New Member / First Post
Hello all, I'm 59 years old and just diagnosed with stage 2c, gleason 7, grade group 3 prostrate cancer. My last PSA test was 3.0 or 6.0, I say this because I've been taking 1mg Finasteride for many years to help stop hair thinning. They say you should double PSA even when only taking 1mg vs the standard 5mg for BPH. Out of my 12 core biopsy I had 5 cores showing cancer. Four of the cores were 3+3, one of those showed perineural invasion, 8% of tissue volume so that worries me a bit because of the perineural invasion. One of the 5 cores had the 4+3 = 7, grade group 3. No other perineural invasion in any other core but the one mentioned above. From what my urologist felt during my DRE and saw during my TRUS he feels all is contained in the prostrate. I am having a PSMA in two weeks to see if something may have spread.
At this point I'm 98% sure I will do the Da Vinci prostrate removal. My concern is of course incontinence. My Dr. said it may not be to bad because of my age and having a small prostrate of 12 grams if I recall correctly. That could be because of the Finasteride .
My other concern is of penis shrinkage. Not for sex but in the flaccid state. I'm embarrassed to say I'm a grower, not a shower. Flaccid my penis is rather small, almost retracted unless I push on my pubic skin area. Erect I'm average. I'm worried that having an already small penis made smaller by the surgery will cause me problems urinating. Any thoughts or insight from others that may have this small penis problem and had surgery please let me know your outcome.
I'm also worried I caught this cancer to late, I'd really like to survive another 15 or 20 years after surgery. I'm also upset that my previous general practice doctor who retired and my new one never thought anything about my rise in PSA over the. years. I think they were in the mindset that I'm under 4.0 so no worries. I don't even know for sure if they knew about doubling PSA with Finasteride.
Thanks for reading everyone!
Comments
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Dale, Their is a new surgical technique that almost eliminates incontinence especially for a small prostate. The technique which not all Surgeon’s are trained in, the Surgeon is able to spare what’s called the puboprostatic ligament during robotic prostatectomy. In essence my Surgeon said this technique keeps the continence mechanism intact and it also helps maintain urethral length. A longer urethra allows for more control in the release of urine reducing the likelihood of incontinence and also the Puboprostatic ligament provides support to the urethra in keeping it in its position. He further does Retzius sparing of the tissue between the bladder and the prostate which further helps with continence. Another benefit of sparing the Puboprostatic ligament is the less likelihood the patient will see any reduction in their penile size that many patients report by either perception of it or a slight amount as its drawn in.
He explained that during Surgery I am certainly not upside down but he will operate through the Davinci robotic system as if I were upside down during the surgery. He said typically the surgeon operates from below in between the persons raised legs. He said in this procedure he operates from behind the persons head with the patient still basically lying flat. He also operates using the single port Davinci robotic system with just the one small incision above the belly button and faster healing with less blood loss. The multi port I believe leaves three incisions to heal under the belly button. Many surgeons are not familiar in the use of this new approach and this is how he is able to spare the ligament which he said is a significant advancement in prostate surgery.
I was immediately continent upon removal of the catheter and no loss in penile size and doing pretty darn good on the erection side with a dose of viagra beforehand.
I would certainly research this technique and try to find an experienced surgeon doing this. You don’t want a newbie.Best of luck
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Dale,
On another note I don’t think you caught it too late to have any bearing on your life expectancy after your diagnosis and treatment. You can certainly look to another 15 years plus as you will learn many members are that far past their initial treatments. I opted for surgery knowing that gave me Radiation down the road later if needed. It is far easier to have salvage radiation years later than salvage surgery after radiation which is much more difficult .
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Thank you for your replies! I will mention this to my Dr. / surgeon. He didn't mention this when we talked briefly about the surgery. Once my PSMA results are in I know we will have a more indepth talk. Could you share your age and stage you were before surgery and how long ago?
Thanks again & happy your doing well
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Dale,
I am 72 now, turned 72 one month after my surgery. My PSA started acting up when I was 69, going up from years at 1.9 to around 3.0. It then continued down 2.5, 2.3, then back 3.2. Had a MpMRI, showed not likely cancer but prostatitis scarring. PSA continued some bouncing 4.0, 2.9, 3.4 over next 18 months. Another MRI 18 months later then showed a PIRADS 4 lesion, but interestingly upon that first biopsy due to that PIRADS 4 lesion, the lesion turned out benign, but the grid directed other random cores came up with the cancer including one Gleason 8 core which took away my option of AS. The other cores were primarily 6’s and a favorable 7. At time of biopsy I was then 71. My initial staging was T1C NO MO. After my surgery in Aug 2024, my Gleason 8 was down rated to Gleason 7 unfavorable (4+3) and my original staging before surgery of T2b NO MO went to T3a pNO after surgery. My PSMA Pet showed it was contained but at the time of surgery it had appeared to have left the capsule, but the surgeon upon getting initial pathology results during operation that I had positive margin, spent additional two hours going back in to carefully cut more and two weeks later learned final pathology results showed negative margins. I did have a Decipher score of 60. Be sure to have your biopsy sent for Decipher scoring.
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Yes my penis is shorter than it used to be. And yes, you have to be aware of that when getting ready to pee and to make sure you dont get your clothes wet. It seems like it's not the automatic process that it used to be, and that you have to have heightened awareness of what you're doing to avoid making a mess.
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Hi,
I had PNI when I had my Prostate removed 10 years ago. My Urologist did five small incisions, 2 on each side and one at the belly button, robotically. The Urologist was sitting at a video monitor controlling the robotic arms a short distance away. My legs were inverted above my head during surgery because I had the blisters on my shoulders to prove it. I have heard that the newer one hole incision gives you a better chance of not having incontinence/ED issues vs the 5 hole. To be honest with you I don’t really notice my member being that much shorter than before. I do wear tightly whiteys and found out if I went a size larger it gives my member a little more room to hang and not like a scared turtle. The way I see it, if I am cancer free then the shorter member length is OK with me.
Dave 3+4
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Hi,
Usually if cancer is left behind it is a smaller area to radiate. Your doctor team should catch it early via PSA/imagining, I would think it would be more of a spot treatment.
Dave 3+40 -
Dale,
Adjuvant Radiation plus HT is considered after surgery and may be protocol for Gleason 8 or above , positive margins, and especially with a high Decipher score. Gleason 7 (4+3) unfavorable depends whether you had positive margin after surgery and also considered if your PSA after surgery is still measurable over a certain amount or rising , doubling at a certain rate, or reaches a certain level. If you do not need immediately need adjuvant radiation after healing, then your PSA is monitored as mentioned and after a time then you might need salvage radiation considered differently then starting as protocol with adjuvant after surgery. With that said a lot of weight is given to genomic testing by your urologist such as the Decipher test mentioned . I would ask to have your biopsy sent for Decipher testing.
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