AMS800 Recommendation

Tico14
Tico14 Member Posts: 49 Member
in Prostate Cancer #1

Long story short - RALP 6 years ago. Big time incontinent since. Six (typically) Depends a day. I actually think the incontinence is getting worse and am reconsidering my aversion to an AUS. But, I'm worried about who, locally, could perform the surgery. I don't want someone who does a few a month. My urologist, that did the surgery, does not recommend the AUS, his practice is big on the Sling, but I've read so many horror stories about them I won't even entertain a Sling and Googling local Dr's who do the AUS is slim pickin'. Anyone out there with recommendations for surgeons that they would recommend in the Raleigh/Durham area of NC? Thanks.

Comments

  • On_A_Journey
    On_A_Journey Member Posts: 138 Member
    #2

    Sorry, can't help you with recommendations, but please don't dismiss a sling.

    I had an ATOMS sling fitted in Aug 2023 and it took me from losing an average of 200ml per day to around 10 - 20ml per day depending on activity. It is a much better solution than the old hat AdVance sling because it is adjustable post-op. It has an inflatable 'cushion' acting against your urethra which can be topped up with a solution to optimize continence. Mine is maxed out and although I still have a small amount of leakage, I am far better off than previously. I now wear a light liner or shield during the day for insurance instead of maxi pads, and nothing in bed at night. Happy days.

  • Josephg
    Josephg Member Posts: 464 Member
    #3

    I've had an AUS800 implant for over a decade, and I'm quite happy with it. After surgery and a year+ of trying Kegals and other muscle building methods, I was diagnosed with 100% vertical incontinence, due to the prostate surgery to achieve negative margins, with little to no hope of improvement.

    I cannot recommend a surgeon in your area, as I had my AUS800 implanted in the Northeast. I recommend that you contact the folks at Duke University Medical Center for a referral to a surgeon in your area who regularly performs AUS800 implants.

  • Tico14
    Tico14 Member Posts: 49 Member
    #4
    https://csn.cancer.org/discussion/comment/1720074#Comment_1720074

    Thanks OAJ. It's taken me almost seven years from surgery to finally contemplating some type of surgery to fix my incontinence, but right now I'm leaning toward the AUS if at all. Thanks though.

  • Tico14
    Tico14 Member Posts: 49 Member
    #5

    JNG, Thanks. Duke has always been out of my ballpark money-wise so never really considered them. However, may lean that way if the VA will fund it as the military claims responsibility for the PCa.

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