Newly Diagnosed

A cancer diagnosis is always shocking, so we’re glad you found your way here so that you can ask any questions you may have or read about other women’s experiences.

You’ve been diagnosed with the most common form of uterine cancer, which is often caught early and more easily treated than the other, more aggressive uterine cancer types. But I know that doesn’t make it any easier for you to hear right now.

The time period after the initial diagnosis and before surgery or other treatment starts is often the most stressful time for anyone with cancer. Once surgery and/or other treatments begin, other issues will come up, but at least you feel that you’re moving forward. Waiting is very hard.

Right now you may find it helpful to read some of the posts at What do you wish someone had told you? 

Please come back and let us know when you learn more about what is planned.

I agree with cmb on glad you found us. I think we all would agree with you that waiting is the hardest part. I remember being told by my gyn to call the gyn onc's office and as - as the patient see if they had any cancels or anything earlier for you to get in. It got me in a little earlier and it helped calm me down knowing I was talking with someone who was familiar with the situation and I could ask questions to.

I would suggest when you get in to talk to the surgeon and can ask question, ask if they going to be doing genetic testing for additional information.

I would also suggest being very careful with Dr. Google! He has old data and it can be overwhelming to try to understand if you don't have a medical background.

My final tip would to not be afraid of asking for something to help calm you down. This is a process and it doesn't work at our speed but availability, etc. Please try to take a breath and let us know how it is going.

Prayer2023,

The good news is wonderful! Congrats.

All of the terminology is very confusing. I think you might be confusing stage and grade. Grade is how aggressive a tumor is, stage is how far the cancer has spread. I was dx with UPSC, (uterine pappilary serous carcinoma) which is almost always a Grade 3 cancer, but staged 1a.

I remember the docs telling me that the preliminary dx that I received from the biopsy could be changed when they did the actual hysterectomy, BSO, as that gives them precise information because they examine the uterus in it's entirety, not just a sampling.

Here is a good explainer:

I am sure when you have your next appointment your docs can explain many of your questions. We all start out this journey not knowing very much about our cancers, treatments, etc. but learn a lot as we go along. We are here for you and please let us know what they say.

xxoo

Denise

You of course will make the final decision, but I would wait until there is additional feedback from that cancer team meeting before I ruled anything out. If it were me, I'd want to hear what the consensus was at the meeting and then decide if the side effects from what they recommend would be tolerable.

I have a pretty good idea of what I want regarding future treatment (none), but if the team recommends I do something more, I am certainly open to considering it.

Hello prayer

i was diagnosed with Stsge 3a Grade 2 endometrial adenocsrcinoma back in 2005. I had chemo. They did not do pelvic radiation because of how much I scar but I did do brachytherapy. I had no problems with the brachytherapy.

my best to you