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Don't worry about it... Its a minor thing.

Did you read my new entry?  I just got my new culture results, and its really really bad news.  This infection has given me Sepsis, twice in the past. Its an Opportunistic infection that strikes people like me who are seriously immunocompromised, and I well remember how hard it is to get rid of. It requires intravenous antibiotics, usually at least 2 different types, depending on what its resistant to.

In June, remember I had a Drug Resistant strain of E. Coli in both my lungs, .  E. Coli comes from the gut. I had somehow aspirated my stomach contents.

Well, this Klebsiella Pneumoniae , which I now have  again in my lungs --- it also resides in the intestines and in feces. So how the H is it again in my lungs...??? First E. Coli and  Klebsiellaa just months later.    He said he wants blood work done... Yeah, things will now get interesting..

Actually, in June in the Cancer center hospital, they told me they were sure that I had a Second opportunistic infection, on top of the E. Coli.  Why they thought that was the appearance of my CT scan Chest....  It was extremely abnormal.  Then I had the Bronchoscopy .

Since then my lungs have not been clear, not once. Every doctor and oncology nurse who has listened to my lungs has heard a variety of lung sounds. Never once have they been clear...

I told my mother 2 days ago that my Fatigue level is sky high.  My Oxygen Saturation is really low at times...

Now I know why, .. More pneumonia.  

I posted the sputum culture results on my post, earlier..   

Don't fret over Insignificant things like this hacking/ spam problem. It will be fixed.  Doesn't concern me...

Little crystal.  Trying to fight back with only 71 pounds of force/ impact.  .........

Dear Russell,

Yes indeed, I have been reading of your challenges, in just now getting started in treatment. Please know I'm thinking about you... My initial diagnosis too was delayed because oral surgeon, dentist, and a long time doctor failed to pick up on what was going on. Then the final one that blew my mind was the doctor who refused to biopsy a large lump, and in his confidence ( and arragance) at the time made a huge mistake.... By the time I got to my ENT surgeon for biopsy, it had grown Hugely.  That primary tumor was 6.3 Centimeters long, on day of Surgery. Actual tumor size.

The doctor who refused to biopsy it, later apologized... And I know he learned a hard lesson.

I am getting ready for tomorrow, an all day infusion in the Cancer Center hospital.

Please keep us all posted on everything that's going on as you get started in your Fight.  I feel sure that you are strong and ready to begin!!  We are behind you and we Know how difficult, demanding and unpleasant it all is.  But everyday, you have to get up, and  continue to make more strides Forward in completing the treatments.... There's no alternative.  You have to be very determined, with the goal in mind.

Please take care and keep us posted !

? Crystal

Oh, dont worry... I will get through.

I just now finished a breathing treatment with the Vest ( I'm now " all shook up!") And simultaneously my 3 nebulizer drugs.  

I am packed for tomorrow in the hospital and its just my regular infusion. 30 Years this year I've been doing these infusions Every single month. For my immunodeficiency... I know exactly how I will feel afterward ... ( ichy and achy, tired), so I just plan for it.  And lots of people know me, so its a friendly place.

Waiting on Dr. Meier to call me..

How is your Occipital pain?  And most importantly what about your thyroid malignancy?  Are they deciding on surgery for it?

Keep us up to date!!

Getting up at 4:30 am tomorrow, so I need to finish up..

Take care,

Crystal