Post Tx B12 & Testosterone Monthly Injections -- WHY??

BeagleDad
BeagleDad Member Posts: 108 Member
edited July 2022 in Head and Neck Cancer #1

Of course, I will need to review with my oncologist, but I thought I would ask around here anyway. My tx ended March of 2021. Doc says I will need these monthly B12 and testosterone injections "for life". Has anyone else dealt with this? I am wondering why these are needed. I am very active (walk 3 miles/day and bicycle 30 miles on a weekend day) and not sedentary at all.

I really do not enjoy having to make that monthly trip to the oncology office for these shots and if I can live a full and healthy life without them, I would prefer to do that.

Of course, if these are required to keep the cancer away, that is a different story ..but if they are only to boost some energy levels or other non life threatening issues, then I am considering stopping them.

Again, I know I need to verify with doc but what do you folks have to say about this?

Thank you!

Don--Beagledad

Comments

  • wbcgaruss
    wbcgaruss Member Posts: 2,464 Member

    OK, Don, wondered how you were doing. Glad you dropped in.

    Don have your blood tests shown a deficiency in B12 and testosterone, if not and you feel good my opinion would be you don't need this. I would check with your doctor though and discuss it with him, maybe you have a particular case in your situation where it is needed. But just to say outright you need it every month for the rest of your life is questionable to me. Just like thyroid or any other levels, we take the meds we need to maintain a certain level. I can go online and look at my blood tests and at each item, it shows your level, and beside it the recommended range it can be between showing low or high levels. So maybe you can too do you have access to your tests look for yourself. See where your levels are at.

    Below is a link explaining the symptoms of low B12 in detail--see if you have any of those--


    Also here is a link explaining testosterone levels--


    I would like to say that In all my medical travails of 3 cancers and numerous treatments was it ever mentioned to me about any monthly injections of B12 and testosterone or anything at all for that matter, nor can I ever remember anyone on the forum here mentioning getting it done every month, nor have I ever known anyone getting it done every month. In my cancer journeys and reading, I think I have heard of people getting B12 and testosterone when needed but not constantly on a monthly schedule for the rest of their life. After my last episode when I was discharged from the rehab hospital to come home they said some of my vitamins were low and I was taking a supplement but once my levels came back up I finished the bottle and do not take any supplements.

    Your case may be different or not I don't know and sometimes these cancer cases can make some odd leftover conditions and symptoms. So be sure and do your research and discuss it with your doctor. Look at your blood tests and levels that should tell you what you need to know, and if you feel good and have no problems, well then you decide yes or no on this.

    Wishing You the Best

    Take Care God Bless-Russ

  • BeagleDad
    BeagleDad Member Posts: 108 Member

    Thanks, Russ. Your words are in parallel with my thoughts. I do go every 3 months for a visit with the doc and they pull blood then. Very quickly after end of Tx my blood word (except white cells) were in great shape and continue to be that way ...now, to be fair ... MAYBE that is due to the shots. :) But, like you, I feel that my blood will hold the answers.

    I'll be asking the doc during my August visit about these things. It seemed weird to me that I should have to have these shots every month. I know you don't "know" me, but energy levels have never been an issue for me. (Expect during tx of course) I have always been fast-paced, multitasking, and bouncing with energy... the kinda kid we called "hyper" back in the day. I am the same now as I was prior to diagnosis. I park 1.5 miles from work and walk the rest of the way - in 100 degree heat or 9 degree cold. I ride my bike at 11 MPH for 30 miles at a time on a weekend day and I repair more scanners during my shift that anyone else in the depot. I just cannot see any of that stopping if I don't have B12 or T shots. Being active breeds activity. Being energetic breeds energy. Just like being lazy breeds lethargy.

    But like you said and we all know here..... gotta go by what the doc says. And I will. But I was interested in hearing from my friends here to see what y'all have experienced and it was good to read what you wrote about not being aware of any others. Thanks for your response and have a terrific day and keep up the good work!

    Don-Beagledad

  • po18guy
    po18guy Member Posts: 1,505 Member

    Another perspective: No B-12 problem here - still take it - but topical testosterone daily. In my case, steroids have done the damage - and continue to. Testosterone, in particular, helps with bone growth and maintenance. I went straight from healthy bones to osteoporosis post-transplant, due to high dose steroids (95mg daily) to control Graft-versus-Host-disease. The steroids have tapered, but the damage remains.

    Of course, one has no idea this is occurring unless you have monthly Dexa scans. As to B-12, you may have decreased production of the liver enzymes needed to properly metabolize B-12. Or, you may have a gastric condition which impedes the uptake of B-12. Possibly, B-12 is directed at a particular condition you have (or developed) as a result of the malignancy or treatment. Sadly, cancer treatment often has more identifiable side-effects that it does primary effects, which is the nature of beast. In exchange, we get to live - but not the same life! Life has forever been altered and the future may not be what we expect. What the future may be, is a more intense, a more deeply experienced act of living. However life turns out, it will remain worth living, because you still love and are loved in return. Love contains both sacrifice and suffering; the peaks and vsalleys of the human experiuence. I/ can only guess, but imagine that lifetime therapy is generally intended to maintain what you have or replace what your have lost - doctor will clarify your situation.

    Having been in 14 years of constant treatment (3 cancers, 5th remission, transplant, anti-GvHD therapy), I find that the journeys to the treatment center have expanded my horizons. I look at them as an opportunity to speak with others, perhaps to share a laugh and even to comfort or counsel others on the journey. In 2008, I did not want to make the 80 mile round trip to the center. DW convinced me otherwise. I have now made that journey hundreds of times.

    I remind myself regularly that one must be alive to have complaints.

  • wbcgaruss
    wbcgaruss Member Posts: 2,464 Member

    po18guy thanks for weighing in here, it is good to get another perspective on this subject. I think it shows that this is not all cut and dried in one answer. Each person and their cancer situation is different and we all have to keep that in mind as we move forward. Some of us may even end up needing special care or monitoring. I along with the rest of the folks on here have been through our share of medications and chemical drugs during and post-treatment. So I tend not to take any more than necessary if possible but if it is necessary I have no problem with it. So like I said Don just do your research and also I would imagine you can start or stop this regimen at any time so it's not set in stone either way.

    Wishing Everyone the Best

    Take Care God Bless-Russ