Reoccurence of thryoid cancer

sharonmitchell
sharonmitchell Member Posts: 5
edited March 2014 in Thyroid Cancer #1
Hello everyone:
My name is Sharon. I was first diagnoised almost thirteen years old , back in 1989. I had my entire thyroid, parathryroids, lymphs nodes and chest cavitiy scraped. Followed by M131 radiation in Feb 90, May 96, June 99 and Jan 00. Followup with tearduct reconstructive surgery (July 01) due to the side effects of the radiation. My right tear duct collapsed. At this point, I have "maxed out " on internal radiation treatments (M131) Currently, I was to have had 4 enlarged lymph nodes removed from my left side of my neck. However, once the surgeon was "inside" a radical neck dissection was necessary. Not only were the four lymph nodes were removed, but additional neck lymph nodes and all the lymph nodes under my shoulder muscle. Along with my lymph nodes, two lesions were discovered on my spine (C3-C4). At the beginning of this surgery I was to have the vertebrate removed with a bone hip replacement to replace the discs removed. The best part was to wear a neck brace for three months in the summer heat. But the good side of the surgery was after the head/neck surgeron finished, the neuro surgeon went in to begin the disc removal. However, the lesions were dead due to the previous radiation treatments and the dead cells were so small, the surgeon decided another alternative. The neuro removed the dead lesions, drilled out 20% around the lesions and saved my vertebrate. HEH HEH So today I sit here after my day of physical theraphy to restore my shoudler muscle back to normal, feeling pretty good. I do not have to wear the neck brace. I still have C# and C4 in my spine. The scar is directly over the previous scar. I have returned to work almost two weeks after the surgery. I can finally turn my neck so I can drive.Basically life is good again. Times can be rough.. but then there is the end of the rainbow. Attitude is everything.. and positive thinking can go along way.So for all thyroid cancer patients,, keep believing in tomorrow..and always try to smile everyday.
Sharon
«13

Comments

  • Kristy
    Kristy Member Posts: 7
    #2
    Hi Sharon,
    I am impressed with your struggle and courage. I, too, am not one of the lucky ones who escapes thyroid cancer with traditional outcome. I'm in year four with a whole new host of medical challenges. I would be interested in communicating more with you if you please.
    best wishes,
    Kristy
  • sharonmitchell
    sharonmitchell Member Posts: 5
    #3
    Kristy said:

    Hi Sharon,
    I am impressed with your struggle and courage. I, too, am not one of the lucky ones who escapes thyroid cancer with traditional outcome. I'm in year four with a whole new host of medical challenges. I would be interested in communicating more with you if you please.
    best wishes,
    Kristy

    Hi Kristy: Sorry that I have not had a chance to reply to you sooner. Life has been very busy for me. Since my last reply on the discussion board, I have completed my physicaly theraphy.. can move my neck, arms and shoulders. I guess the only drawback is that my left shoulder is lower than the right shoulder since many many lymph nodes were removed from under the shoulder muscle above the bone.. I guess that my drs are pretty aggressive in controlling the thyroid cancer.. I do not object.. if that is what must happen to give me another day on the planet then let it be...I know when I was first diagnoised my sister stopped believing in God.. she felt God let her down and that things weren't suppose to happen to good people... since then of course due to my many many treatments of radiation I could not have children due to the high hgih risk. But the good side of this is that God did have a plan for this unfortunate disease for me... my husband and I began foster parents and have offically adopted three brothers.. 20, 16, and 13. Now I guess that is why things happen and we just don't know why because God has a plan B. Well enough about me, please email me back and tell me about your life with cancer. I would very much to communicate with me.
    Hope to hear from you soon.
    God bless
    Sharon
  • Unknown
    Unknown
    #4
    This comment has been removed by the Moderator
  • MJS
    MJS Member Posts: 3
    #5
    Kristy said:

    Hi Sharon,
    I am impressed with your struggle and courage. I, too, am not one of the lucky ones who escapes thyroid cancer with traditional outcome. I'm in year four with a whole new host of medical challenges. I would be interested in communicating more with you if you please.
    best wishes,
    Kristy

