Decipher testing

berne
berne Member Posts: 4 Member
edited November 4 in Prostate Cancer #1

Is this considered standard of care when a biopsy is taken?

Comments

  • Steve1961
    Steve1961 Member Posts: 618 Member
    #2

    Ask for an MRI to check , whether the cancer has spread outside the prostate or not. If it’s still in the prostate, I wouldn’t even mess around with active surveillance that just means the cancer is still in you and you’re hoping it doesn’t grow. I was mid 50s when I was diagnosed and I chose radiation which was a bad move. Radiation did not kill all the cancer because it was a cribi form. But nowadays they look for Cribform I guess without sending it out for decifer testing so that’s a good thing for you no Crib form. I was very confused and very upset and downright scared. I made a bad decision tge first time so 5 years later and back in April. I decided to have salvage surgery done, even though it was very risky. They were able to remove the prostate. Everything was contained. Everything look good and I’ve already had two non-detectable test. Hopefully I’ll stay that way if I could go back 6 years ago I wouldn’t even think about it again look up the gold standard for prostrate cancer that surgery. There’s usually three steps, when it comes to prostate cancer one surgery see you later. Goodbye it is gone and then if it happens to come back, you have a back up, which is radiation and after that have hormone therapy, which you don’t wanna do salvage surgery after radiation is tougher not many hospitals do it. It’s extremely tricky and you could have a lot of permanent bad side effects. That’s just my opinion. Good luck oh by the way surgery wasn’t that bad at all?

  • Clevelandguy
    Clevelandguy Member Posts: 1,177 Member
    #3

    Hi,

    If your spouse does stay on AS there will be future biopsies so another sample can be gathered then. If it was me I would do further testing to determine the location of the cancer. If the cancer is deep within the Prostate and not close to escaping or bladder walls then you could do AS for a while. Further testing could be a PMSA PET scan. The choice of treatment via surgery, radiation, or AS is up to you and his doctor team based on the factors like aggressiveness, location, ect. A second opinion from another doctor team/hospital network might not be a bad idea to confirm his original diagnosis.

    Dave 3+4

  • Rob.Ski
    Rob.Ski Member Posts: 171 Member
    #4

    I would get a second opinion on AS with 3+4 in your 50s. What were the volumes in each core? I had RP at Hopkins age 51 and had very good results as far as side effects. I was encouraged to end AS with gleason 3+3 because my volumes were high and my young age. After surgery i was upgraded to 3+4.

  • Old Salt
    Old Salt Member Posts: 1,505 Member
    #5

    You will be consulting with some of the best in the (US) prostate cancer business. I would give their opinion much more weight than whatever we can provide.

  • berne
    berne Member Posts: 4 Member
    #6

    Can anyone assist with how to edit a post? I was told to " click on the three dots to the right of the post title," however, I see no dots no matter what device I am using to view the forum.

    Thank you.

  • CSNSupportTeam
    CSNSupportTeam admin Posts: 225
    #7
    https://csn.cancer.org/discussion/comment/1718753#Comment_1718753

    Hi Berne,

    I'm sorry for the trouble you are having. Here are the steps to edit a post. You should see the three dots in the top right of the post.

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  • LuckyKYGuy
    LuckyKYGuy Member Posts: 8 Member
    #8

    Decipher showed my cancer to be low risk and any positive core samples were all Gleason 6. 14 months later my follow-up core biopsies came back significantly worse and I had some Gleason's of 7 and 8. After RARP the final pathology came back all Gleason 7's.

  • Old Salt
    Old Salt Member Posts: 1,505 Member
    #9

    In response to the original question, my answer would be NO because it only makes sense to do a Decipher analysis on lesions that have been identified as worrisome in a consultation with the urologist.

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