Time from diagnosis to treatment

I also had my urologist tell me that the radiologists dont use the genomic testing results he tells me that my case is different, which tells me that I made an even bigger mistake The first time around the radiologist didn’t seem to care that I had cribiform …sooo now this time around my radiologist is telling me all these great numbers bir for men Not like me they’re all of lower grade Men like me was only 13% that are treated this is coming from my urologist They also said that the tumor is right next to the marker which was targeted pretty well, so what does that mean? The radiation did not knock it out and it came back because it’s strong will cryotherapy knock it out, and then we’ll come back again The doctors name is Peter Carol, UCSF, very well known he tells me I whould treat it one more time before we went to surgery now I have the pretty well-known doctor, Robert Reiter at UCLA telling me that after a second treatment is nearly impossible to take out, so you can see my dilemma here

Thanks for that you are a good man i hope you beat this thing inthink you have …i am letting go of the past slowly..but this time i want this thing out ..i think god is giving me a second chance ..let it be known that drs dont stress enough just how hard it is to remove it the second time around ..i guess when doing my homework i ahould have known because not many do it ..i also ahould have insisted that the radiologist and surgeon get together and both come up with same opinion.. this was on me with my issues with hospitals and surgery but I have been actually seeking help about that because let’s face it sooner later most everyone ends up in the hospital and has surgery at one time or another unless you’re very lucky so now I’m prepared. If this surgeon say im ntaken it out , I don’t care about the complications. They’re actually not as bad 25% chance of minor incontinence 10% chance of major and that can be fixed. The thing is the rectum but it is what it is. I just hope this doctor isn’t exaggerating about how many they have done I do trust him though he does want to look at both MRIs first he’s actually going to discuss it at his monthly conference (must be an interesting case. Lol ) before he gives me his opinion whether I should do Cryo or surgery. He could’ve just said surgery. I suggest surgery but he didn’t. The beat goes on. I’ll just keep waiting and hoping and praying lol happy new year.

Prostatectomy Followed by Radiation

Our surgeons at UCLA have extensive experience performing these surgeries and most often performed with robotic assistance. This procedure is called salvage prostatectomy and is most frequently performed by Dr. Robert Reiter.

Dr. Reiter is an internationally recognized expert in all areas of prostate cancer management and research.  He was among the first to integrate functional MRI imaging and PSMA PET imaging into the diagnosis, surgical management,  and care of men with prostate cancer. He was also an early innovator in the field of robotic surgery, and has completed more than 2,500 robotic prostatectomies. In addition to surgical management of prostate cancer, Dr. Reiter has expertise in MRI-guided biopsies to diagnose prostate cancer, focal therapy to treat select individuals, as well as all forms of medical therapy. Dr. Reiter has a particular interest in the multidisciplinary management of men with high-risk prostate cancer, incorporating the latest in genomics, clinical trials, and precision medical therapies into treatment plans in collaboration with UCLA leaders in the areas of radiation, medical and nuclear prostate oncology. 

Hmmmm how can 1 person be en expert in sooo many different areas .. any thoughts .seems like he does surgery and does biopsies and does focal therapy. I mean is he God now I’m starting to wonder. 2500 surgeries is not a lot the two doctors I was looking at before one had over 5001 had over 3000. My family tells me I look into things too much and not just about this about everything I do maybe not a good thing.

I notice how it says our (surgeons ) plural at UCLA then it says it is mostly performed by Dr. reiter and notice how the resident said he’s done a few make no bones about it I’m not going be a guinea pig no way know how it is Dr. reiter or nothing this is getting interesting it must be extremely difficult. An expert is an expert. My urologist at UCSF has done over 5000 of them and he’s not even willing to do it right now SOB.

Maybe I am looking into it too much. If I didn’t I may have not been in the situation. I am now I trying to laugh about it but it’s hard.

This all started for me when I broke my foot about 13 years ago. I went to my podiatrist and he sent me for an MRI right away. He said oh you need surgery I have a Liz Frank fracture whatever then he told me that he’s never done one before, he told me the resident will be doing a surgery and he just be overlooking it. He had an old x-ray machine. He showed me the x-ray and I could barely see the fracture. It was like a quarter inch long and he wanted to put like six screws in and all this stuff , it made no sense to me. I went to get a second opinion lady came in. She looked at it and she said who is your doctor and I told her she said if he says you need surgery I would trust him. She told me she needed surgery and he did mine, and she walked out the door . I even had surgery set up and then I backed out that I was afraid to death. I went and saw another specialist a friend of mine recommended, and he laughed, and he said he seen worse fractures from people jumping off of their bed, and he asked me who the doctor was and he shook his head and they said he’s cut happy , anyway I didn’t do surgery. I stayed off for six weeks and I’m fine so that’s when it all started about trust with drs i dont know

Anyway HAPPY NEW YEAR we’ll see where this goes. I woll know shortly within a couple of weeks. I have to hold the record from diagnosis to treatment, but thank goodness my PSA has dropped. Even this doctor said that’s a good thing.

So enlighten me, I asked about the pet scan if the results could be different at 60 minutes and 80 minutes which they didn’t do and they said that the pet scan I had was sufficient and blah blah blah, so how do I go about demanding a biopsy with the lesion on my rib who do I get to do it? How do I have this done