Breast cancer stage 0

SNG67
SNG67 Member Posts: 8 Member

I was diagnosed with ductal carcinoma in situ and had a lumpectomy to remove the tumor. Will be starting 4 weeks of radiation. Concerns about possible radiation burns. Does anyone have suggestions or ideas on the best way to handle this? My Dr gave me a list of lotions to use if I need to. Thank you!!

Comments

  • olivesew
    olivesew Member Posts: 20 Member

    Hi Susan,

    I am glad that your doctor advised you about skin care. The office I went to said not one word to me about skin care. About half way through the treatment, I was handed a bag with 3 tubes of cream. I asked for instructions for use, and was told, "Go in the dressing room and put it on. It is made from flowers." Then she walked away. I am glad I read the directions because (I used Miaderm) it says not to use it in the hour immediately preceeding treatment. Anyway, I had 23 radiation treatments, and didn't get any burn til right near the end, and actually it was more sore in the 2 weeks after radiation finished.

    I think you can start putting on the cream as soon as your treatment starts. A cousin of mine used Aquaphor and she used it right from the start of treatment, say right after treatment and/or every evening, and never had any burn.

    My only problems with radiation came from lack of information about how the machine rotates and moves. I started out great for the first week of treatment, when every day was the same, but on the 7th day, the whole process was done in reverse, without warning, and it scared the living daylights out of me. I thought my treatment had been changed.

    So just make sure you ask about what the machine will do during your treatment. But you are probably lucky to be in an office that will explain these things to you automatically.

    I am sure you will do fine .

  • SNG67
    SNG67 Member Posts: 8 Member

    Thank you for the information and the words of encouragement!

  • Arx001
    Arx001 Member Posts: 30 Member

    If I may respond as a guy with a stage 3 colorectal cancer, what helped me with radiation burns was painkillers. Make sure to have light, medium and strong painkillers with you. Your medical team may not wish to give you a strong painkiller but if the pain becomes too strong - especially towards the end of your regime - make sure to insist on getting one.

    I was given 52.5 grays of radiation. Possibly you will get a much lower dose specifically at a very small region as you are stage 0. I hope it will be quite easy and painless.

    Best wishes.

  • SNG67
    SNG67 Member Posts: 8 Member
  • catlady2
    catlady2 Member Posts: 55 Member

    My team suggested I use calendula cream. I used it religiously. When I developed a rash that spread across my entire chest I thought it was the radiation. Turns out I was allergic to the cream! I had to take course of steroid pills to clear up the rash! It is wise to be sure you are not allergic to any ingredients in whatever cream you use. 😊

    "Calendula may cause an allergic reaction in people who are sensitive to the Asteraceae/Compositae family. Members of this family include ragweed, chrysanthemums, marigolds, daisies, and many others."

    Best wishes for successful radiation sessions. I am 5 years out from being treated for DCIS and No evidence of disease (NED)!

  • SNG67
    SNG67 Member Posts: 8 Member

    Thank you for the information! Congratulations on 5 years.

  • CheriLynn
    CheriLynn Member Posts: 2 Member

    I just finished 18 sessions in October. I used eucerin during the day and aquaphor at night because it felt heavier and greasier. I got tanned for sure but never burnt. I made moisturizing a full time job. Like every time I used the restroom I slathered it on and had good results! It's already back to looking like the other side. I did develop folliculitis the night before my last treatment and developed an itchy burning rash. They gave me numbing lotion and I used it till it stopped feeling irritated ( about 2 weeks) I also treated with green tea. Keep it in the fridge and pour it out and remake every week though. It can get moldy otherwise!!!

  • Ceucha24
    Ceucha24 Member Posts: 16 Member
    edited December 2024 #9

    i used Palmer cocoa butter and it was excellent experience and have aloe vera in my backyard and also used it on my breast.

  • olivesew
    olivesew Member Posts: 20 Member

    Hi, how are you doing with the radiation? I am hoping that it is going well.

  • Ceucha24
    Ceucha24 Member Posts: 16 Member

    I had 22. Sessions done last year. At first I did not have any side effect but towards the end I had skin burn and severe fatigue.

  • SNG67
    SNG67 Member Posts: 8 Member

    Thank you for checking on me! I finished 15 out of 20 today. Started turning a light pink yesterday. Using a lot of Cerave lotion. I am doing good. Not a lot of fatigue.

  • Ceucha24
    Ceucha24 Member Posts: 16 Member

    I used Palmer’s cocoa butter. Drink a lot of water

  • SNG67
    SNG67 Member Posts: 8 Member

    I drink 4-6 bottles of water a day. Used lotion every 2 hours. Dr said that was a lot but my skin is still soft and I think that helped me mentally. Knowing I was trying to take care of myself.

  • SNG67
    SNG67 Member Posts: 8 Member

    I finished all of my treatments! I only had minimal side effects. I had people praying for me and used lots of lotion to keep my skin soft and drank lots of water. I appreciate all on this site who sent words of encouragement. I will be starting Tamoxifen in a couple of weeks. Praying hot flashes don’t get out of control.

  • Ceucha24
    Ceucha24 Member Posts: 16 Member

    some women are doing fine with the HT and tolerate the side effects from me.

    I am not in this group. The muscle pain and aches were unbearable and my quality of life was zero.


    I pray that you do well and have successful outcome and we all find some peace and forever cure.