Upcoming Prostatectomy

Coma54
Coma54 Member Posts: 4 Member

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  • Coma54
    Coma54 Member Posts: 4 Member

    I should begin by reporting my family history of both my father and my older brother having Prostatectomy at the same age (70) I am now. I started taking Flomax in 2016 which worked well in resolving urinary flow issues. In 2023 my doctor ( Internal Medicine) wanted to add finesteride which I researched and decided I should investigate my other options to treat BPH. My doctor always advocated for using medication to control BPH due my PSA scores never exceeding 5.0. I found a urologist I felt was well respected and experienced enough to satisfy my needs.

    After meeting urologist and going over what other BPH treatments were available, we found out I had a median lobe which was the culprit in my BPH. I had TURP 3/28/24 and I was happy with the post TURP results. However at the first follow up visit I was informed that cancer was found in the tissue removed. Initial report had one area of Gleason 7 and Decipher high risk score. Have had MRI, biopsy and then PETscan with one area of 3+5 and one area of 4+4 with possible perineurial invasion on the left aspect of prostate. The urologist feels the cancer is still confined to prostate.

    Went through meeting with radiologist and then urologist about both radiation + ADT and prostatectomy. Urologist told me either procedure was equally effective, he only recommended I choose treatment. I have discussed with my brother his recovery and long term issues with prostatectomy, he says he still feels the surgery was his best option.

    I really just wanted to express my appreciation for all of your posts of your experiences both good and bad the past few months, this has helped my wife and I to deciding on prostatectomy which will be December 30. I certainly am not excited of the probable life changes I will have after Dec 30 but if the cancer can be completely removed I will be thankful. I will give a report after my surgery.

  • Old Salt
    Old Salt Member Posts: 1,547 Member

    Congratulations on making a reasoned choice. Good luck with the surgery.

    There’s a lot of information on the after care in a recent thread.

  • Marlon
    Marlon Member Posts: 137 Member

    Good luck to you, and don't look back and second guess your decision. Surgery means no more BPH either and that's a plus.

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,821 Member
    edited December 2024 #5

    Coma,

    Your path to PCa diagnosis is very typical, highly routine, with a long history of BPH, followed later by early-stage PCa. SUrgery and the various radiations are, as your doctor said, essentially equal in sucess, and it therefore comes down to the man's individual choice. I suspect that the surgery will be DaVinci, aka "Robotic." I had DaVinci 9 years ago, in 2015.

    Three things make up most post-surgery discussions here: 1. recovery time and experience; 2. continence, or urinary control; and 3. Potency.

    1. Surgery hurts — any form. But I went home the morning after surgery, and only needed narcotic for two days thereafter. After two days, tylenol was sufficient. You will wear a cath for at least a few days, sometimes as long as a week (I wore one for four days, because a holiday weekend was beginning). I had a velcro, small leg bag, that I could use to get around in or ride in the car with, and a larger overnight bag, that allowed sleeping through the night with no fuss.

    2. Urinary control comes back in time for most. The amount of time varies between men a lot. When the cath is removed, the doc will tell you to wear a diaper for as long as it seems necessary. I wore a diaper two days, and then went to a pad. After pads are no longer necessary, a liner will be advised. Although my urinary control was fast, I still occasionally will feel it best to use a liner, especially if I have a cough. But, my urinary control today is BETTER than pre-surgery, when I had the BPH.

    3. Potency. This varies hugely between individuals. You are 70, so it may take a while. Cialis therapy is common; my doc told me to start Cialis the day I left the hospital, He said I would not get erections right away, but that the drug was good for the vascular tissues involved.

    A huge number of the men here have had prostectomy, so write any time a question occures.

    max

  • Wheel
    Wheel Member Posts: 173 Member

    Coma54,

    Good luck from another two timer. I had Stage 4 non-hodgkins lymphoma 20 years ago before this one came along. I had my Surgery 4 months ago and 100% happy with my decision. Enjoy Christmas and don’t swing your catheter around ringing in the New Year!

