3 days in Radiation
Comments
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Seige,
I had a feeling you weren't a girl!!
You also reminded me that I haven't been to the bathroom in awhile. I better take some Miralax. Luckily, I haven't had much of an appetite. So, when I do eat, I haven't been eating a lot.
I stated I wasn't going to post on this forum anymore and stay away because there is a user that sent me a nasty PM out of the blue, and nothing warranted the hate from her. AT ALL. I wish there was an option to ignore specific users, as this person posts quite often in many people's posts. One of her complaints was that I talked too much, the irony in those words.
I'm at a point I am starting to really fear the power of radiation.
Since late last week above my clavicles have been swelling. I also developed a rash above my breasts and the top of my arms and back (everywhere where the top of a tank top would not cover me) well, I am starting to think that it may have been a cashmere sweater I was wearing with a mock collar that caused the rash, not sure about the swelling. That is more like edema.
Then, I come to bed last night and wake up and hour later and my whole left ear is numb. The feeling is starting to come back to normal by now, but how does ones ear go numb exactly? I'll have to google that one.
Weird stuff happens. Really weird stuff, as you all already know.
This morning my throat is not killing me, so I'm not taking any pain meds. I don't allow narcotics on board, and I was driving myself (However, I could take them now - I have a driver today) My medication is only 5mg oral with nothing else in it, so I have to take more than originally prescribed. I will have to get something else called in before this weekend. The good part is: I am still able to eat food when I take enough of it, so I time it before my meals. It will be great if I can keep forcing myself to eat solids throughout this whole thing.
Next week is the 5th week. However, again this is another short week of only 4 treatments due to the holiday! taking this to 8 weeks in the nice little radiation machine.
Hope all of you have a great New Year!
-Stephanie
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For the left ear swelling, instead of Googling it-------- why not Tell the Radiation Oncologist whom is over your case? Or a nurse.. That's what they are there for. Tell them about swellings, rashes, anything which may be connected to the treatment.
They want to know all that's going on and the only way they find out, is it you tell them. So, Not Google. Tell your Radiation Oncologist. He or she knows your case. Not google.
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Hello, Siege hope you are having a good day.
I understand your disagreement but I believe that is the standard protocol from many providers that when you are going through constant pain that doesn't let up because of cancer treatment or a major accident or major surgery recovery and they know it is not going to let up until a certain treatment or recovery point is reached the pain is going to be there and for a period of time you should stay ahead of it for the best comfort for the patient. That's why they make fentanyl patches.
Fentanyl patches are used to relieve severe pain in people who are expected to need pain medication around the clock for a long time and who cannot be treated with other medications.
And there are many other medications for pain also, I know one that helped me a lot was liquid hydrocodone. In my last cancer/hospital stint I had fentanyl patches on and sometimes an added med when that didn't cut it. As I recovered I eased off the patch and dropped meds as I could and once through the ordeal quit taking anything for pain as it is not needed anymore.
Yes, I agree it's your journey you may do as you please these are only recommendations on a forum from people that have experienced these situations. As far as the effects of oxycodone yes it can cause problems and the patient has to be aware of it and for the period of time the pain meds you are using may also require you to use things like OTC laxatives or antidiarrheal medications to help you through this period also. Many of us in our cancer treatment journey have had to deal with constipation and diarrhea and many other things but it's part and parcel of this treatment and you deal with problems as they come up using what you have to use to get through this brutal treatment. And yes there is a risk of addiction with pain medications and it is just another possible risk and hurdle in this treatment regimen to be aware of. We as a patient have to be diligent in our treatment regimen and be aware of what meds and treatment do and help by being knowledgeable and communicating well with our care team. And we are here to help folks do this as best as we can and as best they can using the experience and knowledge we have gained from being in a situation we never dreamed for a minute we would be in. So use what you want and ignore the rest, your choice.
Sorry about the girl thing I was just generalizing and didn't give it much thought, so to you sir I extend a heartfelt apology-Wishing you the best-Take care-God Bless-Russ
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Steph, I haven’t been on here for a long time nor did I expect to post. I just looked and started reading and your topic was at the top of the board after SuperThread and the other (I’m glad those are there). The reason I logged back in is because you have vocal cord cancer and so did I at age 47 (now 51). I counted up to the halfway point in treatment numbers and then started to count down until they were finished. At the 3/4 mark I was toasted and could not wait for #1. I made it, and I’m crying as I type this right now. Russ said it may have been or was the toughest thing he’s ever done. It is survival mode and the most difficult thing I’ve done.
I don’t have any tattoos except for a little dot on the center of my chest that the rad techs used to line me up with before they left and turned on the zapper. They had different music playing in the radiation chamber, usually it was the song “radioactive”.
My tumor was very close to the center of the V of my vocal cords. The radiation changed my voice forever. There have been musicians and other folks on here that helped keep me focused in the right direction. CivilMatt even said if you can croak like a frog and people understand you, you’re good (not an exact quote).
Stay focused on finishing.
Seige
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Hi Russ, Thank you sir, It’s a beautiful day, a great day to be an American. You have your opinion on meds and I have mine. Some professionals say one thing and others another. Have a good night.
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One other thing for today, if you have seen
OKCnative on here, he is someone I paid attention to his posts.
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Thanks buddy.
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Steph, do your own thing to get through. If you can pick up a couple things in this network that help you in your journey that’s good.
Russ, I love your contributions and your continued support of cancer patients. I appreciate you and the time you spend to help us all.
Happy New Year.
God bless you both, Seige
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