Stories of Beating Stage 4 Cancer???
Hello all. I’m wondering if any of you would be able to share any documented accounts of someone beating stage 4 cancer (either no evidence of disease or long term remission) Preferably colon cancer but any cancer story would be appreciated.
I would like to know what that person did to beat it and maybe I can do the same thing.
Thank you all in advance and good luck in your own journeys.
Comments
-
My wife was diagnosed Aug 2019 - surgery for sigmoid tumour, 4 rounds of chemo and then in October 2019 her follow-up scan showed 2-3 liver lesions. Back to surgery. Then 12 more FOLFOX treatments. NED with one probably false positive in 2021/2022. Currently she is alive and thriving with no follow-up treatments or anything. Just regular CT follow-up scans every 6 months.
3 -
Stage IV colon cancer metastasized to liver but not yet to the lungs, January 2016.
12 rounds of chemo interrupted mid year for surgery to removed middle part of colon, most of liver, and gallbladder.I was 63 at the time, which meant I wasn't yet frail, but was also older, so my cells reproduce more slowly (including cancer cells).
Prior to cancer, I ate health foods, exercised regularly, and did not smoke or drink.
I was near the Kellogg Cancer Centers in the Chicago area.
At the centers they had pamphlets offering free genetic testing for colon cancer. I had it done and it showed I did not have any then-known genetic propensity for colon cancer.
At the time of my diagnosis, a daughter who earns a good living as an analyst/advisor told me of my stage IV prognosis:
This just means that you are one of 10 people in a room, and you just have to be one of the 2 who walk out.2 -
Hi this is my first time on here came across this post and said Wow. I got diagnosed with Stage 3 colon cancer then had surgery, then after 3 months had a checkup, another colonoscopy and ct scan, and they said had spread to liver, had more scans and a spot on my lung, right to stage 4. My surgery looked ok, said chemotherapy I said how long will I have to do chemotherapy he said forever. Why would I want chemotherapy forever, chemo is not easy, I can’t be cured, he said all it will do is help with symptoms, why chemotherapy, make me sick all the time to help with symptoms. I was feeling pretty good at the time, I just couldn’t see chemo forever making me sick, and I ask how long he not sure a year maybe 2. I just couldn’t understand why do chemo forever. Sounds like you have had success, I have never got any of your hopes, I have got nothing but to the liver stage 4 chemo the rest of your life. That’s not very hopeful to me. I’m having many days of not accepting this, I’m 62 yrs old, I say repeatedly This isn’t fair, this not right, giving up. Sorry for going on, guess I came here because I feel at this point not many I can talk to anymore.
3 -
Hi marg29L,
I can relate to your feelings and state of mind right now, because you have expressed them so clearly.
Aren't there newer types of chemo now for cancer patients that have fewer side effects and so make it worth staying on them indefinitely?
Have you asked your doctor how the recommended chemo would compare to your previous chemo?
I am now 71 and have 2 little grandchildren ages 1 and 3, who make life delightful at times.
At age 63, when I was dealing with chemo and surgery etc., I did not expect to ever have grandchildren, and could not have imagined how I would feel about them.So, if I had to deal with chemo again, I most likely would at least begin it.
Today was cold, windy, dark, and stormy, but just now the sun came out for a bit.
0 -
I can relate to your story. My wife was diagnosed Stage III CRC almost 5 years ago. She had resection and 12 rounds of chemo after which she had clear scans for 2 1/2 years. Then a CT scan showed enlarged lymph nodes which tested positive for cancer under biopsy. 12 more rounds of chemo and she was again clear in scans, however, a CTDNA (liquid biopsy) came back positive. 7 months later, a spot showed up on her liver and the chemo started again. The spot didn't grow, but it didn't sink either. She had radiation and now the doctor says she is once again in remission, but the latest CTDNA scan is a higher positive number. She is on a "chemo holiday" right now and is getting another CT scan in early March. We will go from there. If no evidence of disease we will pursue some clinical trials we have found for people with MRD and CTDNA+. There aren't many but we will keep looking. The alternative seems to be chemo forever, which my wife cannot accept. I guess the bottom line is continue to look for non-chemo alternatives and do not give up hope.
1 -
Thank you for your response, sorry for you and your wife struggles, cancer seems to not pick and choose. I’m not sure if you can read me ‘about page tells pretty much my last 2 years. I think of those years, how it has changed so and what I have gone through, and about 6 months ago or so, my daughter said to me, Mom I don’t know how you have done this, but thank you for not giving up. That ‘not giving up alone, is a hard battle itself. Seems like your wife has gone through so much, so brave to have done all she has. The chemo forever stopped me as well, I was ready to fight more until he said that, my cancer spread to my liver and the location said is not able for surgery, is in my bile duct so they had to put a stent in to have duct remain open, the part I have to have that removed and replaced every 3 months, for some guess is not a bad procedure, for me is the worst procedure I have done through all this. So I decided against chemo, since surgery cannot happen, and he said chemo will just help with symptoms, which I have few good days, 3 or 4, then a few bad, but I think that’s good I don’t want chemo making me feel worse. I hear people have success and of course makes me think I’m not trying hard enough. I have not heard of the non-chemo alternatives, sure hope you and your wife can find something, and I Pray she is still able to have those “Good days, mean so much. Sorry for going on but i hope you two can keep that hope together!
0 -
oldforumposter, Thank you for responding, if I read right you are in 10 years of remission. Wow, and I see been through a heck of alot, you sound you led a better life than I, definitely not the most healthy person but not horrible either, I worked alot. The “I Wish I Could Do Over” for me is being more proactive, doing those preventative checks my doctor would advise me to do and I would say ya ya, one being a colonoscopy. Well guess everyone is different on treatment they can have, he made it sound I was not eligible for surgery, only could be a liver transplant. All unbelievable to me really. I continually as of today say, I am only 62 I am to young for this, it is not fair, then I’ll go do the dishes or something. I am fighting my symptoms I do have pretty much on my own, so far I have been pretty much ok. Day By Day! So glad for your success.
1 -
Something to think about regarding "chemo forever":
It might not be "forever" if they come out with new therapies in a few years, especially gene therapies and hormone therapies like they have for some types of breast cancer already.So choosing to continue chemo now might be more like the one-day-at-a-time perspective that addicts adopt, only you (or I) would be taking chemo one-day-at-a-time instead of abstaining from something for one-day-at-a-time.
And we would be doing it only until either a different, better option was available, or until we decided we could not bear it anymore.But if that time at which you cannot bear chemo anymore is now, I respect that too.
I hope that makes sense.
0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 122.1K Cancer specific
- 2.8K Anal Cancer
- 448 Bladder Cancer
- 309 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 398 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 673 Leukemia
- 795 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 239 Multiple Myeloma
- 7.2K Ovarian Cancer
- 65 Pancreatic Cancer
- 490 Peritoneal Cancer
- 5.5K Prostate Cancer
- 1.2K Rare and Other Cancers
- 543 Sarcoma
- 737 Skin Cancer
- 658 Stomach Cancer
- 192 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.9K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards