21 year old with cml

rebecca21
rebecca21 Member Posts: 5
edited March 2014 in Leukemia #1
hi i have been told i have cml, i been on a treatment called interfieron, and am scheduled for transplant the end of this month. i have so many questions and would like to talked with someone who has been through it. my brother is my doner.....

Comments

  • adamj
    adamj Member Posts: 1
    Hi,

    I am a 36 year old male with CML. I just went through my bone marrow transplant on April 12 and I am now recovering at home. My brother was my donor. I was on Gleevec not interfieron I was/am being treated at Dana Farber in Boston, MA. I would be happy to discuss anything with you or your family.
  • kmclghln
    kmclghln Member Posts: 3
    I had a transplant for AML at age 19. My brother was my donor, and all went well. I have been cancer-free for almost 5 years. Feel free to contact me with any questions or if you would just like someone to talk to!
  • rjhm
    rjhm Member Posts: 5
    Hi rebecca; since your last message was
    on May, I wonder if by now you have had
    your transplant. My 21 year old son was
    recently diagnosed with aml, and is now
    in remission after chemo.Transplant will
    be the next step. How are you doing? He
    has a sister, but, she has not been tested
    as of yet. If you get on this site, please
    let me know how you are doing and where do
    you live?
  • rjhm
    rjhm Member Posts: 5
    kmclghln said:

    I had a transplant for AML at age 19. My brother was my donor, and all went well. I have been cancer-free for almost 5 years. Feel free to contact me with any questions or if you would just like someone to talk to!

    Hi kmcighin
    I have a 21 year old son just a month ago
    diagnosed with aml. one month in hospital,
    with chemo, he is now in remission and
    transplant is next step. We don't know if
    it will be bone or stem cell transplant.
    Glad to know you are doing so well after
    so long. That is really incouraging to me
    and I would like for you to talk to me
    more about your experience. Please answer
    me if you get on.
  • rjhm
    rjhm Member Posts: 5
    adamj said:

    Hi,

    I am a 36 year old male with CML. I just went through my bone marrow transplant on April 12 and I am now recovering at home. My brother was my donor. I was on Gleevec not interfieron I was/am being treated at Dana Farber in Boston, MA. I would be happy to discuss anything with you or your family.

    Hi, my son, age 21 was recently told he
    has aml. He is now, after chemo treatment,
    in remission, and a transplant will be done
    next. We go soon for consultation and they
    will tell us if they suggest stem cell or
    bone marrow transplant. I am very anxious,
    and cannot seem to find anyone who is a
    survivor who had stem cell at least 3 years
    ago. In fact, I can't seem to contact any
    one at all who had stem cell done.Thank
    you for sharing your story. I do have a
    daughter that is age 23, who perhaps could
    be tested as a doner. Good luck to you.
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