    Hi Sharon,
    wow, you
    Hi Sharon,
    wow, you certainly are an example of how far attitude gets you, thank you! I agree, it is so important to look on the bright side and be positive. Question for you and anyone else. I was diagnosed with papillary cancer last spring, 2009, my tumor was 2.4 cm and I had a total thyroidectomy but did not have any further treatment. My endo said surgery got it all and he felt I was "cured." Then at my follow up, 3 mos after surg, showed my thyroglob to be 0 (was 135 before surg, he did not check me for antibodies, though--I recently learned about that) and my tsh was good though i'm blanking on that number. I had surg, got my levoxyl and he said, literally,"see you in a year!" And that was it! I am on 100mcg of levoxyl and have to say I feel pretty good. The only thing is that a for several months now I have noticed a funny feeling in my right lung. I want to say it feels like a lump and I keep getting winded and cough. I am in good shape, work out regularly and jog but am having a hard time jogging now, I cough and feel really winded. Best I can discribe it is that my lungs just feel funny. I also have asthma, but this feels different, I'm not "wheezing" and my inhalers aren't helping. My question is, are there symptoms with lung mets? I am (surprisingly) not afraid, just want to know so I can get the proper care and enjoy my life. I'm actually more annoyed because I'm trying to train for a 10K and it's challenging! Having gotten more info this past year and reading these posts, I am now questioning my endo's advice (he sees the gamet of patients w/endo issues) to not have RAI or anything. So I will see a cancer specialist this February (took 3 mos to get an appt, oy) Anyway, I'd appreciate any advice. And Thanks again, Sharon for the positive outlook! cheers!
    Mary Jo
  • BellsAngel69
    BellsAngel69 Member Posts: 104 Member
    #6
    MJS said:

    Hi Sharon,
    wow, you
    Hi Sharon,
    wow, you certainly are an example of how far attitude gets you, thank you! I agree, it is so important to look on the bright side and be positive. Question for you and anyone else. I was diagnosed with papillary cancer last spring, 2009, my tumor was 2.4 cm and I had a total thyroidectomy but did not have any further treatment. My endo said surgery got it all and he felt I was "cured." Then at my follow up, 3 mos after surg, showed my thyroglob to be 0 (was 135 before surg, he did not check me for antibodies, though--I recently learned about that) and my tsh was good though i'm blanking on that number. I had surg, got my levoxyl and he said, literally,"see you in a year!" And that was it! I am on 100mcg of levoxyl and have to say I feel pretty good. The only thing is that a for several months now I have noticed a funny feeling in my right lung. I want to say it feels like a lump and I keep getting winded and cough. I am in good shape, work out regularly and jog but am having a hard time jogging now, I cough and feel really winded. Best I can discribe it is that my lungs just feel funny. I also have asthma, but this feels different, I'm not "wheezing" and my inhalers aren't helping. My question is, are there symptoms with lung mets? I am (surprisingly) not afraid, just want to know so I can get the proper care and enjoy my life. I'm actually more annoyed because I'm trying to train for a 10K and it's challenging! Having gotten more info this past year and reading these posts, I am now questioning my endo's advice (he sees the gamet of patients w/endo issues) to not have RAI or anything. So I will see a cancer specialist this February (took 3 mos to get an appt, oy) Anyway, I'd appreciate any advice. And Thanks again, Sharon for the positive outlook! cheers!
    Mary Jo

    MaryJo
    I would get checked. Seeing how you didn't get a follow up RAI treatment, which is usually standard (I can't believe your doctor sent you on your way without follow up). Your TSH levels should be checked every three months following a thyroidectomy also. I don't want to panic you, but thyroid cancer can spread to the lungs. I would definitely get to your doctor and fast, tell him how you're feeling. You know if you're not feeling right. I would also consider a different doctor. I don't feel your's is doing you justice.

