Just diagnosed - Endometrial Adenocarcinoma Endometrioid - FIGO grade 1

Hello Carrie,

So sorry to hear your distress. Perhaps you are willing to share more information. On the one hand, a diagnosis FIGO grade 1 is "good" news. We could infer that your type of cancer is the "garden variety" endometrioid adenocarcinoma, and if it's early stage, very treatable...even curable. But when you say you've been diagnosed AND that you've had a menstrual flow for 3 months, that is puzzling. It would suggest you have not had a hysterectomy. Without surgery to remove the uterus (and perhaps ovaries and fallopian tubes), and a thorough pathology analysis, we would say that "diagnosis" is premature. Only the examination of removed cancerous organ(s) can result in a diagnosis that includes the type of cancer, its grade and extent (stage). Do you mean you've had a biopsy of tissue? Did you have an outpatient D&C? I empathize with your concern and acknowledge your fear as your state of mind right now. I would urge you to use whatever coping strategy you might know (deep breathing, meditation, voice-guided mindfulness, physical exercise, etc) to bring yourself back into the moment and not dwell on a parade of horribles. From the info you've shared it might be the case that you don't have cancer at all (biopsies sometimes are unavailing, for example). Next Friday will be here soon, and you'll get more information. Perhaps our intrepid CMB or others will answer and facillitate your access to older posts that could help you formulate the questions you have (and should have) for the oncologist. That might help you feel more in control as you wait. Please do your best to calm yourself and do some things you enjoy over the coming days. Be kind to yourself. If you need this community as the facts and events unfold, this is a phenomenally supportive group. Best wishes, oldbeauty

Welcome lyrical verse. We are here for you. You have been diagnosed with a slow growing type of cell. You won't know your stage until after surgery, but many cases of your low grade cancer do not require treatment. You are younger, and young women tend to have better outcomes from what I have read. The exceptions are worrying, and waiting for surgery is very hard because we tend to think of the worst case scenario. The majority of low grade endometriod cancer, however, needs no treatment. So hope for that. I waited about 5 months for my biopsy! So 3 months of heavy bleeding is not long in the scheme of things. Try and keep busy.

One other thing I like to mention is lymph node mapping. The surgeon can inject dye into your cervix and locate lymph nodes and visually inspect them. The fewer nodes taken, the less likely you will develop lymphedema after surgery, and the less time you will spend under anesthesia, which will be good with your anemia. Ask your surgeon about mapping. The accuracy is very good according to the studies I have read.

It's good you are having your surgery! I DID not like waiting. Good luck on Monday. Make sure you move according to doctors orders. Getting up may be hard, but it helps prevent blood clots, and respiratory problems. It helps prevent complications you mentioned you might be prone to. We are here for you.

Hope the surgery went well. Take good care of yourself

Thinking about you and hope your recovery is going smoothly.

Jan

I was diagnosed on February 28th as well, with Grade 1. My surgery is scheduled April 17 so I am a few weeks behind. Glad to hear your surgery went well!

The waiting is absolutely the hardest part! Having a surgery date is helpful and I’ve already started reading some of the great advice about the surgery and recovery. Thanks for your kind words!