Trying To Decide What Treatment Option to Take for Breast CancerO

Hello, just wanted to share my own experience with you. I had a 2.5 cm tumor with calcifications(also cancerous) I had a mastectomy and one lymph node was positive. I had rapid growing cancer as well. My oncologist recommended 3 months of AC and I was given option of three more months of Taxol, but Taxol didn't have a great percentage of Nonreoccurrence,so I chose not to put my body through it, I heard it is very rough on the body. I had very bad time with chemo alone.I met with a radiologist and was told no radiation was needed , I am on Tamoxifen and Lupron for five years. I just pray that Cancer never returns and I know that I did what I needed to do to help.Best of Luck to you, we are here if you need us !! God Bless Karin

bullfrog13 said:

Dear Sherlynn
Well sounds like you have had a time of it.. as we all do.. just follow your heart and do research..ask lots of questions to your Dr and nurses... i will Tell you ONE Thing.. radiation is a walk in the park on a beautiful spring day compared to chemo.... and if you do opt for radiaition.. use the cream they give you ONLY AFTER treatment.. TRUST me!! i learned the HARD way..lol.. good luck.and God bless.. Jerilyn

Hi there,
I will share my experience with you. I am 37 and dxed in sept. 2001 with invasive ductal 2.2 cm tumor node neg. er/pr pos and her-2 pos. I did 6 rounds of ac, did 30 rads and am now doing 6 rounds of taxol. I know stat wise that with each of these it doesnt raise the percentage much, excpect for me raising even 1 percent is well worth it. I have 4 kids and I am going to be there to watch them grow up. I am healthy and strong and am willing to take on anything they will give me to ensure that. The ac was hard, the rads were a breeze and I am having absolutely no problems what so ever with the taxol. I have had 2 of the 6 rounds. Please feel free to email me anytime at nocarb1@yahoo.com I hope this helps!! Keep your head up and know you will beat this thing!! :)
Carlye

Hi,tough to make a decision. I will tell you my story. My first diagnosis was in 1998, I was a young 54 year old. ADENOCARCINOMA, Stage 1,tumor 1.7cm, hormone receptor Negative. I chose mastectomy followed by 6 month of CAF chemo. No Radiation needed. Had Tram-Flap Reconstruction 1 yr later, all was fine.
In Feb. 2002 (now a young 58 yr old) having my routine mammogram, I was dx with DCIS in the other breast, very small only 5mm.Stage 1, Hormone receptor NEGATIVE and That is what bothers me. Stats don't mean much to me . As of now I had a lumpectomy, 6 weeks of radiation and presently chemo . I have had 2 treatments so far, this time CMF, as I am at the max for adriamycin. 2weeks in a row, 2weeks off. The radiation went well, chemo so so, but I have set my priorities and will focus better at my well being. Because of the Hormone receptor NEGATIVE I will do everything possible trying to beat this desease. This route was my decision and I feel comfortable with it. Chemo is no picnic but it is not for ever. Read as much as you can and decide , YOU have to be comfortable with your decision. Hope this helps, take care and keep us up to date.
Love Emmi

Hi Sherlynn:

I haven't visited for quite some time. In browsing tonight, I saw your post and wanted to take the time to respond.

We all know how you must feel at this point.
Every treatment option seems intimidating and scary. I'd suggest, as others have suggested, that you educate yourself as much as possible before making your final decisions. www.nci.nih.gov is a great, informative website for starters. You will find a wealth of reliable information there which may be helpful.

Re percentages/averages...don't count on them. Your particular body is unique!

My story is similar to your own. I had a one centimeter tumor. ER/PR negative. Strongly Her-2/neu and an aggressive little rascal. I had lumpectomy, followed by 4 cycles of AC and 37 radiation treatments. After 3 opinions, all recommending basically the same treatment, together with lengthy discussions with my surgeon and a lot of research, I made my choice and never looked back. The research was very helpful to me in being more secure with the choice I'd made. Hope it will be for yourself too.

Stay positive and take excellent care of yourself with a nourishing diet, plenty of rest and relaxation. Soon, your choice will be made and sooner than you'd imagine, you'll be through the treatments and your body and spirit can begin to heal and feel whole again. Trust me, none of this is easy, but we've all been exactly where you are now and understand how it feels.

You'll find that most of the ladies here are amazingly strong, positive individuals and can be relied upon for advice anytime about almost anything you could imagine. Before, during and after treatment. So, don't feel uncomfortable asking anything at all...someone here always has suggestions and encouragement to offer.

Love, light and laughter,
Inkblot

Mine stage three dx at abe 36 and had positive nodes 11/21. I figured since I had a son that I had been sole supporter of needed his mother and decided that if doing treatments then I should get everything I could out of them, since cancer so agressive.
I think one has to enform themselves and do what they feel most comfortable with. As long as we realize there just aren't any gaurantees, but then there aren't any in life without cancer. I did the best I could for myself at the time, considering how ill I was. Must be more difficult to understand when you don't feel sick or anything when it comes to the cancer. I was sick and knew I had to do something.
We must think in the simplest of terms that is the best that we can do in such a situation. We truly are the ones that complicate everything.
Your close at heart and on my mind.
Be good to yourself,
Tara24242

I read your post and all the responses and I would have to agree--each case is different and there are no guarantees. In the end, you have to be comfortable with your decision because the "what if's" can cause too much stress. I had a lumpectomy, 4 rounds of AC and 4 of Taxol, 36 rounds of radiation and I would take chemo again anyday over radiation but thru it all I knew that I had to do whatever it took to try and beat this thing. I am almost at three years since my surgery. Good luck with your decision but get as much info as you can not only about the treatments but also the facility that will be administering the treatment. Being treated like a human instead of a number is very important.
God Bless and keep us posted.
LaVerne

sherlynn said:

Hi Laverne!
Thanks so much for responding to my question. You are the first one to say they preferred the chemo over the radiation. Can you tell me why? Also were your nodes positive or negative for the spread?

Thanks, again. I do so appreciate the info!
And, CONGRATULATIONS on your 3 years!!

God Bless, YOU!
Sherry

I had fourteen nodes removed and thirteen of them were cancerous. Chemo to me was tough but there was enough time in between sessions for your body to recover also there seemed to me more coping ability for chemo. Anti-nausea drugs and eating small meals etc. Radiation was every day and once I became burned and the skin started to peel away there was no relief. I tried Aquaphor,ALoe Vera, Vitamin E and even this prescription cream that they use on burn victims. Now, my case was very rare,(or so the radiation doctor tried to convince me) I developed something called radiation mastitis(not sure if that's the correct spelling)but basically it is a severe case of swelling in the radiated breast. I was always a large breasted women but having to buy a 52DDD bra just to accomodate the right breast knocked me for a loop. I still have some swelling and the doctor's have tried everything. They even considered hyperbaric oxygen treatments but the stats on that were not conclusive and I was not willing to give up two hours a day for six weeks and then still be in the same boat. I went out and bought some bigger bras(I know how much bigger can they get)and I have been able to get some relief but it just makes me mad when I hear doctor's and other people say radiation is a walk in the park. Believe me I have never been in any kind of park like that. But like I said before, each case is different. In hindsight I probably would have skipped the radiation because at least both of my breasts looked the same after chemo, I now have one that is brown and the other is black. It is really noticable but thank God only my husband and I have to see them on a daily basis. But anything to fight the disease is what you are willing to put your body thru. Good luck with your decision and please feel free to e-mail me with any questions you may have I am more than happy to help.
God Bless,
LaVerne