Considering hormone therapy, concerned about lipedema

Thanks to all who post here and who offer support to others – I’ve found reassurance here and I am grateful. I’m offering my story in case it is helpful to anyone. I will try to provide updates and answer questions.

In Feb 2022 I was diagnosed with endometrial adenocarcinoma, FIGO grade 1, p53 wild type, ER positive and PR positive. Within a month I had a complete hysterectomy and was staged as 1B due to 53% myometrial invasion. My doctor had me meet with a radiation oncologist in order to get full information (she told I'd have 4-5 brachytherapy sessions but that if I didn't have radiation then, and later had a recurrence, I would also need external radiation). I also met with another gyn-onc for a second opinion. All agreed that it was my decision to have radiation or not. Given the low chance of recurrence (estimated as <4% as I recall) and the likelihood of short and long-term effects of the radiation I decided not to have radiation.

About a year later, and just a month after a normal check-up, I had an episode of slight bleeding. The doctor biopsied a new growth at the vaginal cuff; the results showed the same cancer as previous and since this was considered a recurrence, radiation was the next step. BTW, I was very glad that I had met with the doctor the year prior since I knew roughly what to expect. I had 25 sessions of external pelvic radiation followed by 4 sessions of internal (brachytherapy). The side effects of nausea and fatigue were pretty unpleasant, but I drove myself to all appointments and continued working, generally full time. I finished four weeks ago and on most days I feel much better.

This week I will have a follow-up with my doctor and we will discuss hormone therapy. I’d love to hear from anyone who has tried hormone therapy for endometrial/uterine cancer and what their experience has been - good or bad. Also if there is anyone in this forum with lipedema, I would be glad to know. There is no question all of the above has caused my lipedema to flare considerably, as can happen with hormonal changes, and I worry that hormone therapy would make it still worse, potentially inhibiting my mobility.

Thanks!