    You need to be proactive in all of this. I wouldn't be satisfied and pushed out the door so fast. It's cancer, not a cold.
  • sandykr
    sandykr Member Posts: 57
    #7
    BellsAngel69 said:

    MaryJo
    I would get checked. Seeing how you didn't get a follow up RAI treatment, which is usually standard (I can't believe your doctor sent you on your way without follow up). Your TSH levels should be checked every three months following a thyroidectomy also. I don't want to panic you, but thyroid cancer can spread to the lungs. I would definitely get to your doctor and fast, tell him how you're feeling. You know if you're not feeling right. I would also consider a different doctor. I don't feel your's is doing you justice.

    You need to be proactive in all of this. I wouldn't be satisfied and pushed out the door so fast. It's cancer, not a cold.

    p.s.
    Tell us how the 10K goes!!
  • lynn2318
    lynn2318 Member Posts: 41
    #8
    MJS said:

    Hi Sharon,
    wow, you
    Hi Sharon,
    wow, you certainly are an example of how far attitude gets you, thank you! I agree, it is so important to look on the bright side and be positive. Question for you and anyone else. I was diagnosed with papillary cancer last spring, 2009, my tumor was 2.4 cm and I had a total thyroidectomy but did not have any further treatment. My endo said surgery got it all and he felt I was "cured." Then at my follow up, 3 mos after surg, showed my thyroglob to be 0 (was 135 before surg, he did not check me for antibodies, though--I recently learned about that) and my tsh was good though i'm blanking on that number. I had surg, got my levoxyl and he said, literally,"see you in a year!" And that was it! I am on 100mcg of levoxyl and have to say I feel pretty good. The only thing is that a for several months now I have noticed a funny feeling in my right lung. I want to say it feels like a lump and I keep getting winded and cough. I am in good shape, work out regularly and jog but am having a hard time jogging now, I cough and feel really winded. Best I can discribe it is that my lungs just feel funny. I also have asthma, but this feels different, I'm not "wheezing" and my inhalers aren't helping. My question is, are there symptoms with lung mets? I am (surprisingly) not afraid, just want to know so I can get the proper care and enjoy my life. I'm actually more annoyed because I'm trying to train for a 10K and it's challenging! Having gotten more info this past year and reading these posts, I am now questioning my endo's advice (he sees the gamet of patients w/endo issues) to not have RAI or anything. So I will see a cancer specialist this February (took 3 mos to get an appt, oy) Anyway, I'd appreciate any advice. And Thanks again, Sharon for the positive outlook! cheers!
    Mary Jo

    Hi Mary Jo,
    This is my first
    Hi Mary Jo,
    This is my first time on the site and read your post on your lung issue. I also had papillary cancer. My surgeon sent me to a endo and he immediately did lab work which consisted of thyroglobulin etc. My level was high post surgery and i received I131 treatment approx. 2 mo. after surgery. My cancer had spread to my lymph nodes however so I don't know if that makes a difference. After my first treatment my thyroglobulin was still measurable so i received another treatment 6 months later which was a year ago. I have seen my endo. every 3 months since my surgery which will be 2 years in April. He is insistant on frequent office visits, blood tests, and I had a ultrasound on my neck 2 months ago. I see him again in 6 weeks and will have lab again followed by a full body scan after thyrogen injections. My point is you need to may need to possibly find a different endocinologist. I don't mean that in a mean way, just concerned. I have also had chest xrays and CT of my chest and bone scan following my second treatment. Good luck on your 10K and I hope you find some answers for your lung problem.
  • nevergiveup51
    nevergiveup51 Member Posts: 40
    #9
    Thyroid
    Dear Sharon, I am so sorry for all your troubles, but what a great finish to your story. December 22, 2009 I found out that I have Thyroid Papillary Cancer. My doctor said that if I was to have any cancer this is the best one because it is over 90% curable. All the stories that I have read of thyroid recurrence is so scary. I read that sometimes the iodine treatment doesn't even work. My surgery is schedule for March 17th. She told me that there is a 60 to 70% chance that I have thyroid cancer (they couldn't be 100%). It's a little bigger that a dime, millimeters and when they did the ultrasound they found one lymph node that may have cancer. I have been having troubles for a long time such as my neck hurting, hard time swallowing, I get winded at times. If I had it for a long time and just found it does this mean the outcome will be bad? There are so many sad stories why is the cure rate so high? I am really scared. Hopefully I'll see a posting tomorrow. Bye for now.