  • swl1956
    swl1956 Member Posts: 150 Member

    Congrats on your decision! I know it's a tough one to make. I found that once the decision is made it lowered my stress level. Hope that's true for you too. Good luck with your procedure.

  • Clevelandguy
    Clevelandguy Member Posts: 1,229 Member

    Hi,

    Hopefully all will go well and you will have less ED and leakage than typical. Surgery provides you with several backup plans if your cancer returns, that’s why I chose surgery. Peace of mind was a big moral boost for me. I’ll take the drip every now & then plus minor ED, hopefully my remission will last well into my future. But if not I already have some backup plans mentally in place. Have a Merry Christmas and a healing new year.

    Dave 3+4

  • Dirtclods
    Dirtclods Member Posts: 17 Member

    As said a drip or a squirt do a kegel before you get out of a chair . And hold your belly area if your fresh out of surgery.

  • HerndonBoy
    HerndonBoy Member Posts: 8 Member

  • Dirtclods
    Dirtclods Member Posts: 17 Member

    Cialis therapy Keep in mind you my feel pain an you anus region taking these!!!

  • mbluth
    mbluth Member Posts: 15 Member

    @Dirtclods is what you say about the anus true? I have been taking cialis and have pain there could that be part of the problem?

  • Dirtclods
    Dirtclods Member Posts: 17 Member

    Yes, I didn't have any issues before, and I was searching the internet and found others with the same issues.

  • Steve1961
    Steve1961 Member Posts: 633 Member

    I had salvage surgery after radiation, which is more tricky that was only on the table for an 1 hour and 45 minutes was only in minor pain for three or four days everybody’s different. I wish I would’ve done it the first time the surgery is not that bad at all and the catheter not that bad at all. Sometimes you hear a lot of horror stories here take it for me, I’m the biggest worrier of all in the surgery was not bad if I could do it over again I would’ve never even thought about radiation. It’s up to you and I am cancer free.

  • LuckyKYGuy
    LuckyKYGuy Member Posts: 24 Member

    Best wishes for your surgery. I’m almost ten weeks post op and am starting to see improvement with the incontinence. The Foley catheter is by far the worst part of it all.

  • mbluth
    mbluth Member Posts: 15 Member

    My surgery was 10/30/2024. Had my first post surgery psa -<0.06(doctor said absolute 0 is non existent). Still have some issues with incontinence (just drops). Doctor said the cut back on pads and diapers at night to force myself to get control. Still some residual pain.

  • Dirtclods
    Dirtclods Member Posts: 17 Member

    My surgery was Nov 14, 2024 Don't worry—the drops will go away. Keep doing your keggles. As you get up, think about your keggles, tighten up that area, and hold your tummy as you get out of a chair or bed. I too have some pain, also note if your taking Cialis you may feel some anus pain as well.

  • Coma54
    Coma54 Member Posts: 4 Member

    Prostatectomy procedure performed yesterday, doctor did not touch lymph nodes, I don’t really remember anything else he said other than walk as much as I can. When I get more information I will post it. Pain levels minimal, had a good walk this morning. Thanks for the encouragement thus far.

  • Wheel
    Wheel Member Posts: 173 Member

    Terrific news, it’s done! Rest and recuperate. All the best .

  • LuckyKYGuy
    LuckyKYGuy Member Posts: 24 Member

    Good deal! I was just mostly sore and never in significant pain. You’ll feel even better once the catheter is out!

  • lighterwood67
    lighterwood67 Member Posts: 397 Member

    Hope all is well with you and family in the start of this new year. I am 74; Gleason 4+3=7; RALP March 2018; PSA undetectable; continent; able to be intimate with wife but she won't let me catch her anymore. Give yourself time to heal. It took me 4 to 6 months before I became continent. PSA has been undetectable since the surgery. I weigh 168 lbs; my wife and I do Yoga and walk around 5 times a week. Keep Quality of Life in front of you. Best of luck on your journey.