Anyone NOT recommend reconstruction?

Phoebesnow said:

hi,  I underwent instant reconstruction and I am very pleased with the results.  They are not perfect due to radiation but they never were.  I woke up from surgery had the same cleavage and skin as I did before and it was like nothing ever happened.  I am currently 60 and had the surgery at 59.  I did a lot of research used special creams and potions to minimize radiation damage and followed my doctors orders to the T.  Good luck!  

Thank you so much Phoebesnow for your reply!  That's great you had a good experience! Congrats on your new girls!  I'm sure it gave you confidence?  I decided I am just going to live "flat" and go with double mastectomy w/out reconstruction.  I would might still have to have radiation but will find out after surgery.  I guess I made my decision based on what all could go wrong and NOT what could go right.  That's probably not the best way to decide.  I have one last visit with my oncologist surgeon today to discuss.  Thanks again for taking the time to reply.  I'm surprised there aren't that many people who respond on the site.  I see there are lots of people who read these but don't comment.  Thanks again and the best to you !!

ajfunstuff said:

Feels great to be flat

I went the way of an implant and then removal of it. Only one breast was said to have Stage zero throughout it so I had the one mastectory but when the pathology report stated a Stage One tumor was found when pathology raked through the tissue, I was upset they missed it after having the diagnostics and two biopsies on that side. I was a 40DD. So I questioned that they may have missed something in the other breast since they missed the tumor in the one side. Well when I questioned them, they did find out that the other breast had a Stage One tumor they missed. That's when I decided to get the implant OUT and to have the other breast removed with NO RECONSTRUCTION. I am very happy to be flat. As I say in my book, "Boob in a Box" I used to sing on key but now I'm a little flat. Life is better flat.

Hi aifunstuff!  Thanks so much for your reply!  You made me giggle with your last sentence!  Thanks for that!  I am sorry you had to go through all that you did and that they found extra cancer. I'm sure it was challening with all the procedures and surgeries you had!  I am so happy to hear you are happy with living flat!!  You have a great attitude.

I have officially decided to go flat!!  I feel so relieved.  I had my last appointment with my DR before surgery this morning and let her know my decision.  She was very supportive and considering there was another type of cancer found, she agreed it's a good choice.  I've been trying to find websites for women who choose to live flat...there are a few.  I might start my own website.  Such brave women who reveal their chest in pics and share with the world.  I love it!  I really admire them as I admire you!!      I have DCIS and IDC.  There is also a strong family HX of breast CA. My DR supports patients who choose to not have reconstruction.  She still encouraged me to see the plastic surgeon (which I did do) just so I knew about all my options.  I have an aunt who is knitting me Knitted Knockers!  Have you heard of Knitted Knockers?  It's an organization of women who volunteer and knit all different breast sized knitted knockers:  different colors, shapes and sizes that you fit in your bra and you can take some of the stuffing out or add some in if needed.  Apparently they are super comfy and very light weight.  

Thanks again for your reply!

ajfunstuff said:

Good attitude is essential and the word "tit" is right in there

Yes, Judemo, I have heard of knitted knockers. Never had a need for them and found it liberating to put all the bras in the trash. My boob in the box is in the closet and I bring it out when I give talks at area libraries (pre-COVID) to show people who are curious about whether to go with any prosthetics or not. I have a very talented seamstress I went to who took all the darts out of dresses and blouses to go with my flat chest because I love my wardrobe and it is not always easy to find clothes when you use prosthetics because the bra is not anchored to anything and the knitted knockers or silicone prosthetcs can ride up. That's embarassing! I know they make them for swimsuits but in my book I make fun of that since they could slip out and either become a pool toy or a flotation device.

Hi ajfunstuff!  I love your humor!  Thanks for making me giggle!  I am healing at home after a bilateral mastectomy.  I can't tell you how wonderful it was to throw away my bras!  I don't give a damn about what others will think when they see me now as "flat".  I've gone through a lot to get to "flat" and i'm NOT going to be ashamed of it.  My Aunt volunteers for Knitted Knockers and actually knitted my "knockers" so I think i'll give them a try sometime since she went through all that trouble.  The double mastectomy surgery so far has proven to be a bit challenging, the recovery that is.  While I was in the hospital they had to take me back into surgery to evacuate a hematoma that developed in my right chest after the double mastectomy.  I stayed in the hospital a couple of days.  Initially I was told that I probably could go home the same day, but that proved not to be the case.  How did you deal with the drains?  I still have three drains and had one taken out last week during my follow up appt.  I can't wait to get them all out!!  I found out that I am early stage IDC and DCIS.  They want to start me on Tamoxifen.  

I think it's pretty awesome that you give talks to the public that can help them reach a decision that is best for them.  That peaked my interest in doing the same.  Not sure how I would go about that, but I guess I could contact my local library.  Thanks for volunteering to do that, which in turn, encourages me to do the same.  

Hi Anniemshe,

Thank you for your reply.  I am so sorry to hear about what you have gone through.  That must be really difficult and the fact that it interferes with your sleep is even more stressful.  I completely understand about NOT wanting anymore surgery.  That is why I chose not to get reconstruction.  I am so glad I didn't now.  I am however having issues with seromas and axillary cording and incision problems, but i hope it will all heal soon.  I wish you the best of luck and more comfort and sleep!!  

Good for you Tracyjo! Although I am sorry to hear about what all you have had to endure to get to that point. I am happy you are alive as well! I hope your healing well and feeling better today! I hope you rest and take it easy for a while.

Did you hear me applauding your statement about the PRESSURE woman have to "look complete" or to look "more appealing for men to look at" and the fact that YOU encourage women to learn about "aesthetic flat closure" !!?! You are my new hero. As soon as I put a period at the end of this sentence I will be going to www.notputtingonashirt.org AND to find your book BOOB in a BOX!! Thank you ajfunstuff.

Roopy! Wow you sure have been through “it”!! Really sorry to hear about all you’ve been through. I completely understand how your feeling: just the uncertainty of it and haven’t had that experience before. I would have had to have radiation if I didn’t have my double mastectomy. I was told I needed to take a pill (Tamoxifen) for 5 years. My Dr told me I didn’t need radiation since they “got it all” with the mastectomy. I chose not to take the pill. Has your Dr explained everything to you in a way you understand? Do you have support at home? Do you have people you can talk to about what your going through? I wasn’t lucky with having people I could talk to about what I was going through, so I chose to come here to this website to talk to you lovely people. I wish you the best of luck with everything and I will keep you in my prayers. I hope more people will respond. Sometimes it just takes some time for people to reply.