    Thanks
    Debby

    P.S. Mary-Jo, all the advice you have gotten from this site is good. Good luck.
  • sandykr
    sandykr Member Posts: 57
    #10
    nevergiveup51 said:

    Thyroid
    Dear Sharon, I am so sorry for all your troubles, but what a great finish to your story. December 22, 2009 I found out that I have Thyroid Papillary Cancer. My doctor said that if I was to have any cancer this is the best one because it is over 90% curable. All the stories that I have read of thyroid recurrence is so scary. I read that sometimes the iodine treatment doesn't even work. My surgery is schedule for March 17th. She told me that there is a 60 to 70% chance that I have thyroid cancer (they couldn't be 100%). It's a little bigger that a dime, millimeters and when they did the ultrasound they found one lymph node that may have cancer. I have been having troubles for a long time such as my neck hurting, hard time swallowing, I get winded at times. If I had it for a long time and just found it does this mean the outcome will be bad? There are so many sad stories why is the cure rate so high? I am really scared. Hopefully I'll see a posting tomorrow. Bye for now.

    Thanks
    Debby

    P.S. Mary-Jo, all the advice you have gotten from this site is good. Good luck.

    Hi,
    I too have been going
    Hi,
    I too have been going thru all of this since this past summer. 2 surgeries later, no thyroid (papillary cancer) and now almost 2 weeks post RAI and I must say that in spite of it all, I'm feeling good!
    Why is it a "good" cancer, I think because usually they are very very slow growing cancers so they can be caught in time. Also, you can live without your thyroid, so first line of defence is taking the thyroid out.
    True, I too read peoples stories about recurrence, metastases etc. but on the scale of things, it is "easier" with thyroid cancer.
    My only advice is to find good doctors, ask lots and lots of questions (these sites are great) and keep a positive attitude

    Feel good

    Sandy
  • nevergiveup51
    nevergiveup51 Member Posts: 40
    #11
    sandykr said:

    Hi,
    I too have been going
    Hi,
    I too have been going thru all of this since this past summer. 2 surgeries later, no thyroid (papillary cancer) and now almost 2 weeks post RAI and I must say that in spite of it all, I'm feeling good!
    Why is it a "good" cancer, I think because usually they are very very slow growing cancers so they can be caught in time. Also, you can live without your thyroid, so first line of defence is taking the thyroid out.
    True, I too read peoples stories about recurrence, metastases etc. but on the scale of things, it is "easier" with thyroid cancer.
    My only advice is to find good doctors, ask lots and lots of questions (these sites are great) and keep a positive attitude

    Feel good

    Sandy

    Hi
    Hi Sandy,
    Thank you for replying and your right this is a great site. Now I don't feel alone. Just wondering why did you have two surgeries? When I went to meet the surgeon she said she will remove the thyroid. After I recover from that I ween myself off the synthroid for two weeks, scan, and then I do the iodine treatment, is this the order? Were you in the early stages (if this is too personal don't feel you have to answer). I was just wondering.
    Thank you for your advice regarding the doctors. It took me a long time but I think I found one that actually listened to me.

    By the way, when you found out that you had Thyroid Cancer did you go on a special diet? I have been reading that you shouldn't eat any animal products, no processed foods, all organic fruits and vegetables. It's expensive but if it means your life you have to find a way to do it. I am going to keep positive. Its nice communicating with you. Thank you again.

    Bye for now, Debby
  • sandykr
    sandykr Member Posts: 57
    #12
    nevergiveup51 said:

    Hi
    Hi Sandy,
    Thank you for replying and your right this is a great site. Now I don't feel alone. Just wondering why did you have two surgeries? When I went to meet the surgeon she said she will remove the thyroid. After I recover from that I ween myself off the synthroid for two weeks, scan, and then I do the iodine treatment, is this the order? Were you in the early stages (if this is too personal don't feel you have to answer). I was just wondering.
    Thank you for your advice regarding the doctors. It took me a long time but I think I found one that actually listened to me.

