undergoing chemo and radiation

sewNsew
sewNsew Member Posts: 1
edited March 2014 in Head and Neck Cancer #1
Hello Group!

I am currently undergoing chemo and radiation treatment for stage 3 esophageal cancer. Surgery did not work, as the tumour is connected to my aorta and my back bone. I had Cystplatin (sp) day one, and a 96 hour drip of 5FU, and could not keep even water down for nine days. I am now into my third day of keeping a little bit of food down (what a joy!!). I don't have to have chemo again until Dec 30th, but radiation treatments are daily. I am in Halifax, which is a four hour drive from home. I am staying at a lovely lodge, where all lodging and food is free - sponsored by the Canadian Cancer Society. This place is wonderful! I've chosen not to go home these past two weekends, as I just don't feel well enough, but hopefully next weekend will be better. I have lost 72 pounds and feel like a frump!

Thanks for listening!

sewNsew

Comments

  • mrbt
    mrbt Member Posts: 46
    #2
    Hi: Please check out "www.ecaware.org/cafe/" and "www.acor.org" and search esohpageal cancer. You will find links to lots of great information and support/information groups. Regards, Bruce, EC survivor (triebold@telocity.com)
  • julie_at_psu
    julie_at_psu Member Posts: 5
    #3
    Are there any survivors, caregivers or helpful folks willing to help with a Senior Project at Portland State University? A team of students are creating education software to document preoperation, operation and post operation experiences for esophageal cancer patients. We are working with a Doctor at OHSU. The project will assist and educate newly diagnosed patients. We are willing to interview you via a cell phone or if you live in the Portland Area we would really appreciate (if you are willing) to film your interview. If you can assist us please e-mail me at julie_aldridge@yahoo.com Thank you and when the project is finished I will be certain that you recieve a free CD of the project. This will be free product for esophageal patients. God Bless.
  • Rock
    Rock Member Posts: 3
    #4
    julie_at_psu said:

    Are there any survivors, caregivers or helpful folks willing to help with a Senior Project at Portland State University? A team of students are creating education software to document preoperation, operation and post operation experiences for esophageal cancer patients. We are working with a Doctor at OHSU. The project will assist and educate newly diagnosed patients. We are willing to interview you via a cell phone or if you live in the Portland Area we would really appreciate (if you are willing) to film your interview. If you can assist us please e-mail me at julie_aldridge@yahoo.com Thank you and when the project is finished I will be certain that you recieve a free CD of the project. This will be free product for esophageal patients. God Bless.

    I was operated on 9/29/01 for esophgeal cancer. Squamous cell carcinoma. Would be happy to answer your questions.

    Thanks
  • Jinny
    Jinny Member Posts: 2
    #5
    Rock said:

    I was operated on 9/29/01 for esophgeal cancer. Squamous cell carcinoma. Would be happy to answer your questions.

    Thanks

    Dear Rock, I also have squamouos carcinoma of the esophagus. Surgery was not a good option so have had daily radiation, chemo pump and a once a week day long chemo treatment. Daily radiation is over and am haveing brachytherapy every three weeks. I can swallow nothing yet. The feeding tube, subclavian line. It's a rough road isn't it. I just wanted to touch base with someone else who has had this experience. Jinny
  • Jinny
    Jinny Member Posts: 2
    #6
    Rock said:

    I was operated on 9/29/01 for esophgeal cancer. Squamous cell carcinoma. Would be happy to answer your questions.

    Thanks

    Dear Rock, I also have squamouos carcinoma of the esophagus. Surgery was not a good option so have had daily radiation, chemo pump and a once a week day long chemo treatment. Daily radiation is over and am haveing brachytherapy every three weeks. I can swallow nothing yet. The feeding tube, subclavian line. It's a rough road isn't it. I just wanted to touch base with someone else who has had this experience. Jinny

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