new with 4th reccurance

rick357
rick357 Member Posts: 4
edited March 2014 in Lymphoma (Hodgkin and Non-Hodgkin) #1
well this is the 4th time for me. it can get pretty depressing. i sit here tonight with a fever knowing i should go to the hospital. well i see the dr friday i will hold on till then.

Comments

  • tamis
    tamis Member Posts: 33
    #2
    I'm so sorry to hear what you are going through. The battle is not an easy one. I've been battling this horrible disease since July of 1999. I looked at your profile and you mentioned you will be going through more chemo, of course, what else! I'm just curious if you oncologist ever mentioned having a Stem Cell Transplant. Did you ever have one? I did. So far it seems to be successful, but I await a CT Scan because one of my scans didn't come back that great. If the disease is back again I will have a BMT from my sister. Are these options for you, or did you go through them? Hang in there! I know how depressing this is.
  • rick357
    rick357 Member Posts: 4
    #3
    tamis said:

    I'm so sorry to hear what you are going through. The battle is not an easy one. I've been battling this horrible disease since July of 1999. I looked at your profile and you mentioned you will be going through more chemo, of course, what else! I'm just curious if you oncologist ever mentioned having a Stem Cell Transplant. Did you ever have one? I did. So far it seems to be successful, but I await a CT Scan because one of my scans didn't come back that great. If the disease is back again I will have a BMT from my sister. Are these options for you, or did you go through them? Hang in there! I know how depressing this is.

    well i have had the stem cell transplant in may 2000 guess it didn't work. and not to mention the radiation and all of the diffrent chemo's. my dr is looking for clinical trials now. sorry i was so depressing i was just having a bad day. it does get kinda hard when you realize your at the end of your rope
  • tamis
    tamis Member Posts: 33
    #4
    rick357 said:

    well i have had the stem cell transplant in may 2000 guess it didn't work. and not to mention the radiation and all of the diffrent chemo's. my dr is looking for clinical trials now. sorry i was so depressing i was just having a bad day. it does get kinda hard when you realize your at the end of your rope

    It's really hard not to be depressed. My doc mentioned a Mini-Allogenic for me if need next time around. With one of these you need a donor to match you. thankfully, my sister is a perfect match. There are many options out there. I know it's really tough and depressing, but try and hang in there. Talking helps me a lot so if you want to keep up with the chats, I'll keep checking back. My prayers are with you!
  • rick357
    rick357 Member Posts: 4
    #5
    tamis said:

    It's really hard not to be depressed. My doc mentioned a Mini-Allogenic for me if need next time around. With one of these you need a donor to match you. thankfully, my sister is a perfect match. There are many options out there. I know it's really tough and depressing, but try and hang in there. Talking helps me a lot so if you want to keep up with the chats, I'll keep checking back. My prayers are with you!

    tamis thank you so much for your support. sounds like everything is going well for you. and thanks for lending your shoulder for me to lean on. i get to get this wonderful chemo friday. all my work is done at the veterans hospital in atlanta georgia. i am going to come home sunday evening with a better attitude i promise. keep in touch
  • tamis
    tamis Member Posts: 33
    #6
    rick357 said:

    tamis thank you so much for your support. sounds like everything is going well for you. and thanks for lending your shoulder for me to lean on. i get to get this wonderful chemo friday. all my work is done at the veterans hospital in atlanta georgia. i am going to come home sunday evening with a better attitude i promise. keep in touch

    I wish you lots of luck with your Chemo on Friday. My prayers are with you. I have my follow up today, I'm always pretty nervous the day of an appointment. I hope that gets easier. Please keep me posted on how you are doing. Take care, Tami
  • billys_rebels
    billys_rebels Member Posts: 1
    #7
    rick, i am 29 years old and in my third reoccurance in 5 years. now i am faced with a "do or die" situation with a bone marrow transplant and some major chemo treatment. i would like to discuss with you our experiences sometimes
  • rick357
    rick357 Member Posts: 4
    #8
    billys_rebels said:

    rick, i am 29 years old and in my third reoccurance in 5 years. now i am faced with a "do or die" situation with a bone marrow transplant and some major chemo treatment. i would like to discuss with you our experiences sometimes

    billy been there done that. i am open for discussion anytime you can just leave me a message here or e-mail me which ever you prefer. rick
  • tamis
    tamis Member Posts: 33
    #9
    billys_rebels said:

    rick, i am 29 years old and in my third reoccurance in 5 years. now i am faced with a "do or die" situation with a bone marrow transplant and some major chemo treatment. i would like to discuss with you our experiences sometimes

    Hi Billy, my name is Tami, I'm 29 and awaiting news if I'm in remission still or it's back. I wait and see for a CT Scan on April 20th. If back it will be my 3rd occurance as well and I'll be in for a Mini Allogenic BMT. I'm curious if this what was told you'll under go. I've been through a Stem Cell and I'm curious if it's the same. I'm praying everything is fine, but I'm preparing for the worst. It's easier mentally I think. I had a gallium recently that came back positive, but my CT at the time didn't comfirm it. I holding on to hope that it was just a false positive reading. Again, I sit and wait for the next scan. I wish you the best and sorry to hear you are going through all this again. Write back if you want. Take care, Tami
  • Unknown
    Unknown
    #10
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