SURVIVOR....UTERINE CARCINOMA. STAGE 4-2b
Are we all a survivor of a very small percentage of people??? How long does a person stay in remission with a metastatic cancer??
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Hi! I’m not on here much cuz I’m dealing with so many physical issues these days, apart from cancer, but saw a notification of your post and wanted to share. I do not know how long we all will survive metastatic cancer. Was your original diagnosis Stage 4 - 2b and stayed that way once metastasized? I was Stage 1 Grade 1a when diagnosed in 2018.
Post Davinci Robot assisted complete hysterectomy that May, I was NED for 6 years. It resurfaced again this past end of summer, still on my vaginal cuff (all that was left of my uterus). So…five weeks of radiation then gone again… Until scans revealed last Dec that it had returned, this time to my liver… six plus lesions. When I asked if this meant I had Stage 4 cancer, they said no, that it’s still considered Stage 1 Grade 1a. After chemo ended last November, the Keytruda Immunotherapy drips continued every 3 weeks. The lesions on my liver were all gone
Recently I had a Pet Scan and then an MRI with a special evoist contrast because it looked like there was a lesion smaller than a centimeter on the left lobe and same on the right lobe. They couldn’t tell if it’s cancer or inflammation . The next scans will be in eight weeks. So I do not know how long a person stays in remission. I hope others will be able to give you more clarity. 🧡
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muddpyi and wcrowell29, I can't add to the conversation but wanted to send both of you big, virtual hugs. ❤️
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Pinky was diagnosed with Stage 4 cancer and survived 7 years I believe. We have other survivors here. The board is very quiet but we are out here.
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Been on this journey for nearly ten years. Started out with Stage 1b, but with recurrences now 4b. There are new treatments now in clinical trials: new types of immunotherapies, adcs, monoclonals, protacs, tumor infiltrating lymphocytes, serds, pik3ca inhibitors, etc. keep an eye out for news in other cancers with your same mutations, lots of possibilities. Knowledge is power - the power to be your own best advocate.
Best wishes.
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I had renal cancer and got my right kidney removed in 2008. In August 2024, 16 years later, I got diagnosed with stage 4 renal cancer that attached itself to my spine. Also, have a lesion on my other kidney, my liver and lung. Had A CT Scan in December and my lesions shrunk by about 30-50%. The main cancer on my spine stayed the same size, but they hit it with radiation and got a little of it with surgery so the doctor said there are most likely dead cancer cells showing up on the scan.
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Wow, this gives me so much hope! However, are these all the same kinds of "carcinoma?" Is "serous" and "high-grade" different from others?
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Serous is a high grade cancer. I think the high grade are more aggressive and there are articles about the differences kind of types of endometrial cancer. Endometrioid type 1 is low grade. But endometroid type 3 is high grade. Clear cell and carcinosarcoma are both high grade too. Differences are determined by the cell and the mutations in the nucleus.
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Takingcontrol has lots of information about other things you can do to help prevent recurrence. Search her screen name.
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Hello muddpyi. I've never heard of "stage 4-2b" endometrial cancer. Do you mean "stage 4b, grade 2?" In any event, my childhood friend was diagnosed with stage 4, grade 3, endometrial cancer in April 2017. She went through several treatment regimens and completed her treatment in mid-2023. She has been without any evidence of disease since then, so in April it will be eight years since her original diagnosis.
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To answer your question- how long can someone with metastatic cancer stay in remission?
You can remain in remission for as long as you keep your body healthy and functioning like it should.
Cancer doesn't grow in a healthy body. You are not healthy if you develop cancer.Forherself, I saw you mention my name so I had to reply. I haven't been posting for awhile.
I was officially diagnosed with Stage 3b, Grade 3 endometrioid cancer in Oct 2014 after my hysterectomy (though my symptoms began in August). Grade 3 endometrioid is in the same category as serous- it is aggressive and likely to recur. Besides the tumor in my uterus, I had a spot on my right ovary and a small perirectal tumor. Also lymphvascular invasion. Two months later, Jan 2015, before I began any treatment, my cancer metastasized to my liver, spleen and vaginal cuff with nodules on my spleen and lung. 90% of my tumors were gone by March 2015. I was completely cancer free by August 2015. It has now been over ten years since my initial metastases. No recurrences since then.
Some words of wisdom from what I have learned-
- You need to address the root causes of your cancer to prevent a recurrence- oncologists do not use this approach so you will have to become a cancer detective and get a handle on the state of your health (comprehensive blood testing and comprehensive genomic testing is critical to uncover your health issues and broken cellular processes- testing tumor markers and a CBC is not enough). Everyone develops cancer from a different set of factors, even people with the same type of cancer
2. You can cut out the tumor but you can’t cut out the cancer -cutting out my ‘tumor” did not stop new cancer from growing- I had a toxic environment in my body that allowed my cancer to metastasize very quickly so I had to identify those issues and address them
3. Take control of your health and cancer- cancer remission is about healing your body so it functions like it should- you need to heal what is broken but first you have to identify what is broken
4. The more cancer treatments you get, the higher your risk of more cancer -you don’t want to poison yourself to death or decimate your immune system
5. Don’t ever put anything in or on your body if you don’t know what is in it, how it works or the potential side effects- I refused the addition of Avastin and Everolimus when my cancer metastasized and a low dose pill of Cytoxan after I stopped my initial 6 chemos of Taxol/Carbo)- I didn’t want to add more damaging treatments into the mix- I found other solutions to address the causes of my cancer
6. Use treatments that target your particular issues- don't just use a cancer drug because it is recommended and you don't know if it targets one of your issues-a targeted treatment does not have to be a cancer drug- losing weight, rebalancing hormones, maintaining strong levels of Vitamin D3 are examples of targeted therapies
7. You have to work hard at keeping yourself cancer-free- it is a lifetime job-the end of your cancer treatment is the beginning of your work
8. Don't sit around waiting for some miracle drug when there are many options available today- lifestyle changes, non-cancer drugs to treat many of the causes of your cancer and natural compounds (supplements/vitamins)
Takingcontrol58
To the next ten years.2 -
You are an inspiration and a gift of hope for all of us. Your journey is amazing and thank you for sharing. I want those years too. Trying to stay healthy and happy. Aloha, Lana
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Thank you for returning and sharing your information
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What was the comprehensive blood testing and comprehensive genomic testing that you had done. I will start chemotherapy for Stage4b endometrial serous cancer in a few weeks and am leary of all of the side effects that the infusion chemicals (carboplatin, plactaxol, and keytruda) can cause but also realize I am in a metastatic state and need treatment to knock it back a bit. My oncologist has said I can be on Keytruda, an immunotherapy, for up to 2 years. It has a lot of nasty side effects and I figure the longer I am on it the greater the chances of experiencing one. So I am looking at my options and would appreciate any input you might have.
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Jenny2,
I just sent you a long message with answers to your questions.
Takingcontrol58
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