Anyone Had hair loss with Doxil?

No hair loss with Doxil. Some nose bleeds and hoarse throat with Avastin. I asked them to cut down on the benedryl since it, the avastin and the symbicort (asthma med) seemed to contribute to the hoarse throat and dry mouth. Once I reduced benedryl and symbicort then the hoarseness went away.

I had spontaneous nose bleeds from Taxol/Carbo from hair loss everywhere that caused dry nasal membranes. Nose hair is so under-rated. My nostrils became very dry and spontaneously bled a few times a day. Lots of sneezing as well. No headaches at that point.

Have you tried using a nasal mist or applying a thin layer of vaseline to your nostrils with a q-tip? I misted in the morning, and vaseline'd morning and evening. As I recall, my nosebleeds resolved within a week or so. Headaches began as Avastin began to stop working. Perhaps a coincidencem but when we stopped Avastin, the headaches stopped. I hope yours have, Patti.

That's great, Cayman! 👍 May it continue to go easy on you and full attack mode on your cancer!

When Avastin stopped working for me I chose not to go back to Doxil only because I didn't want another port installed.

I had my 2nd cycle of the new Elahere yesterday. Marker went from 46 to 17. Thus far no major issues. It requires quite an aggressive 9 day regimen of eye steroid drops and lubricating drops each cycle. There is good info on their website.

Thanks, Marilyn! I began Doxil on a reduced dose when my hair had regrown to almost an inch after taxol/carbo. My doctor said I wouldn't lose hair while taking it, and I didn't.

Prayers for hairs! 🙏 xo

What side effects are you experiencing from Avastin, Marilyn?

Judy,

Oh, and I seem to have a UTI every other month.

Judy,

Yep I do have those dry mouth sprays that work pretty well. I think that either the Avastin or Doxil makes you dehydrated and may cause those UTI's, but interesting observation with the cranberry pills - I will try that. I have increased my daily intake of water and added one of those hydration packets to it.

Question - how do you know when Avastin starts to fail?

Judy - the hydration packets are vile especially those with artificial sweeteners. I found "DripDrop" works really well and has the least offensive taste. "B4" is the other one.

Let's see, on Carboplatin\Taxol my CA125 went from 450 down to 19 after surgery and then started climbing. When I finally convinced that doctor to do a CTScan, we found 2 small cysts that weren't there before.

Changed doctors, next tried three cycles of: Avastin/Carboplatin and my CA125 stayed at 105. But cysts reduced in size slightly.

Changed doctors again, convinced them to take out the two cysts, but the above doctor (who was the surgeon) only took out one, saying he could not "reach" the other one. But, on the way there he observed small volume Peritoneal carcinomatosis. Sigh. This is the guy that was looking at me like I was a dead woman walking last year. And then again after this procedure.

After that, started Avastin\Doxil and CA125 dropped from 238 to 67.

Now, after six cycles, it is rising again - 86 to 124.

But CT scan shows only the one cyst. Go figure.

Judy,

The biopsy was malignant. Thanks! I am headed to the Moffitt center in Tampa in November for another opinion and treatment options.

Judy, yeah, those cysts were resistant to both Carbo/Docetaxol. I did three cycles of Avastin/Carbo but the CA125 stayed at 95 and the cysts reduced in size a tiny bit. Now doing Avastin/Doxil, and CA125 is rising and the one cyst left is slightly smaller. So something is churning away or the Doxil just works slower.

Back at you with the prayers and positive thoughts!