Checking back in to the board

Kangaroorex
Kangaroorex Member Posts: 47 Member
in Kidney Cancer #1

Hi to everyone, I have been away from these boards for a while and thought i would check back in.  i was diagnosed at aget 46 in 2014 with stage 4 RCC and a 18cm tumor in my kidney and 2 additional tumors in each of my adrenal glands.  Since then i have had a radical nephrectomy and went into a trail for one of the PDL-1 therapies.  that worked for 18 months with no growth and since then i have been slowly working my way through targeted therapies (3years on Sutent, 18 months on Cabo and a brief miserable experience with Enlytia)  Cabo started to wear out its welcome so my doctor currently has me on Opdivo with the possibility of additng Cabo back if things show progression.

All-in-all i have learned to live with it and continue my life.  I still only have the one Met in my remaining adreanal gland, although the gland still functions.  wating to see what this treatment does and then onto whatever will be next.

Comments

  • lobbyist0724
    lobbyist0724 Member Posts: 515 Member
    #2
    Thanks for sharing your

    Thanks for sharing your journey, the fight with RCC is all about time, the longer you stay at the war, the more weapons (drugs) will become available. Take care!

  • Supersum
    Supersum Member Posts: 109 Member
    edited August 2021 #3
    Treatment options sure have

    Treatment options sure have changed over recent years. Best wishes for continued successful management without any troublesome side efffects.

  • stub1969
    stub1969 Member Posts: 985 Member
    #4
    Heck of a ride

    Thanks for checking in and sharing your journey.  By doing so, you've helped a lot of people.

    Take care!

    Stub

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