New to Board - Anyone recently diagnosed with Endometrioid Adenocarcinoma FIGO Grade1?

Welcome Hopeforthebest. Sorry to read about your recent diagnosis and now breast biopsy. But you do have hope. When you ask a doctor if it looks like cancer they will usually err on the side of caution. You will be happy if it's negative, but mad if the doctor said it didn't look like cancer and was. As far as your endometrial cancer grade 1, the most likely outcome is that it won't have spread and you most likely will not need treatment. Maybe brachytherapy. It is hard when you hear cancer. It is scary. The unknown is hard to deal with. But here we are having done all this before you. And we are here to help. Please don't get a head of yourself. Grade 1 is called endometrioid (most often). That will help you read about it. If you have any specific questions please feel free to ask. I had a high grade serous cell but they didn't find any malignancy in my hysterectomy tissue. I had no treatment. My surgery was 5 years ago. Most women who have stage 1 endometrioid and need to treatment drift away from this board. But if you search you will find some.

Sue

Yes I had scans. But only for symptoms. I had hip pain and sometimes that is a recurrence, mostly of the high grade cancer, I had serous endometrial intraepithelial carcinoma. But it turned out I had a torn gluteus muscle from overdoing PT for my back surgery. But it seemed the first couple of years I was worried any pain was a recurrence. It took about 4 years to relax. I did NOT have routine scans or a CA-125. I think the low grade, low stage cancers do not need routine scans. I did, and still do, have visits with my oncologist for a pelvic exam. It started off at 3 months, then six months and now yearly.

All this was new to me too, and I am an RN! Big learning curve. Try not and read too many articles. They are old AND they used to group high grade and low grade cancers together so both groups had inaccurate information. I don't read any articles older than 5 years. Treatment has come a long way!

You are welcome. One other suggestion, ask about lymph node mapping. Some surgeons removed a lot of lymph nodes. You can end up with lymphedema, swelling of your legs. Mapping injects a dye into your cervix during surgery so the surgeon can find and inspect lymph nodes. They are not very different from surrounding tissues. The surgeon can then decide if they should take more than sentinel lymph nodes. I had mapping. It is 97% accurate and prevents a serious side effect. You can read about it. It also takes about 2 hours off the time you are under anesthetic.

All the best to you, hopeforthebest. I was also diagnosed with endometrioid adenocarcinoma gr 1. Going for a CT scan next week and then further instructions. I came here to hear stories of others who have had this and just for some support.

I'm concerned about the "focal squamous metaplasia" part that was in my test results. My doc is referring me to a hospital out of state because there isn't anyone near us who does the surgery and treatment.

NoTimeForCancer - we live kind of in the middle of nowhere. Will have to travel about 6 hrs to the hospital. I don't think she's a gynecologic oncologist but I'll find out. Thanks for the advice. I'm not one to shy away from asking questions so that's a good thing.

Thanks for the help. I also found it and discovered it's not as bad as it sounds. I'm checking out the dr on Monday.

That is hopeful. I didn't want to say good news, because it is still hard. I hope you don't need further treatment! but if you do there is lots of support here.