radiation is killing him
Any miracles out there??
Alydar
Comments
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I'm afraid my experience with radiation was terrible. To be honest I don't know if I'd do it if I had it to do over again but the doctors say they got all of the cancer so I suppose I should be grateful for that. I had a recurrence of tongue cancer after 13 years so this time I had to have radiation which I avoided the first time. This time the cancer had spread to two lymph nodes. I stopped eating solid foods two weeks into treatment and stopped eating anything two weeks later. I was told I had the worst case of radiation burn they had ever seen. I spent over 2 months in the hospital on IVs till I consented to a stomach tube. Its not fun but the gastrostomy tube that goes directly in the stomach is less uncomfortable after a while than the NG tube going through the nose. I've had both. I still have the stomach tube three months after insertion but now I am not using it. Eating is still difficult but I can get enough calories through boost/ensure to get by. Radiation was a horrible experience for me but it does eventually improve - there were many days I was close to giving up but now I am able to lead a somewhat normal life again. Everyone tells me the dry mouth must just be endured. I drink LOTS of water. My radiation oncologist offered a break from treatment but if I had stopped I never would have gone back so I elected to go through till the end. I'm sorry to hear about what your husband is going through and I wish I could offer more positive info. All I can reiterate is it does eventually improve after treatment stops but its a LONG process.0
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During my last two weeks of radiation and a month following radiation my mouth felt as if it were on fire. Extreme temperatures hot and cold made it worse. Everyone is able to tolerate different things; anything I put in my mouth was followed by room temperature water --- LOTS of WATER! When I could no longer stand the fire I asked my doctors for help. The tried different "rinses" (their own creations) that temporarily soothed my mouth enough so that I could drink some boost.
Everyone is different-----
I never lost my sense of taste. It has been almost two years since radiation and my mouth is still very sensitive to temperatures and spices.
Don't give up - talk to your husband's doctors/nurses/radiation tech until you find someone willing to help.0 -
I would definatly recommend a feeding tube. If he does not get the proper nutritution, he'll end up in the hospital. Additionally, when the treatments end, he will experience a lenghtly healing process and will probably not be able to take much orally. Good luck.0
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HI Well I will never have radio orchemo even more so after what I have read I think the cure is sometimes worse than the cancer and thats bad enough I amof the age 62 when i have now said to family no more treatment of any sort I will accept whatever comesminnesotamark said:I would definatly recommend a feeding tube. If he does not get the proper nutritution, he'll end up in the hospital. Additionally, when the treatments end, he will experience a lenghtly healing process and will probably not be able to take much orally. Good luck.
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