    By the way, when you found out that you had Thyroid Cancer did you go on a special diet? I have been reading that you shouldn't eat any animal products, no processed foods, all organic fruits and vegetables. It's expensive but if it means your life you have to find a way to do it. I am going to keep positive. Its nice communicating with you. Thank you again.

    Bye for now, Debby

    Hi Debby,
    I had two
    Hi Debby,
    I had two surgeries since when I had the fine needle biopsy, only the cells on the left side were "pre cancerous", so they only took out the left side. If they would have been cancer, they would have done a total. My luck...........was that when they biopsied the gland that they removed, it turned out that it was cancer, so 3 months later, out came the right side. When they biopsied that side of the gland, it turned out that there was cancer in it too, and now I am saying that I really was lucky (no sarcasm here!), since on the FNA those cells were ok!
    Of course the hard part was going into surgery twice, but the second time, I knew exactly what to expect.
    I was on cynomel after the surgery for about 3 weeks and then went off in preparation for the RAI. I was never told to do a special diet, which I was glad about. I tried to stay away from seafood as I know its full of iodine, but thats about it.
    Any other questions..........believe me, nothing is too personal. Getting information only helps to lessen the anxiety etc.
    My own personal recipe for good health is exercise. I exercise alot and I am convinced that that has helped me thru all of the ups and downs of not having a thyroid. Right now my TSH is over 100, I am on thyroxin (2 weeks now), but I'm back to running 10K, and swimming and I feel good!
    Sandy
  • nevergiveup51
    nevergiveup51 Member Posts: 40
    #13
    sandykr said:

    Hi Debby,
    I had two
    Hi Debby,
    I had two surgeries since when I had the fine needle biopsy, only the cells on the left side were "pre cancerous", so they only took out the left side. If they would have been cancer, they would have done a total. My luck...........was that when they biopsied the gland that they removed, it turned out that it was cancer, so 3 months later, out came the right side. When they biopsied that side of the gland, it turned out that there was cancer in it too, and now I am saying that I really was lucky (no sarcasm here!), since on the FNA those cells were ok!
    Of course the hard part was going into surgery twice, but the second time, I knew exactly what to expect.
    I was on cynomel after the surgery for about 3 weeks and then went off in preparation for the RAI. I was never told to do a special diet, which I was glad about. I tried to stay away from seafood as I know its full of iodine, but thats about it.
    Any other questions..........believe me, nothing is too personal. Getting information only helps to lessen the anxiety etc.
    My own personal recipe for good health is exercise. I exercise alot and I am convinced that that has helped me thru all of the ups and downs of not having a thyroid. Right now my TSH is over 100, I am on thyroxin (2 weeks now), but I'm back to running 10K, and swimming and I feel good!
    Sandy

    I'm Back
    Hi Sandy,
    My computer had a virus and it took a few days to get it up and running and here I am.

    I am sorry you had to go though that but I am glad they caught their mistake and removed the whole thyroid. As you know, you don't even need your thyroid. When I was diagnosed at the end of December I decided to join the gym and I have been going ever since and your right, it does feel good. It relieves stress. Today I had hard day though, just walking and going up the stairs I get heart palpitations and winded. Its tough. This type of thing has happen to me for a while and I just related it to my lyme diease but now I think it has to do with my thyroid. Should I concerned and tell the surgeon. She didn't schedule me until March 17. I wish they can remove it sooner. I hope their not making a mistake by waiting. I'll talk to you later, Debby
  • sandykr
    sandykr Member Posts: 57
    #14
    nevergiveup51 said:

    I'm Back
    Hi Sandy,
    My computer had a virus and it took a few days to get it up and running and here I am.

    I am sorry you had to go though that but I am glad they caught their mistake and removed the whole thyroid. As you know, you don't even need your thyroid. When I was diagnosed at the end of December I decided to join the gym and I have been going ever since and your right, it does feel good. It relieves stress. Today I had hard day though, just walking and going up the stairs I get heart palpitations and winded. Its tough. This type of thing has happen to me for a while and I just related it to my lyme diease but now I think it has to do with my thyroid. Should I concerned and tell the surgeon. She didn't schedule me until March 17. I wish they can remove it sooner. I hope their not making a mistake by waiting. I'll talk to you later, Debby

    Sure, why not mention it to
    Sure, why not mention it to your surgeon, if the nodule is obstructing, or pressing on your wind pipe, that could be causing your getting "winded" but mention it so that YOU feel relaxed about it.

