Bowel frequency after reversal

jara1166
jara1166 Member Posts: 1 Member
edited November 2023 in Colorectal Cancer #1

My husband had stage three colorectal cancer. He had a resection and a temporary colostomy bag. He has since had his bag reversed but, ever since then he has been dealing with frequent bowl movements. He will need to use the bathroom up to 15 times a day and each time he will pass just a small amount of stool. Has anyone else dealt with this and have any advice. tips or tricks? Or can tell us how long this might last? He can't sleep at night and is afraid to leave the house. We have asked out doctors about but they have not been any help. He can't be the only one who has ever dealt with this.

Comments

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #2

    Hello, Jara

    I have not had a bowel reversal, but a resection. I know many on the forum have had a reversal, and hope someone will be along soon, to answer your question.

    I know my road is a little different, because I did not have a bag or reversal, but I was also tied to the house for several months after finishing treatment, going to the bathroom several times a day and night. I do remember that as the months progressed, and I knew I had to leave the house at some point, I started a little walk around the block, and a quick trip to the shops. Baby steps, for sure.

    My best friend of 50 years, also mentioned that I might be experiencing what they call, Latchkey Incontinence, normally associated with the need to urinate. As soon as I saw the house, the need to have a bowel movement was instantaneous, and often I didn't make it to the bathroom. Once I realized this was happening, I had to train myself to hold on. Sounds easy, but it wasn't. It was very much a mind over matter situation.

    My need to go to the bathroom frequently, lasted several months, and I think that is what caused the latchkey reaction. How long has it been since your husband's reversal?

    Remember, every person is on their own time-line for healing, and I hope that as the weeks progress, improvement is seen.

    Also, if the Doctor's aren't concerned, that is a good thing.

    Hopefully someone who has had a reversal, will be by to give you their first-hand experience and advice.

    Tru

  • airborne72
    airborne72 Member Posts: 303 Member
    #3

    Jara: I had an ileostomy for six months before my reversal surgery. Spent four nights in the hospital and hurt badly after that procedure but I was sooooo motivated to get out that I convinced them that I was walking out not riding in a wheelchair. It was a 10 minute drive to the house and I was not sure that I could last that long without sitting on a toilet. But I made it.

    The next three weeks were very discouraging. I was afraid to eat so many different foods that I used to love and my trips to the bathroom were numerous and unpredictable. However, slowly my intestines calmed down and regulated.

    That was over five years ago. My digestive system is not what it was before cancer and its treatment but it is my new normal and I have learned to live with it. Most days I am in charge. Some days my intestines are in charge.

    Tell your husband to remain positive and hopeful. It will get better.

    Jim

  • Forbin
    Forbin Member Posts: 6 Member
    edited October 2023 #4

    I had an ileostomy bag reversal back in december. My original surgery was about 5 cm from the anal verge. A few nights after getting home from the hospital it was like a tempest in my stomach and I was shitting uncontrollably. For about another 3-4 months I wore depends regularly for fear of an accident and regularly had a burning feeling in my rectum and massive cluster s****. At about 6 months it completely stabilized. After about 2months from leaving the hospital I started taking metamucil once a day, and even now if I take a day or two off from metamucil I will have a rough day.

  • jellybn999
    jellybn999 Member Posts: 1 *
    #5

    Sounds like your husband has LARS or lower anterior resection syndrome. Go to the Facebook page “Living with Lower Anterior Resection Syndrome” and you will find your tribe. There are lots of us out there suffering like this. You will find tips and tricks and camaraderie on this FB page. I am on that page too. I have the same thing and I’m 5 1/2 years out, Stage 3b rectal cancer, jpouch, no reversal, stricture at anastamosis.

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #6
    https://csn.cancer.org/discussion/326815/bowel-frequency-after-reversal

    I'm sorry to hear that your husband is dealing with those issues. It's bad enough that he had cancer, but now the after effects of the surgery. I too suffer from the same thing, going up to 15 times a day (after 15 years). Unfortunately mine never got much better but most do improve where there is no problem whatsoever. I just go without eating all day if I need to go out and this helps most accidents. You can try a prescription from the doctor to bind up his stools, but be careful that it doesn't work the opposite and make him constipated because that can be almost as bad. Doctors don't seem to have an answer for questions like this for some reason. I hope that he continues to improve and wishing him the best.

    Kim

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #7
    https://csn.cancer.org/discussion/comment/1710781#Comment_1710781

    Yay, Kim! I checked on your forum activity just the other day. Missed seeing you posting here. Like allot of us old members, we pop in now and again. Anyway, good to see you post.

Discussion Boards