I have no idea what I'm doing.
My mom was just diagnosed on Monday with Stage 2 IDC Cancer in her right breast. I have sat with this for pretty much 5 days and I have struggled to truly understand this. She and I are going to her first appointment on Friday Dec. 27th and I cannot think what I should be asking. First as her daughter to understand what is going on with her and what will happen as well as what I need to do as her caregiver.
I would love to hear what questions are great to ask at the first doctors appointment that I should ask. Thank you!
Comments
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Hello, you can ask her oncologist:
- What specific treatment method is proposed as well as other oncological alternatives? It is likely to involve some form of operation, radiotherapy and chemo but in which order and strength?
- What are the five year survival rates for these treatment options?
- What damage / side effects will your mother face from the treatment?
- What will be the treatment regime, how many times will she have to go to a hospital?
- Where to have the treatment? (If far away then it could be hard on her / you.)
Furthermore,
- Could there be a genetic component putting you at risk?
- Is there sufficient tumor (better to have more for testing purposes) at the pathologist?
- Will she use a liquid biopsy service? (If so you need more tumor.)
Best wishes.
Note: An urgent visit to a dentist may be needed before the treatment.
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First, ask what subtype of cancer does she have. Is it hormone positive or negative, and if it's Her2 protein positive or low or negative? Or is it triple positive or triple negative? Then have the doctor explain her stage and grade of cancer, and how aggressive is it. Are any lymph nodes involved? If they suspect so, will they be biopsied?
All of this will determine the best approach to treat her cancer. Some cancers are treated first with chemo drugs and others require surgery first. Some, depending on where it's at, how big is the tumor, if lymph nodes are involve, and what type of surgery will be performed will determine if radiation treatments will be needed. Some types require additional drug treatment after initial chemo and/or surgery. Have your doctor explain everything to you.
You can read more on the different types of breast cancer and treatment options on the Susan G Komen, MD Anderson Cancer Center and Sloan Kettering Cancer Center websites.
Best of luck. You can always come back here to get some additional information but everyone has slightly different treatment plans because they're specific for each individual.
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I am so very sorry to hear this. I hear the day after is the worst day for sickness and the first few rounds are the worst. I'm not sure the truth of that. You will have to let me know what you find over time.
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Thank you so much for this! I really appreciate it.
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Dental appointment? What would they need to do that for? Thank you for your insight. I truly appreciate it.
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Re: Your Mother's Breast Cancer Diagnosis
Lewisray25,
I am so incredibly sorry to hear about your mother's diagnosis. Understandably, you're feeling overwhelmed and unsure of what to do next. Breast cancer is a challenging diagnosis, and it's natural to have many questions and concerns.
Here are some questions you might consider asking at your mother's first appointment:
For your mother's understanding:
- Can you explain the diagnosis in more detail?
- Specifically, what stage and grade is the cancer?
- What are the tumor size and location?
- Has the cancer spread to any other parts of the body (metastasized)?
- What are the recommended treatment options?
- Will surgery be necessary? If so, what type of surgery is recommended (lumpectomy, mastectomy)?
- Will chemotherapy or radiation therapy be recommended?
- Are there any clinical trials or alternative treatments that might be appropriate?
- What are the potential side effects of each treatment option?
- What is the expected prognosis and what are the chances of recovery?
- How will my quality of life be affected during and after treatment?
- What are the long-term implications of this diagnosis?
- What support services are available to me and my mother?
For your role as caregiver:
- What are the immediate next steps?
- Are there any appointments or tests that need to be scheduled?
- What information or paperwork do we need to gather?
- What role can I play in my mother's care?
- Can I help with transportation to appointments?
- Can I assist with managing medications and appointments?
- Can I provide emotional support and companionship?
- What resources are available for caregivers?
- Are there support groups or counseling services available for both of us?
Remember:
- Take notes: It can be helpful to bring a notebook and pen to the appointment to jot down important information. You can record the conversation with your cell phone like I did during all my oncologist appointments.
- Don't hesitate to ask questions: It's important to understand your mother's diagnosis and treatment options thoroughly. (Do some research on the information that they provide you, like I did)
- Seek support: Reach out to family, friends, or support groups for emotional and practical support.
This is just a starting point, and you may have other questions that are specific to your mother's situation.
I understand this is a difficult time. Please remember to take care of yourself as you support your mother.
I hope this information is helpful.
1 - Can you explain the diagnosis in more detail?
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