    How are your thyroid hormone levels? Are they ok? Mine were fine before surgery, but if they are altered, this too can give you palpatations etc.

    Talk to your surgeon! let me know

    Sandy
  • nevergiveup51
    nevergiveup51 Member Posts: 40
    #15
    sandykr said:

    Sure, why not mention it to
    Sure, why not mention it to your surgeon, if the nodule is obstructing, or pressing on your wind pipe, that could be causing your getting "winded" but mention it so that YOU feel relaxed about it.

    How are your thyroid hormone levels? Are they ok? Mine were fine before surgery, but if they are altered, this too can give you palpatations etc.

    Talk to your surgeon! let me know

    Sandy

    Letting the Doctor know
    That is exactly what I am going to do. I have her assistants e-mail address and I will repeat exactly what you just said. What I am hoping for is that they will fit me in earlier, March 17th is so long to wait. The anxiety of it all is overwelming. I just want it to be over.

    I didn't mention it to you before but my twin sister Dawn was also diagnosed with Thyroid Cancer. She had her surgery on November 18th. I spent the night with her at the hospital. My sister is Special and what I mean by that is when she was born she lost oxygen and when they revived her damage was done. She can only makes sounds when she speaks. Dawn is the most wonderful person in the world. She makes people laugh all the time. An example: the anesthesiologist came in the recovery room to see how Dawn was doing, and he told me that while she was in the operating room his mask wasn't on straight (at least not for Dawn's liking) she sat up and straightened it out for him. I just laughed because that is my sister all way. That's why we don't take her shopping too much. When she walks into a store she has to sip every jacket, button every shirt and the list goes on. It's pretty funny. This past week she went through the radioactive iodine treatment. They had to admit her for three days. She was all alone in a room. She did fine though. I'll keep you updated on her along with myself if you want. Thank you Sandy for posting. I look forward to reading your messages.

    Talk to you later, Debby
  • sandykr
    sandykr Member Posts: 57
    #16
    nevergiveup51 said:

    Letting the Doctor know
    That is exactly what I am going to do. I have her assistants e-mail address and I will repeat exactly what you just said. What I am hoping for is that they will fit me in earlier, March 17th is so long to wait. The anxiety of it all is overwelming. I just want it to be over.

    I didn't mention it to you before but my twin sister Dawn was also diagnosed with Thyroid Cancer. She had her surgery on November 18th. I spent the night with her at the hospital. My sister is Special and what I mean by that is when she was born she lost oxygen and when they revived her damage was done. She can only makes sounds when she speaks. Dawn is the most wonderful person in the world. She makes people laugh all the time. An example: the anesthesiologist came in the recovery room to see how Dawn was doing, and he told me that while she was in the operating room his mask wasn't on straight (at least not for Dawn's liking) she sat up and straightened it out for him. I just laughed because that is my sister all way. That's why we don't take her shopping too much. When she walks into a store she has to sip every jacket, button every shirt and the list goes on. It's pretty funny. This past week she went through the radioactive iodine treatment. They had to admit her for three days. She was all alone in a room. She did fine though. I'll keep you updated on her along with myself if you want. Thank you Sandy for posting. I look forward to reading your messages.

    Talk to you later, Debby

    Thats interesting about your
    Thats interesting about your sister, were you diagnosed because of your sisters cancer?? Well if your sister could manage the RAI in a hospital setting she really is "special"

    Let me know if your surgeon changes the date. If not take some vacation or something before, anything to take your mind off it!
  • Blair84
    Blair84 Member Posts: 45
    #17
    Lovely advice
    Hi, thank you for the advice, I've been diagnosed with papillary carcinoma last week and it's been hard.. I will have my surgery soon. Great advice
  • nevergiveup51
    nevergiveup51 Member Posts: 40
    #18
    sandykr said:

    Thats interesting about your
    Thats interesting about your sister, were you diagnosed because of your sisters cancer?? Well if your sister could manage the RAI in a hospital setting she really is "special"

    Let me know if your surgeon changes the date. If not take some vacation or something before, anything to take your mind off it!

