How long have you survived

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  • Almost70now
    Almost70now Member Posts: 37 Member
    edited June 2021 #22
    11 Years

    I was diagnosed with Follicular NHL on June 16 2010. Relapsed in 2013 and again in 2016. Last check up everything looked good! Never give up! Since 2010 I've been blessed with a granddaughter, grandson, and 3 great grandsons. Life is good! Love, Sue.

  • Janet of Georgia
    Janet of Georgia Member Posts: 2
    edited June 2021 #23
    Probably 10 Years since I first got it

    I wasn't diagnosed until my second sinus surgery in 2013 and went through 6 months of intense treatment, including radiation.  The ENT after my first sinus surgery in 2012 missed where the pathologist suggested I be retested.  New ENT found out I had it from that biopsy from the second surgery.  I probably first had developed it with the first horrible sinus infection in 2011 and it took me a year to get myself to the ENT.  Its Stage 2 all contained in the sinuses by my nose.  Was in remission for 2 1/2 years.

    Had a recurrence in 2017 and went through a year of infusion and pill treatment.  We couldn't get rid of it all and chemo caused me a lung blood clot, so we decided it was reduced enough and I went off of treatment.  I went for 6 month PET scans and MRIs for a while, but am now on an annual PET and MRI schedule unless or until something else turns up.  I try to tell myself it is as close to remission as is possible for me right now.  

    So I deal with the pesky side effects but try to live life as fully as possible and as normally as possible.  Glad to have found you all here on the CSN site!!

  • Janet of Georgia
    Janet of Georgia Member Posts: 2
    edited June 2021 #24
    lindary said:

    update

    Last week I had my 'every 6 month' cat scan. Today I saw my oncologist and she went over the results. It was very short, no change since previous scan. So now I go on the 1 year plan and won't see her until next year.  YEAH! 

    A wonderful feeling.  Yay!!

    A wonderful feeling.  Yay!!

  • RachelF
    RachelF Member Posts: 7
    #25
    33 years (since 1988)

    Hodgkin's Stage 2 nodular sclerosis. Splenectomy, laperatomy, tumor removed from my neck, and I had a softball sized mass next to my heart.

    My souvenirs are a lengthy scar from breastbone to pubic bone and four tattoo dots for the RT alignment.

    LOTS of radiation was the norm in those days: to my entire torso from jaw bone to hip bones.

    Somehow thriving in spite of it. I don't visit this site often enough, but feel it's the only place I'll ever find folks who understand what this journey meant.

  • Kumari
    Kumari Member Posts: 2
    edited October 2021 #26
    Lymphoma TCell cancer

    I was having a cough that got worse for almost a year went to many doctors did not get the right answers when finally my General Physician had a scan done when I went there with a soft lump under my left shoulder and breast. She saw the lymph nodes were swollen and iimmediately A QQqsq and  sent me to an ENT Oncologist and he did a biopsy and he was the one who said I have lymphoma BCell. I am currently going to MD Anderson, Houston, Texas under their study chair Dr. Swaminatha Iyer. I was diagnosed with TCell. Just completed my second chemo and have noticed lot of change. The soft lump under my left arm and breast have gone so also most of the nodes behind my neck. No taste but forcing myself food at least three meals. Hair sure has fallen, trying to keep myself occupied knitting and sewing. Nice to read everyone's experiences and feel positive. God Bless. Has anyone with TCell lymphoma done stem cell? how do you feel after the stem cell? how many months remission?

  • Kumari
    Kumari Member Posts: 2
    #27
    tgyphilly said:

    25 years...

    ...not counting a relapse in 2018, and 2020, and probably again now.  Scan scheduled for Weds, but all signs, including return of really annoying itching, point to #4.   NLP Hodgkin's should be re-named Cockroach Hodgkin's, because it can withstand all sorts of chemical and radioactive abuse.  

    So, that leads to my question -- how many relapses have people had?   

    Stem cell

    Just a question did you do stem cell or just the chemo treatment. I am trying to weigh the pros and cons of getting stem cell done. 

  • jaradx1467
    jaradx1467 Member Posts: 2 Member
    #28

    Hello All -- New to the forum, but I've been in remission for 6 years now!!! Still can't believe it's been that long, everything still feels like it was just yesterday.

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