My Journey. Advice? Words of wisdom?
I would like to begin by thanking everyone for providing such a wonderful resource of knowledge and encouragement. I have been reading the forum for hours. You are all a tribute to what a positive attitude and a will to overcome can and will accomplish.
A bit about my history. I just lost my father after an 8 year battle of stage 4 prostate cancer in January of this year. (2023) He was diagnosed after an accident at work that led to a compression fracture in his spine at the age of 58. He soon after his injury lost his ability to walk due to tumors that had wrapped around his spinal column. He had a PSA of 1200 at the time of diagnosis. Over the course of the next 8 years he received multiple rounds of radiation, chemotherapy, hormone therapry, chemo pills, ect ect. He was able to regain his ability to walk after multiple radiation treatments but was always like a baby deer on ice with very little energy.
We lost Dad in January of this year. It has been a very challenging and tough 8 years for not only Dad, but the entire family.
Throughout his journey he explimplified grace and strength. He always had a positive attitude regardless of his pain or situation and put others in front of himself on a daily basis. My father showed me what it was to be a man, and will forever be my hero.
On to my story, which I am still very upset, confused, and scared about. I am a 40 year old man in good health. I have been getting annual physicals for the past 8 years and having my PSA checked (at the objections of my GP as I was too young) due to a promise I made to my father after his initial diagnosis. 2 years ago I had a PSA of 3.81. My GP gave me a DRE and said there was nothing of note at the time. He was not a fan of a PSA of that level so we rechecked it 6 months later and had a psa of 3.37. He then recommended to check it annually along with the DRE exam at my annual physical.
In the year gap from this to current, life sort of got in the way. Helping dad, work, my own family, I neglected to make it to my annual physical. (Poor excuses.....I know. But I am only human after all)
I did make it to this year's annual physical. I am a bit over weight (stress eating ect). I have a weight loss plan in place with my GP. Other wise in very good health. I was also low on Vitamin D (which I have been very tired over the last several months) and am currently on 8 weeks of 50,000 (unsure of dosage) pills of vitamin D supplements once a week. This has helped greatly with my energy. I also had a PSA result of 7.71. With my family history this resulted in a direct referral to the urologist.
The urologist gave me a DRE exam and stated he felt nothing of note. He then scheduled a biopsy. The biopsy occurred on Friday and the results posted online today (Tuesday). Out of the 8 samples taken during the biopsy 6 were negative. 1 showed High grade prostatic intraepithelial neoplasia. (Which after a google search I believe is pre cancerous tissue.....please correct me if I am wrong) The last sample showed prostatic adenocarcinoma with a Gleason score of 3+3=6 and an ISUP score of 1/5 involving 5% of the total tissue volume.
I don't see the urologist again until Friday. My wife is shaken, I am holding strong for her but am worried myself. My plan is to still follow up with the urologist Friday, but I also plan on contacting my GP in the morning to try and get a referral to an oncologist as well asap. After the journey we had with Dad, I do not wish to have my family have to take the same journey with me. I am ready to kick whatever is coming square in the **** and get ahead of this.
If you have made it this far, thank you! I am just grasping, scared, unsure of what is next. I have not seen any experiences so far of men my age that have went through this. (I am sure there are, and I would love to hear your experience.) Along with anyone else willing to share!
Putting this all into writing is oddly therapeutic for me. Please, any encouragement, advice, experiences are greatly welcomed! Again, thank you all!!!
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