Llarge and giant platelets

ahora1399
ahora1399 Member Posts: 8 Member
edited July 31 in Lymphoma (Hodgkin and Non-Hodgkin) #1 
Greetings and Regards 
My son has been dealing with a drop 
in platelets and large and giant 
platelets since birth, and unfortunately, 
he was diagnosed with Non-Hodgkin's lymphoma 
at the age of 2 and is currently undergoing 
chemotherapy. The doctor of blood and pediatric 
oncology says that one of the reasons for this 
cancer disease is the large and gigantic size of
 the platelets, and there is currently no cure. 
Has anyone ever encountered this problem? What 
medicine is currently available in the world to 
treat large platelets? Thank you

Comments

  • po18guy
    po18guy Member Posts: 1,499 Member
    #2

    So sorry to hear this. I am unaware of a connection between platelets and lymphoma. A stem cell transplant, if possible, would essentially replace his marrow and the platelet disease "should" eventually be eradicated. Are you at a major cancer center? If not, can you get to one? They make a huge difference in outcomes.

  • ahora1399
    ahora1399 Member Posts: 8 Member
    #3 
    Hello Thank you for your reply My son is in a hospital It is under treatment Many children thereare under treatment.Genetic testing for my son "HES"We did the exome, the myh9 gene has a problem, of course, this gene also has a problem in the father, who is healthy, but there is no problem in the mother.In other words, the father and the child have defective myh9 platelet gene, but the mother is healthy.The doctor says that this disease is rare and rare in the whole world because the size of the platelets is very large and gigantic.Do you think this problem can be solved by bone marrow transplant?Thank you

  • po18guy
    po18guy Member Posts: 1,499 Member
    #4
    https://csn.cancer.org/discussion/comment/1717099#Comment_1717099

    Where are you located? If you can find a cancer treatment center, they will probably know more about his condition and the treatment options.

  • ahora1399
    ahora1399 Member Posts: 8 Member
    #5 
    Hello Thank you for your reply 
My son is in a big hospital It is 
under treatment Many children
 thereare under treatment.
Genetic testing for my son "HES"
We did the exome, the myh9 gene 
has a problem, of course, this gene 
also has a problem in the father, who
 is healthy, but there is no problem 
in the mother.
In other words, the father and the child 
have defective myh9 platelet gene,
 but the mother is healthy.
The doctor says that this disease 
is rare and rare in the whole world
 because the size of the platelets
 is very large and gigantic.
Do you think this problem can be 
solved by bone marrow transplant?
Thank you

  • po18guy
    po18guy Member Posts: 1,499 Member
    #6

    This is something to discuss with doctor. I mention bone marrow transplant as a "possibility" since all blood cells originate in the marrow. When. a person has a marrow transplant, they have the blood cells of the donor. This would appear to be a possible solution. The doctors will know.

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