    Hi Sandy,
    Yes, because of
    Hi Sandy,

    Yes, because of Dawn I went to the doctor and ask to be tested so he did and here I am now. Actually tonigh I am pretty scared. I just got off the phone with a nurse, my nodule was written in millimeters so here I have been thinking it is small but actually it is 1.6 cm and I really have to get this think out sooner rather than latter. My scheduled appointment is March 17th (6weeks from now)
  • sandykr
    sandykr Member Posts: 57
    #19
    nevergiveup51 said:

    Hi Sandy,
    Yes, because of
    Hi Sandy,

    Yes, because of Dawn I went to the doctor and ask to be tested so he did and here I am now. Actually tonigh I am pretty scared. I just got off the phone with a nurse, my nodule was written in millimeters so here I have been thinking it is small but actually it is 1.6 cm and I really have to get this think out sooner rather than latter. My scheduled appointment is March 17th (6weeks from now)

    Just looking back at my
    Just looking back at my pathology report, After the first surgery, the nodules were .6 and 1.2 cm! On the right they were even bigger (1.8), but of course I didn't know this before surgery. I had about 6-8 weeks waiting until my first surgery. Now that was my choice, I was told that it was not urgent and we were going on vacation.........so I scheduled it for afterwards. Like I said, I was told that this is a very very slow growing cancer, but for sure I understand what you're going thru. Lucky you went to get tested!

    Sandy
  • nevergiveup51
    nevergiveup51 Member Posts: 40
    #20
    sandykr said:

    Just looking back at my
    Just looking back at my pathology report, After the first surgery, the nodules were .6 and 1.2 cm! On the right they were even bigger (1.8), but of course I didn't know this before surgery. I had about 6-8 weeks waiting until my first surgery. Now that was my choice, I was told that it was not urgent and we were going on vacation.........so I scheduled it for afterwards. Like I said, I was told that this is a very very slow growing cancer, but for sure I understand what you're going thru. Lucky you went to get tested!

    Sandy

    Swimming
    Hi Sandy,

    How have you been doing? I have been exercising everyday and doing yoga trying to keep from getting too nervous. I have a doctors appt. on Feb 9th, ENT to check my voice box, wish me luck. Have you done your iodine treatment yet? One of your postings you mentioned that you swam. I just wanted to mentioned that during my researching one article mentioned that individuals with either thyroid problems or thyroid cancer should not drink fluoride and chlorinated water. I don't know if that would include swimming only because it has great amounts of chlorine in the water. I am going to look into it further but I just wanted to mention this to you just in case your weren't aware of it. I'll talk to you later.

    Debby
  • emma54
    emma54 Member Posts: 59
    #21
    nevergiveup51 said:

    Swimming
    Hi Sandy,

    How have you been doing? I have been exercising everyday and doing yoga trying to keep from getting too nervous. I have a doctors appt. on Feb 9th, ENT to check my voice box, wish me luck. Have you done your iodine treatment yet? One of your postings you mentioned that you swam. I just wanted to mentioned that during my researching one article mentioned that individuals with either thyroid problems or thyroid cancer should not drink fluoride and chlorinated water. I don't know if that would include swimming only because it has great amounts of chlorine in the water. I am going to look into it further but I just wanted to mention this to you just in case your weren't aware of it. I'll talk to you later.

    Debby

    Also a swimmer
    WOW! My dental hygenist briefly mentioned the flouride and said she was going to look into it, but we both forgot. I am an avid swimmer and have been having trouble since my thyroidectomy. My throat gets really dry when I swim and I am coughing a lot more than usual (i always cough)!!! I am going to an ENT on Friday, so I will run this by him. I certainly hope it is not the chlorine or my dog because i will not stop swimming and my dog stays!

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