T-cell

tcellman
tcellman Member Posts: 1
edited March 2014 in Lymphoma (Hodgkin and Non-Hodgkin) #1
My peripheral T-cell lymphoma, diagnosed in October 2001, reoccurred one month after complete remission following CHOP treatment. I am now taking two rounds of ICE chemotherapy, to be followed by stem cell transplant. I am weighing whether to use my own stem cells or someone else's that would be a match.

Has anyone had experience with stem cell transplants with a T-cell patient? Also, does anyone know anything about clinical trials involving T-cell lymphoma that is in recurrence? I am looking for personal stories, not what I can find on government or treatment center web sites.

Many thanks,

Tcellman

Comments

  • pumkin
    pumkin Member Posts: 6
    #2
    Hi, I've done 6 different treatments--at this time I am not cured but stable. I have B cell and some Tcell mix. I looked in my literature from the LRFA and they list Campath. Have you tried this treatment? It is a moniclonal antibody. They are really easy on the body. I have done Rituxan twice. My doctor states that things are moving so rapidly in the treatment that he cannot predict what we will use when my tumors start to grow. He said he couldn't even predict if I relapsed in as little as 2 months time because of the new drugs. I went for a workup for a stem cell transplant and they gave me a 40% chance. I chose not to do it. What odds are you working with at this time? (FYI I went in 1997 for the workup) I hope this helps you--think positively, I'm still here and they had written me off for 6 weeks to live--that was 3 years ago. Oh, I would also check to see what clinical trials you would qualify for after the transplant. That was another reason I turned it down, I would qualify for nothing new if I had had it. Pumkin
  • hzeckel
    hzeckel Member Posts: 6
    #3
    What do you mean by "peripheral" T-cell lymphoma? Do you mean that it is limited to your skin? If so, I have that also.
    hzeckel
  • palady
    palady Member Posts: 2
    #4
    peripheral means that the lymphoma is active in an area above the diaphragm and an area on the opposite side but below the diaphragm. My lymphoma is located on the left side of my neck and under the left arm. However I initially also had a lump on the right side of my groin area...miraculously that disappeared and it has not shown up on any of my scans....So I have State II instead of Stage III but the Dr's at the Mayo Clinic are still considering the lump I had as part of my diagnosis
  • palady
    palady Member Posts: 2
    #5
    peripheral means that the lymphoma is active in an area above the diaphragm and an area on the opposite side but below the diaphragm. My lymphoma is located on the left side of my neck and under the left arm. However I initially also had a lump on the right side of my groin area...miraculously that disappeared and it has not shown up on any of my scans....So I have State II instead of Stage III but the Dr's at the Mayo Clinic are still considering the lump I had as part of my diagnosis

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