Choices

So glad to hear from you and what you're going through in radiation treatments. Happy to know you're almost done. Are you using any creams for burns? Fatigue or other things to know about?

I've finally been cleared by my surgeon to start radiation therapy. I meet my Radiation Oncologist this Tuesday where she'll discuss her proposed treatment plan and procedures. I'm hoping for reduced treatments and possibly no radiation to my armpit area since the 3 lymph nodes were cleared with no cancer post surgery. I'm in PT for my arm because of limited range of motion too. It may pose a challenge for radiation in this area.

I've restarted on the Herceptin and Perjeta targeted drugs which are given via IV every 3 weeks. I'll be on these through at least October or early November.

My hair has started to regrow but not too good in areas it fell out before I used the ice gel cap. Hopefully it's not permanent hair loss since docetaxel causes this.

Haven't seen/heard from anyone lately. Hope everyone is well. Take care.

Hello ladies,

Happy birthday, happy mother's Day, and congratulations to all those who have crossed the finish line or have gone through to the final phases of their treatment!

Since last I touched base with everyone here, we have sold our house with a closing date at the end of June. I continue to take my specialty chemo and actually today have set up appointments with my primary care doctor to see me on my recovery weeks just to make sure I don't slide like I did last November and December. Last week my oncologist gave me a little clarity on my treatment plan. She told me to consider it as if I had high blood pressure or diabetes. You take the medicine for the rest of your life. I thought that was a pretty simple explanation is to where I was headed with mine. Of course as always I find myself napping quite a bit.

Sending y'all lots of love and hugs

Hello, friends!! Thank you so much, @Sadiej , for checking in. I'm glad as well to hear that your relocation is officially in progress. And @marlakeeth , so glad to hear from you too. Happy (belated) birthday!

I am back to an abdominal binder 24/7. They took out the drain last week and it was likely that the drain site was infected so I'm on a strong antibiotic. My next post-op is next week. The hope is that the abscess doesn't try to refill. If so, they will likely have to do surgery.

I see my oncologist tomorrow. She will do a bunch of lab work. I don't want anything to be wrong but I'm hoping for an explanation for severe fatigue/lack of energy that continues to plague me, preferably an easy fix like low iron or something. I struggle to get functional in the mornings. I haven't managed a full 40 hour work week since returning to work this time (been almost three months). 😐️

I'm thinking of each of you and praying for peace, love, and joy to fill your minds and hearts. Please check in whenever you can, even if there's no "news" to share.

Well…

There you have it .

Just got the results from my PET scan today. The cancer has exploded throughout my body. Claoh not sure now if I will ever get a chance to hang out with you in Florida.

My brain MRI is next week. I will let you know what the results of that is also.

Love y'all.

Good Evening Everyone. So sorry to hear this Pat. I wonder if you would benefit from some of the newer ADC type treatments. Just read about one that had great trial results even for HER2 ultra low and low type cancers. It was originally approved for HER2 positive cancers. They're applying for FDA fast track approval. Used mostly for metastatic cancer.

Just started my radiation treatments today. Met with my Radiologist Oncologist and she showed me the CT simulation images used to plan my treatment. I will get 16 sessions of radiation in total, no direct beam into the armpit. Just whole breast treatment. She said I may get skin burns because I have small breasts. Ugh. Hope I don't end up with char burns where the skin turns black as I've seen in photos on Facebook. I have my next Herceptin and Perjeta targeted chemo drug infusion next week. Will be on these every 3 weeks into November. So far I haven't had to have the weekly IV fluids like I did during my regular chemo drug sessions. Still not putting weight back on and my summer clothes don't fit. I've had to buy new clothes. An added expense I hadn't counted on.

Take care everyone. Be well.

Thank you all for your love and prayers!

Claoh I knew this was going to be hard news especially for you. To answer your questions, we are looking at travel trailers that we can pay for up front. We don't want any debts as we go through this. Funny how the things you think about change when you're faced with a fatal result. Hubby keeps searching for possible answers while I sit here pretty much numb. It's bad enough to have multiple metastasis throughout my body, but to find out it has spread into the bones is like a period at the end of the sentence. Isn't it funny how all our stories began with one view of what we believed we were going to go through and then changed to what they are now? I know I had mentioned that I didn't ever want to get bone cancer because of the pain but it looks like that's where I'm at. I am working with my doctors now discussing extremely caustic chemotherapies, radiation therapies etc. I will be meeting with my oncologist next week to let her know if I am willing to do these treatments or if I just want to live the rest of my life as is. Next week I also have my brain scan to do so I am waiting to hear what the results of that will be.

Take care y'all. Marla hope you're doing well too. Thanks again for all of your love and prayers.

P S. RocDoc I'm not ignoring you. I just don't have the energy to research these days. That's why Hubby took over. If you could let me know what ADC means, I will have him look into it. Thanks for looking out for me.

Got it. Please remove your phone number from this blog. Thanks