What to expect with no treatment

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Comments

  • Steve1961
    Steve1961 Member Posts: 618 Member
    #42
    https://csn.cancer.org/discussion/comment/1714971#Comment_1714971

    https://youtu.be/04crGGfIX18?si=hGTVhbK_-MR4lC4i

  • dgrinnan
    dgrinnan Member Posts: 12 Member
    #43

    This was a very informative video and specific to my personal cancer profile.

  • reluctant_member
    reluctant_member Member Posts: 9 Member
    #44

    So I did six SBRT sessions and took a six month Lupron injection in May and the side effects have been what I was warned about. I haven't been able to have sex or masturbate for two months, my muscles are disappearing before my eyes, I'm tired but can rarely sleep, I have to pee every 30-40 minutes including at night, my heart races at 180-190 bpm or higher for random periods of 15-30 minutes, and the doctor said I'm now pre diabetic. She wants me to take heart medication and metformin but I declined. The one good side effect is that my brain and emotions seem to have been dulled to the point I can just go along and not be happy, sad or angry about anything at all and because I got treatment my family has left me alone and stopped nagging me.

  • Old Salt
    Old Salt Member Posts: 1,505 Member
    #45

    Exercise!

    What's your HbA1c? It seems early to declare you prediabetic. Change your diet!

    Once the Lupron wears off you should gradually start to feel better. Some recover quickly, others not so much.

  • Clevelandguy
    Clevelandguy Member Posts: 1,180 Member
    #46

    Hi,

    Got to agree with Old Salt, about all you can do is stop the Lupron and hope the side effects will lesson or go away in the coming months. The fast heartbeat, diabetes, frequent urination are all side effects of Lupron according to the Cleveland & Mayo clinic. Good luck……..

    Dave 3+4

  • Josephg
    Josephg Member Posts: 455 Member
    #47

    Hang in there. Your on a 6 month Lupron regimen, and that is a short stint (I was on Lupron for 2 years), so just tough it out.

    Do not forget that the MOST IMPORTANT factor on your PCa journey is to be in remission for as long as possible. Everything else is secondary, no matter how annoying it may seem at the present time.

    You can also inquire about being prescribed Venlafaxine (2 pills per day), which will reduce the severity of many of the Lupron side effects.

  • cp014
    cp014 Member Posts: 8 Member
    #48
    https://csn.cancer.org/discussion/comment/1714036#Comment_1714036

    I held off on my biopsy. Sure wish I hadn’t. All the negative stories, etc. only clouded what needed to be done.


    I felt absolutely no pain. Had no issues. Blood in semen for awhile. But don’t know since no longer in mood for semen activity. And won’t be for sometime, if ever. I have more important things to concern myself.


    I say get the biopsy. Why not? If like me, you won’t have any issues with the biopsy and will be glad you got it done.

    Life is worth living each and every day. It is not your friends, loved ones, etc. it is about you and seeing the sun shine breathing in the fresh air existing pain free. Everything else is gravy.

    Don’t give up or give in to negativity you may regret.


    damn I wish I could live that long. Up until two weeks ago I was healthy as an ox other mostly life expectancy never a concern.

    now at this time it is my only concern

  • mllc16
    mllc16 Member Posts: 7 Member
    #49

    It is good your biopsy went well. From the signs of it you got news you really didn't want to hear, which unfortunately is similar to what so many here have experienced. As I originally said, the journey is not fun or pleasant but at least you know what you are up against. Talk to whoever will listen and keep looking for positive things.

    For reference: my biopsy included 12 samples of which 5 presented with cancer and occurred on both sides of the prostate. Gleason scores were 4+4. CT and MRI indicated containment but existence of a tumor and my decipher came back at 0.89/1. Based on the decipher I opted for a robotic prostatectomy. Pathology indicted spread outside of the prostate but surgical margins were clear. Certainly not the worst diagnosis that you see here but 17 months post surgery my PSA remains undetectable, incontinence has resolved and still some work needed to overcome impotence.

    My point is simply that things will change but hang in there.

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