Advice needed

Wifesupport1
Wifesupport1 Member Posts: 10 Member

First off, I'm shocked to be here. My heart goes out to each and every one of you. I'm here for support to my husband and to gather information.

A little history: My husband is 52. He had a physical a month ago that showed a PSA of 4.1. The doctor sent him to a local urologist. The only symptom I've noticed is going to the bathroom more frequently and the urge is stronger to go more frequently. I suspect he may dribble at the end. (He can't hold off as well) No incontinence, no ED, no blood in any fluids.

He had the appointment with the urologist. I was not with him. I only know what I'm typing.

The urologist did a DRE and said the prostate is enlarged. They did a urinary flow test. The nurse said his flow is good but needs to empty his bladder more. Did another PSA. It showed 4.3. Then gave him the choice of an MRI or biopsy.

My husband is very claustrophobic and cannot do the MRI, even with a valium. So he chose the biopsy. Husband said he will take 10 samples through the rectum.

The biopsy is January 10th and will take 2 weeks to get the results.

We are very scared. Any advice moving forward?

«1

Comments

  • Old Salt
    Old Salt Member Posts: 1,547 Member

    We understand your worries; they are natural. But so far nothing has been identified to prove he has cancer. Yes, his PSA is a bit high for his age but he also has an enlarged prostate. Please try to enjoy the upcoming holidays.

    With respect to MRIs, there are open MRI instruments. AI tells me that they can be used for prostate cancer imaging, but that they do not provide the same level of detail as a traditional MRI.

    With respect to biopsies, the transperineal one is preferred nowadays. There is ample justification for this in some recent threads and, more importantly, the medical literature.

  • Wifesupport1
    Wifesupport1 Member Posts: 10 Member

    Thank you for the response and words of encouragement, Old Salt.
    I’ll consider your advice and keep everyone posted on any results.

  • centralPA
    centralPA Member Posts: 353 Member

    The normal biopsy is 12 samples. Not sure why his would be 10. Might as well follow the norm as long as you are going through the trouble.

    It's not MRI or biopsy, it is biopsy steered by a prior MRI or a biopsy going in blind. I had an MRI first, and in my biopsy they did the standard sampling (12) and then 3 to an identified lesion. Only the lesion showed cancer. Without the MRI I would have thought I was free and clear. Tell him to take more valium. :)

    I also had urinary problems, which had nothing to do with prostate cancer. That's probably his problem too. A large prostate will lead to urinary problems.

    It's nerve wracking waiting to find out results, feeling for you and your husband. Sending strength!

  • Clevelandguy
    Clevelandguy Member Posts: 1,229 Member

    Hi,

    I would definitely go for the MRI 1st to get the data to sample the right areas for the biopsy. As Old Salt said look for an open MRI machine if your husband is claustrophobic. If you don’t do the MRI 1st there is a greater chance of missing the cancer as the Urologist will be just hitting random areas of the Prostate.

    Dave 3+4

  • Wifesupport1
    Wifesupport1 Member Posts: 10 Member

    Thank you CentralPA and Cleveland guy.
    I have sat at my desk all day and thought about this. I called by husband and had him get a referral to a much larger Urology Group in a bigger city. It may push this back a little but better to start this process with a group we would feel comfortable doing the surgery if need be.

    I’ll go with him to that appointment and see if the doctor will stress how important the MRI is before the biopsy. Going in blind is ridiculous.

  • Old Salt
    Old Salt Member Posts: 1,547 Member

    I wouldn't say it's ridiculous; it was the way it was done some ten years ago. But technologies have moved forward and it's obviously best to go with current best practices.

    Glad to read that your husband's urology appointment has been rescheduled. It's also good that you will be part of the process. It can be hard for one person to remember all that is being said in a medical office.

  • Rob.Ski
    Rob.Ski Member Posts: 177 Member

    First, let me say I'm proponent of MRI before biopsy. Be aware that it's not a given that you'll see a lesion if you have cancer. My first MRI was clean. Followed up with blind biopsy that found cancer. So, if MRI is not feasible for some reason, still get biopsy. Not seeing a lesion and not finding cancer in biopsy doesn't mean you do Not have cancer. MRI is an indication and biopsy confirms you do have PCa if positive. If mri and biopsy are negative, continue monitoring PSA. If it continues increasing recheck for PCa. It's increasing PSA that warrants concern.

  • Wifesupport1
    Wifesupport1 Member Posts: 10 Member

    So thankful for all the feedback from you guys. I’ve taken all of your suggestions into consideration. I’ll report back with the new appointment date and results once we receive them.

  • Marlon
    Marlon Member Posts: 137 Member

    Wifesupport1, so the DRE did not find any lumps, bumps or areas of concern. That's good. The problems you describe can all be from BPH and not necessarily linked to cancer. PSA is not a measure of cancer, it's a measure of the amount of prostate tissue in your body. BPH can elevate PSA as well as infection, inflammation, or even riding a bicycle. It's a rapid increase in PSA that is an indicator of possible cancer. So I wouldn't assume the worst until you are further down the road.

