I have questions... new member

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  • Wheel
    Wheel Member Posts: 195 Member
    #22

    That is a good Free PSA level. You are in good hands. Don’t worry about crossing the bridge yet, wait the time until your next PSA. Nothing regardless like other cancers need to usually happen quickly.

  • Old Salt
    Old Salt Member Posts: 1,586 Member
    #23

    Good news for you!

  • tonkinese88
    tonkinese88 Member Posts: 18 Member
    #24

    getting my next PSA lab this morning and will talk to urologist on Wednesday. My anxiety is kicking in again and bad. I always think the worst. I spoke with my GI the other day and he stated that they did a study in 2018 on prostate enlargement with men with a jpouch and he stated it was fairly common to have enlargement with a jpouch and urologist noticed enlargement when he did cystoscopy on bladder years ago. I’m thinking regardless of the lab I may just get the MRI to settle my mind.

  • tonkinese88
    tonkinese88 Member Posts: 18 Member
    #25

    these are all my results

    9/8/22. 1.97

    2/6/24. 2.74

    3/19/24. 2.38. 25% Free PSA

    7/8/24. 2.5. 31% Free PSA.

  • Clevelandguy
    Clevelandguy Member Posts: 1,265 Member
    #26

    Hi,

    Your PSA seams fairly stable, jumping around a little bit, but not going exponential. If you trust your doctor then just monitor over several PSA tests. If you do have BPH, that it will elevate your numbers . Good luck……..

    Dave 3+4

  • Old Salt
    Old Salt Member Posts: 1,586 Member
    #27

    Full concurrence with Dave.

    I hate to tell you this, but even an MRI won't tell you if you do have prostate cancer or not.

  • Wheel
    Wheel Member Posts: 195 Member
    #28

    Your free PSA level percent has gone up. The higher over 25% is less likely for prostate cancer. Your free percentage went up. I would agree with your Doctor to monitor. If it rises again at your next test then I might get more pro active and ask to have the ExDxo urine marker test. This is non invasive test the Doctor puts in to have the kit arrive at your house. It measures cancer specific bio markers . It is for patients over 50.

  • tonkinese88
    tonkinese88 Member Posts: 18 Member
    #29
    https://csn.cancer.org/discussion/comment/1720333#Comment_1720333

    biopsies are very tricky for me due to my several intestinal surgeries and jpouch. My urologist at Cleveland Clinic seems to be ok with the MRI due to this. He’s one of the top guys. Have not been diagnosed with cancer but we know my prostate is enlarged. Several years ago.

  • tonkinese88
    tonkinese88 Member Posts: 18 Member
    #30
    https://csn.cancer.org/discussion/comment/1720333#Comment_1720333

    but won’t an MRI tell you if anything looks suspicious and then if biopsy is needed they know exactly where to biopsy. ? Otherwise isn’t a biopsy without just a blind poke into prostate?

  • Wheel
    Wheel Member Posts: 195 Member
    #31

    Know that you are in good hands at Cleveland Clinic

  • Clevelandguy
    Clevelandguy Member Posts: 1,265 Member
    edited January 17 #32
    https://csn.cancer.org/discussion/comment/1720336#Comment_1720336

    Hi,

    Yes you are correct with your questions.

    Dave 3+4

  • Marlon
    Marlon Member Posts: 146 Member
    #33

    Did they do a digital exam, or can that not be done due to your surgery?

  • tonkinese88
    tonkinese88 Member Posts: 18 Member
    #34
    https://csn.cancer.org/discussion/comment/1720347#Comment_1720347

    cannot do DRE per my GI and surgeon. Not to mention too much scar tissue so would not get accuracy most likely anyways.
    urologist doesn’t seem overly concerned but I am terrified, and maybe for nothing. My anxiety just takes me scary places. I have Medical PTSD my surgeon said.

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