New to this and lost

I would still get second opinion from a different Cancer Center. Perhaps evaluate the proposed treatment options, approaches, and meds they want to use. Ask if there are alternatives. If the 2nd place seems better, see if they can work with current location to switch some things around. If you don't feel comfortable with the surgeon ask to be changed.

What stage and grade? What type of BC? Invasive ductile carcinoma?

I got one because my original cancer team and I didn't click especially after I caught them lying to me. It should be covered by insurance too. You should be able to have all your records sent for review but they'd probably want to meet with you in person. Tell them you have concerns about their proposed treatment plans and to see if there are options. I've seen forms on line for MD Anderson, Mayo Clinic and others for 2nd opinions. If they have good alternatives then perhaps they can call your team and discuss.

Have you brought up your concerns to your team?

FWIW, I've got invasive ductile carcinoma too. ER/PR- and HER2 3+ I'm having 2 cytotoxic chemo drugs plus 2 targeted drugs to go after the HER2 protein for 18 weeks every 3 weeks. Then surgery and radiation if lumpectomy. Followed by additional targeted treatment. Not fun, but it should work based on what they know.

If you feel need for another opinion and can do it ( cost, time, location and insurance a hassle) get it! You have to have the peace about your drs! I’m in middle of radiation after lumpectomy. My Insurance not allow second opinion unless pay for it myself and I work for a hospital. Hoping all gets better.

Calmspirit,

First and foremost, I'm so sorry for what you are experiencing right now. It sucks. Cancer sucks. And the period between prognosis and diagnosis is one of the toughest to get through. (See poem below; I did NOT write it - someone else on these boards did but it helped me realize there really are others who understand exactly what this experience is like, even if we're each different.)

I had a breast MRI March 8th of this year that was supposedly going to make me feel better about something the radiologist deemed "benign appearing" on my mammogram the year before. Turned out that that breast was fine but the other one had a mass. I was scheduled for MRI-guided biopsy March 21st and diagnosed with invasive ductal carcinoma and DCIS the next day. It was small enough that I did not need chemo but I had bilateral mastectomy and tissue expanders exactly 50 days later and started the anti-cancer meds June 13th. (I'm ER/PR+ and HER2-.) If I can deal with the side effects reasonably, I will be on the meds for 5-10 years.

I know the waiting is so hard. Please reach out on these boards or by direct message as much as you need to. And please keep us updated.

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After the diagnosis; before the prognosis

You haven't slept for three nights. The thoughts keep you awake. All you know is there is cancer inside your body. You hope it's just contained in your breast. You don't have a prognosis. You don't know the stage. All you know is that it's called Invasive Ductal Carcinoma.

You sit in the dark and cry at night long after everyone else has gone to bed for the first few nights. Then, around day three, you decide you have to continue on. You have to live your life between appointments, face the battle, and take care of your people. So you make yourself cook dinner. Shop for groceries. Plan birthday parties. Go to work. You fight the thoughts every single minute of every day. You fight to be productive.

You find joy in lots of things. You manage to smile. Real smiles. Even laughs. But sometimes you need to stop and cry.

You've gotten more news, and it's hopeful. They assure you it's early. It's not aggressive. But there's still a lot of unknowns and you have weeks more waiting to do. WEEKS.

You're undressing and your young daughter notices your biopsy marks and bruises. You poorly explain to her that it's sick, but you're seeing a doctor. You say it gently without worry, so she won't worry. You stuff your bruised breast into a bra and wonder how she'll react later when the scars are bigger, or if the breast or nipples are gone. 

You notice people treat you differently. People that didn't talk to you before are friendly now. Your family has anxiety, and to manage it you try to hide yours. You know it's not healthy. You do it anyway. You sometimes feel misunderstood. Maybe you shouldn't have told anyone. Too late.

You see another doctor. His nurse is sweet. She cries in the room with you and hugs you. He tells you you're going to beat this, but you have to fight.

You start to learn things you didn't want to know. About receptors and proteins and chemo and radiation and never in a million years did you ever think you'd see a plastic surgeon but now you have one. And you have ten appointments scheduled in the next three weeks. It's going to be a long haul.

And you feel guilty. For having cancer. And you know you don't need to feel that way, but you do anyway. You don't want to let your people down. The resources you were given say it's normal. The doctor says you'll need something for depression. Instead, you just eat tacos….

You talk to survivors. They're so helpful. They hold your hand and let you cry and tell you nipple jokes and show you their scars. They assure you, you got this.

They tell you what the radiation is really like. How they literally thought their nipple would fall off. And how they endured it every single weekday for six weeks straight; you had no idea it was that intense. They tell you how it hurt and how to soothe the pain and how their armpits turned black. And sometimes they tell you they endured it all and it still came back. 

And they tell you about chemo. How they went three days a week for six months and had surgery for a portacath that they still carry inside their body. They tell you how much weight they lost and how many times a day they puked and show you pictures of how they looked without hair. Or eyebrows. And they tell you they love you, and it's hard.

And you wonder if you'll need to do it, too. If you'll have to endure radiation or chemo. And what will happen to your job. And insurance. And how will you pay the bills that are already rolling in from the first two appointments if you don’t have strength to work while you're fighting for your life.

You wonder what your kids will think if you lose your hair. If you're weak. If you're sick all the time. You don't want them to see you suffer. You pray they don't have to.

By now you've heard about hormones and blockers and chemotherapy drugs you can't pronounce; they say you'll need to take them maybe for the rest of your life. The side effects are scary. You wonder how much it'll cost. 

You hear about medical menopause caused by chemo. You wonder if they will take your ovaries, too. You wonder how many surgeries you'll have. 

The survivors talk about how it affected their marriage. Yours is strong but you know that your femininity and womanhood are going to change, and you pray the two of you can embrace it together. He assures you, "in sickness and in health.”

And you weigh your options. Pros and cons. Lumpectomy or mastectomy. You make up your mind, then change it.

And you wait.

And wait.

And wait.

And while you wait, you discover your friends all over again. You see them praying. Cards that make you smile. Spontaneous scripture by text. Gifts and packages of love. Books and devotionals to read. Pictures to hang on your fridge and fuzzy things and candy and blankets and things that smell good. Friends showing up to get your kids home from school. People near and far offering help, love and support. You feel more love than you have ever known. And you're filled with gratitude for your tribe. You can't repay them, not yet. But you'll try someday.

And you hold onto the promise in Romans 8:28

"And we know that all things work together for good to them that love God, to them who are the called according to His purpose."

Calmspirit, I'm so glad to hear that not getting that MRI will not impede your treatment! How are you feeling about your treatment plan?

Almost all hospitals will not release a patient to go home, especially if they use general anesthesia, the same day, at least a good hospital wouldn't. Even when they use monitored anesthesia for procedures that are under 1 hour if they have no friend/family to pick them up and take them home (which happened to me for the port placement and another arm surgery - I begged a friend to pick me up and finally she agreed) they keep you overnight. No Uber allowed until the next day. They should keep you overnight to monitor your recovery regardless of previous Covid policy. The hospital should have enough non-Covid bed space now compared to the times when the hospitals were filled with Covid patients.

In my humble opinion that's insane performing a mastectomy as an outpatient surgery. Especially considering you'd be under general anesthesia. I'd insist that I be in at least 1 night. General is a lot harder to come out of than monitored anesthesia where they give you light sedation that lasts for 35 minutes up to maybe 50 minutes or so.