I am happy to say everything is gone and I've been in remission since Dec.'02... I have 2 more weeks of chemo treatments and then I start radiation... I don't really know what to expect from the radiation so if anyone's already gone through this please let me know how it was...

didi1031 said:

Hi, I am new to the site. I was diagnosed with T-cell NHL in 12/2001. I underwent CHOP and RT and was in remission for a whole two months. Now, I am going to undergo a bone marrow transplant. My brother and sister are both a match. Is it a lot like what you went through? I am really concerned and very scared. I am alone most of the time and have too much time to sit and think. My husband doesn't like dealing with it so he works all the time and is not home until I am in bed. We never talk, and I am just so lonely through all of this. Please send me a message and help me better understand what I am about to face - ALONE.

DiDi
sorry to hear about the pain I'm sure your in. But I asure you your not alone. I'm going through this just as you are and I know that God is with me every step of the way. The world is scared and there feelings towards cancer are born out of fear. Forgive anyone who dos'nt understand what your going through it will help you more than you understand, and forgive your husband and pray for him. And remember that you are loved. Jesus gave his life for us. And if you would of been the only one alive he would have still done it. I know its all hard to face but keep faithful,and remember that love is your most valualble friend. Open your heart and remember your not alone. And I know that you don't know me but I love you. God bless and may you find happiness as well as healing in the name of Jesus Christ..........

BADDAD said:

MY NAME IS RON. I WOULD LOVE TO TALK TO SOMEONE WITH SOME EXPERIENCE IN THIS. I AM GOING FOR MY SECOND TREATMENT OF CHOP NEXT WEEK. I REALIZE THERE IS A LONG ROAD AHEAD FOR ME. KNOWING WHAT TO EXPECT BRINGS LESS FEAR. IM ALREADY HAVING SIDE EFFECTS FROM CHOP. YOU CAN ALSO REACH ME AT WEEPLESSWILLOW@HOTMAIL.COM LOOKING FOR SOMEONE WITH INFO AND EXPERIENCE WITH THIS. THANKS

I'm so glad to find a group of people with a similar diagnosis. I have Anaplastic large T-cell high grade lymphoma, Stage III. I was diagnosed Feb 28, 2003. I have tumors in each arm pit, and several in my groin area. I began the CHOP chemo 2 weeks ago. I also receive ARA-C by intrathecal injection into the spinal fluid. These are given weekly. I'm scared out of my mind. And I'm so sick all the time. I would love to talk to all of you that are going through this! Be well.

kyle said:

I'm so glad to find a group of people with a similar diagnosis. I have Anaplastic large T-cell high grade lymphoma, Stage III. I was diagnosed Feb 28, 2003. I have tumors in each arm pit, and several in my groin area. I began the CHOP chemo 2 weeks ago. I also receive ARA-C by intrathecal injection into the spinal fluid. These are given weekly. I'm scared out of my mind. And I'm so sick all the time. I would love to talk to all of you that are going through this! Be well.

My husband was diagnosed with peripheral t cell otherwise undifferenciated. He has had CHOP ( CAT and PET were clear, but after 4 wk. of daily radiation another gland aoppeared. He has since had Ontak. Has tolerated tx well. He's 76. Other than decreased energy and joint pain, he is doing well. However he still has 3 nodules- all on the left axilla area on the left. Rrecemtly he has developed red patches on his face. Can this be cutaneous t cell. Like to hear from anyone with any information or just how they have done with the diagnosis. Any Dr. who specialize in t cell?

kymmc said:

Hi, I read your reply. Sounds like we had the same treatments. I was Stage 4 when they finally found out what I had. I had CHOP for 5 months (once every 3 weeks) and then I had my stem cell transplant on May 2, 2003. I was very lucky and was able to use my own stem cells. I went yesterday for another check up and passed my CATSCAN. With each visit I get more hopeful. I would love to talk with you a share experiences.

Hi kymmc...I have peripheral t-cell non-hodgkins lymphoma and have undergone various chemo treatments...including Hyper-CVAD and ICE...I am also using my own stem cells for a transplant. I am very worried about going for the SCT...I hope it is not as scary as I think...:-/

I have survived t cell
I have had 6 rare cancers in the last six years. I am in remission since a little over a year ago. I feel fine . I enjoy every day I am 63 with a suporting family. I caught this one early but was told this very difficult to treat. I have had parotiod, prostate, skin, two kinds of aggressive thyroid cancer and now lymphoma I forget how to pronounce. I feel good but worry over every little bump or peculiarity. Hang in there everyone. One thing I did notice when i started feeling sorry for myself I talk to God gave him my trust, I have a strong family and I have a good repore with a few Drs at cleveland Clinic.