Bowel obstruction with Peritoneal Cancer

Hi, WIllow oaks,

This is one of your friends from the uterine board!

I visit this page occasionally, but there is never much response here. Like the woman before you hasn’t been back to this site since her post in September 2021.

I started checking this after my second surgery because my final dx was :Stage 11, Fallopian tube cancer and secondary peritoneal. 4 tiny tumors were found in my pelvis.

Information about peritoneal cancer is sparse everywhere. I did a lot of searching online, but mostly found stuff about (primary) peritoneal …not as a metastasis of uterine or ovarian, or even FTC.

hugs, A

Thank you! I’m finding it a hard search as well. They didn’t mention anything but pencil tip size spots we will watch but the peritoneal tumors are extensive they said . My doctor indicated what she plans may reduce or clear some. Others I’ve come across seem to have found ways to continue to live. I’m praying and hoping.. Let”s keep in touch on what we find. Maybe more will see this and weigh in.

Nice to see you both here from the uterine board!

I’ve also had difficulty finding info regarding the metastasis from endometrium to peritoneal carcinomatosis.

I was originally Stage 2 Grade 2 endometrial cancer. 65% myometrial invasion and cervical stroma involvement. Total hysterectomy W/lymph node dissection. 18 lymph nodes all clear. Followed with 28 EBRT/2 Brachytherapy.

Less than 6 months after radiation I was dx with metastatic cancer. 3 lesions (1.7 cm, 2.0 cm and 6mm) abutting various areas of my bowels and a later one showing up on one of my lungs (6mm) Biopsy confirmed endometrial cells.

I’ve just finished up 6 rounds of Carbo/Taxol concurrent with Dostarlimab (possible placebo as part of trial). I’ll then continue with the (possible) Dostarlimab and add oral (possible) Niraparib until disease progression or end of trial in 3yrs. As of last CT 2/14, all abdominal lesions had virtually resolved themselves and the lung spot was reduced to 3mm. I’m hoping my next scan at the end of this month will show NED.

With these positive response rates, I’m less terrified than I was last October, but I’m concerned about the really short time I had before this recurrence and will the next be even shorter?

Meanwhile, hubby and I just booked a cruise for Dec!! So…we’ve got that going for us…lol!

How are you all managing?

TeamT

Thanks for joining us with your update info! Praying the best for you on that NED. It’s good they are starting to investigate more treatments. I hope some prove effective & less harmful than the harsh drugs we’ve all experienced & are soon available as SOC options. All this certainly opens our minds to new habits of getting healthier so our own bodies can handle the treatments plus tackle these awful dangerous cells. A Cruise sounds wonderful. I’m hoping my treatments work around being there for my 2nd granddaughter to arrive. I also have a short trip planned before learning of this reoccurrence…if there is a way …I’m going to still go. It’s hard to find the faith & hope to keep trying to have as normal life as possible…but I’m determined to do my best.

Hope all goes well!

Willowoaks

Hi TeamT!

I'm originally from Ky & considered checking out U of K Treatment so it’s interesting to have you weigh in. My doctor said I’m not a candidate for Cytoreductive Surgery/HIPEC and that no one would do that & insurance wouldn’t cover it. I did ask. Doubt if they do it locally an hour & half away in Memphis where will likely go. I do have a second opinion at MDANDERSON planned for next week. I did my original CT scan, Surgery & preventive trial radiation there. I locally did the original follow up preventive chemo for what was 1A and NED after surgery in Memphis. I will stay local if I get SOC recommendation from both places and not into a more hopeful trial. I will ask about adding Metformin this time & will consider fasting if no one disagrees & I can do it. I’ve used natural supplements to manage sugar that does remain averaging in the low highs above normal range but stays under 7.2. But Metformin may help control this type of cancer spread so I may need to add it and likely drop supplements that might make numbers go too low…though low numbers so far have never been an issue

what did U of K plan for treatment? Were there any trials going on there that I should look into. Have to admit I’m not going to wait much longer to throw what ever I can find at this cancer. It isn’t the slow growing kind.

Sounds like you have a great family around you! I do too but they are all 3-6 hours away in Kentucky, TN & even Washington. I’m basically on my own here with 3 dogs, 2 outside cats & a flock of pond duck & geese.

My granddaughter will be delivered on Apr 26th. She will have a 7 year old big sister. My son will be proposing to his sweet girlfriend officially when her ring arrives in a few months. So maybe there will even be a few more grand children down the road. I’ll do all I can to keep being here for them. Your family sounds much like my best friend Sara’s back in KY. She has a sweet niece that is now her nephew. I don’t really get all this but I’ve always taken people as they come. Last I knew God wants us to respect, love & care for one another….I trust that the God of & that is All Life can handle it and make any other calls about things I don’t understand. Being all I should be is a big enough challenge for me. Congratulations on all those new developments. How exciting life issues. Only after steroids at treatment did my numbers shoot over the 200s range but my natural supplements & diet usually had them down in 24 hours after treatment. Upon learning of this reoccurrence I’ve been using Supplements that mimic cancer treatments & fight inflation…better than just sitting and waiting to start something I hope. I’m using 400mg if Clinical OPS grape seed extract Terry Naturally brand….it’s supposed to target starving blood vessels from cancer cells while rejuvenating healthy ones but interferes when I start treatment maybe so will discontinue it a while before if I do Avastin. I’m taking CuraMed 750mg Terry Naturally brand for inflammation with Curcumin ( I will ask about continuing this as it may assist SOC treatments). I also take BosMec 500 Boswellia (frankincense) for inflammation & black elderberry along with omegas 3/7… and my go to white mulberry & alternate blood boost formula that has various natural sugar controls and vitamins. I will discontinue things that might interfere prior to start of treatment & continue or add any that might help upscale treatment or prevent treatment damage.

Monica

at Willow Oaks

Well several of us have been told we don’t qualify for that procedure for uterine spread to the peritoneal so far. It’s also a 10 hour open surgery procedure & that has its own risk. I like your sense of humor about it though. Sort of feel that way with all the treatments… dang if you do but likely worse if you don’t. Hope whatever is offer puts a reversal on this. I too pray you never need it.

Dogwalk,

Thanks for the tips! I went through two rounds of diverticulitis before this most recent diagnosis and I already struggled with constipation before all of this. Chemo is definitely not helpful that regard...lol!!

Ellemay,

(This is copied from the Colorectal Board, but I thought this board might find it useful as well) 🙂

I am so very sorry to hear of your mother's struggles. You are correct, that diagnosis isn't very encouraging. I have Recurrent Endometrial Cancer that has spread to the peritoneum (peritoneal carcinomatosis). Also, not a candidate for surgery. You asked about other's experience with chemo for this type of cancer. As reported above, every person reacts differently. Personally, I did very well with only constipation (watch out for that, it happened almost immediately for me), neuropathy and fatigue. 

Your mother might also be a candidate for a clinical trial if she is so inclined. When the options become limited, that is something to think about. I have been participating in a trial since I started chemo last November. My chemo ended in March, but I have continued taking oral medication (or placebo) since then. 

Best of luck and please continue to keep us posted. 

p.s. I have been receiving my treatment in Lexington at the Markey Cancer Center at UK. They are right up there with MD Anderson if you want to take a look closer to home.