  • Wifesupport1
    Wifesupport1 Member Posts: 10 Member

    Thanks Marlon. The doctor didn’t mention any areas of concern on the DRE. He just said that his numbers are in the gray area of concern.

  • LuckyKYGuy
    LuckyKYGuy Member Posts: 24 Member

    Also let your husband know that the biopsy, while a little uncomfortable isn’t painful at all. I had one at a surgical center where I was put to sleep and another at a Urorlogist office with no anesthesia. The biopsy procedure itself is nothing to be scared of. There will likely be a small about of blood on toilet paper the first time and there will be a small amount of blood in urine for the first couple days but all of that disappears quickly.

    Good luck to you guys!

  • Wifesupport1
    Wifesupport1 Member Posts: 10 Member

    Thanks for the words of encouragement, Luckykyguy. He went to a consultation at a small, local urologist office. We then decided to abandon that route and go to a large teaching hospital in the area. We have an appointment Monday.

  • ProfWagstaff
    ProfWagstaff Member Posts: 106 Member

    First piece of advice…DON'T PANIC. Yes, that's easy for me to say but bear with me. I was diagnosed 15+ years ago at age 55 when they still did biopsies blindly with no prior mri. My psa was 20.4 with a gleason of 3+4. Cancer was found in both sides, I had capsule penetration in 2 places, prostate was more than 50% cancerous and I'M STILL HERE at age 70. So while I know how scary cancer is, don't get ahead of the process. This is very survivable.

    Biopsies are negative more often than not so let the process play out. IF, and that's a huge IF, the biopsy comes back positive, you've caught it in early stages where there are many treatment options that will work. The hardest job is deciding on one. :)

    I will wish your husband and you the best. If the worst case comes to pass and he is diagnosed with PCa, please come back to this forum and we will all be glad to share stories of our treatment experiences to help you decide.

  • Wifesupport1
    Wifesupport1 Member Posts: 10 Member

    ProfWagstaff, thank you for the reminder to let the process play out.

    So glad to know that you are still here after 15+ years.

    I will report back in coming weeks no matter which direction this takes.

  • Steve1961
    Steve1961 Member Posts: 633 Member
    edited December 2024 #16

    sounds like me i was 51 and NEVER offered an MRI. I wish I was. They did three biopsies on me and no MRI. They do have bigger MRI beds now so it’s not so close to your face. You should ask your hospital if they have them also if your husband decides to do the biopsy 10 samples is not enough hear me out 10 samples is not enough, they could easily miss it. This is why I use an MRI guided biopsy. they going to use the sonogram It doesn’t show anything. It just shows that they’re poking in different areas …its up to you. That’s what happened to me. The first time he only took six second time he took eight and then the third time they took 12 and found cnacer the last time the 4th one they knew I had cancer. They knew it because I had a reoccurrence and they took 22 samples if you’re going to go through this believe me , you need to take as many samples as possible I would not let them only take 10 no way no how that is not enough

  • Wifesupport1
    Wifesupport1 Member Posts: 10 Member

    Thanks Steve1961, I’m going to screenshot your message and show him on Monday when the doctor suggests the MRI. I agree with you 100%.

  • mbluth
    mbluth Member Posts: 15 Member

    I wish your husband the very best. I agree with a lot of the other people the MRI is much more definitive and can guide the biopsy. If they find something they can direct the biopsy.
    If I recall my face was partially out during the MRI. Depends on the machine I guess.
    It is pretty hard to avoid the tubes because if the biopsy is positive a PSMA pet scan would be in the future.

  • Wifesupport1
    Wifesupport1 Member Posts: 10 Member
    edited January 2 #19

    Update on where we are. We saw the other doctor at the larger hospital/medical school. They are doing an MRI with sedation due to his claustrophobia on January 27th.

    He has had 3 PSA tests from different labs over the past 2.5 months. First reading 4.1, second reading 4.3, third reading 4.57. Is this considered “rising” or is this amount insignificant?

  • centralPA
    centralPA Member Posts: 353 Member

    It looks like rising, but it is not a super-strong signal of it. Similar to my PSA tests prior to my biopsy.

    A useful data point he will get out of the biopsy of the size of his prostate. Bigger ones make more PSA.

    Tell him to enjoy the MRI, thanks to the drugs!

  • Wheel
    Wheel Member Posts: 173 Member

    You made such a good decision moving to the teaching hospital. I’am sure you are happy that you did and see how your husband is being treated by likely more knowledgeable and up to date physicians than from just a local small urologist practice. As you can see just from being at the hospital they have the ability to help claustrophobic patients with anesthesia during an MRI. Many regular MRI centers don’t even do that. As many have said the MRI is an essential part of a treatment protocol today prior to the biopsy. As many have also said it’s too early to diagnose one’s self with prostate cancer based on just an increase in the PSA, as often it is only an enlarged prostate, infection, or other cause. So far as those three minor increases, they are minor, done in different laboratories and likely referencing just the increase in the PSA and could all in essence be around the same PSA number. At this point I would try to not put much into that one indication. All the best and feel good about your first major decision in delaying the unguided biopsy and getting your appointment at the teaching hospital.