Oral Cancer

I got my nausea medicine to have when I start my treatments of radiation and chemo the week after Christmas.

One is Zofran, well it the generic ondansetron. Thing is, my insurance company will only give me 9 pills. That lasts 3 days. I was reading though how that restriction insurance companies put on ondansetron is not good for patients because there's none left for 4 days in case of breakthrough nausea from radiation or chemo therapy.

Has anyone found a work around for this?

8 mg's is the highest dose I think. So in the beginning at least I can't cut them in half down to 4 mg's to last longer because I need to take 8 mgs every 8 hours.

Tomorrow I go for my my radiation simulation where they'll make my mask and whatever else. In the afternoon I have my baseline hearing test.

Thank you,

Wade

Hi all.

I'm not healing that great from having 12 healthy teeth removed.

After 2 weeks the pain got worse. I went to the O surgeon Thursday and it's hard for him to see if the gums or whatever are infected because of the swelling from the gums and my tumor so he went ahead just to be safe and put me on Keflex. Where my last tooth was (a molar) on my tumor side on the bottom gum felt rough and it was irritating under my tounge. He couldn't get my tongue pulled out and over enough to see under the back of it. He was worried about adding to the pain.

But from him trying wow did it flare up whatever that pain was. I know now what it is.

When I got home I decided I need to see what was going on. Yes everything is packed in there because of things swollen. But I used a tongue depresser and a Thor pen light as another depresser. I was able to get all the way back on that side and I seen what all the tongue pain was about. On the right side of my tounge and underneath is a ulcer. I'm guessing the white circle is about 12 mm in diameter and then it's red around it.

So first off, does anyone know a good paste or barrier I can buy OTC for it. I can't even swallow because it hurts so bad.

I couldn't get a pic with my phone as it's too hard to hold everything open and run a camera. Not enough room for two people.

My wife called my surgeon today that I just seen yesterday and he suggested the normal stuff plus a script for mometasone Furoate. I recognized it as soon as my wife told me. It's a steroid cream my PCP gives me for poison ivy. My wife called it in. Our pharmacists that we have a good relationship with told us they have to label and tell us that it's not allowed in your mouth or eyes. So that was around 4pm. Our pharmacist told us to ask the doc again about it because it could have off label uses. Long story short everyone at my surgeons office was gone. I'm like dang who knows how long the office will be closed now because of Christmas.

I made it all the way to the furthest extracted back molar with my finger. I know expose bone is normal after teeth extraction but I found a little piece of sharp bone sticking up about a 32nd of a inch (not muxh) above my gum. Reminds me of a piece of finger nail. Now I'm wondering if that's what gave me the abscess.

Past 2 nights I've taken one Percocet and it helps with the gum pain Im having 3 weeks after 12 teeth where extracted. I told my surgeon yesterday that I'm regressing not progressing with pain. He wanted to see me that day. So I went. He didn't do a lot because of the swelling. Like I said though he did start me on Keflex. At least I can get a few hours sleep using a percocet.

Now I can hardly swallow because of the painfulness of that ulcer.

I need to get healed up more so I can start treatments on the 2nd. Surgeon told me yesterday well Thursday the exposed bones will heal.

So if someone knows any good OTC or prescription ulcer meds I'd love to hear about them. I've tried even holding my tounge and trying to swallow. No luck. I've had a few mouth ulcers but not many in the past years. Maybe like 2 in 30 years. Been ages but I remember there's like a baking soda paste you can make and put on but I never had any luck with it helping.

Thanks all for reading this. Sorry about me rambling on.

Wade

Thanks Goffrey! That makes sense now as my surgeon told me to buy milk of magnesia and oralgel and a few other things. I was curious as to why he wanted me to drink milk of magnesia. LOL I guess he should've explained what I was suppose to do with it.

Thank you Russ.

Hi everyone. I started my radiation and chemotherapy Tuesday. Had Chemo from 8 am to about 1:30 pm. I thought it went as good as possible. Was dog tired Tuesday night and went to bed pretty early. But I slept well. Yesterday I wasn't feeling that bad. I started noticing the read burn marks from my Radiation but it didn't bother me.

Today is a different story. Like day and night compared to yesterday. I really feel like crap. Tired, light headed off and on, sick in my stomach and so on. I almost call d off radiation since it's almost a hour drive but I didn't. I went and got it done. They pushed me back to the radiation room in a transport chair. I greatly appreciated that.

If I still can't eat anything later I'll try and take my nausea pill I have for breakthrough if the Zofran isn't getting it.

Later.

Wade

I'm so glad things went well for him. They put all my steroids and other stuff in a IV before my Cisplatin. My first was Tuesday. By Thursday I was pretty sick. Was sick all day yesterday. Still rough today. No way once that chemo got to me Thursday I could've drove to radiation myself. Maybe it will get better. I hope.