S/P TAH BSO= Status post total abdominal hysterectomy bil salpingo oophrectomy

Bluebird and Tamlen, Thanks to both of you for speaking up. 

Love and Hugs,

Cindi

BluebirdOne said:

Thanks, Cindi, Tamlen, Deb, Alicia

I see our group as kind of a holy space. I am not at all religious, respect those who are, but this is how I see this place. Holy because we can look back at our sisters, those who made it, those who didn't, those who continue to fight with a great deal of love and admiration, and having it sullied by someone seemed just not right. 

xxoo

Denise 

I'm grateful to those who have gone before, and we are going to do everything we can to honor those ladies, including so many this disease has claimed. 

Therefore, I will respect this space! I'm clinging to the knowledge and experience. 

unknown said:

All tests negative

Hello, I am sorry you guys are not into natural alternative treatments. But I am, and I will share with you I had a rare form of AGGRESSIVE CANCER, LARGE CELL NEUROENDOCRINE CARCINOMA. I went to Florida Cancer Specialists in Brooksville Fl. Had a CA125 and a CEA drawn, both negative, PetScan/Catscan done today, negative. What did I do for my own treatment, I took sodium chlorite 3 drops every hour x 8 hrs for 2 weeks. I used my hydrogen AquaCure machine at night and drank the bubbled water it produces called Brown's gas and electrically expanded water. My surgery was done June 28th......I am grateful to the Lord I am cured. Take good care .....April

Many of "[we] guys" are indeed into "natural alternative treatments," and your approach at criticizing others in their treatments and then promoting the Magical Hydro Bubble Machine Cure reads like a sales pitch. I have reported your post as such to CSN. 

Specifically, the companies agreed that Florida Cancer Specialists would not offer radiation cancer treatments in Southwest Florida and that the unnamed company would not offer medical cancer services, according to the Justice Department.

The Justice Department referred all questions to the U.S. Department of Human Services, which is charged with policing health care organizations. When asked for a comment, HHS released a statement noting that health care organizations misusing the funds face financial penalties.

“Failure to comply with any term or condition is grounds for HHS to recoup some or all of the payment from the provider,” the statement said.

BluebirdOne said:

So which is it?

First of off you came here stating you have "high grade endometrioid adenocarcinoma FOGO grade 3", now you come back stating you have "AGGRESSIVE CANCER, LARGE CELL NEUROENDOCRINE CARCINOMA".  What is next? Glioblastoma? Bone cancer? I guess you can just make it up as you go along. Second, a CA125 does not give a negative reading. It is a numerical reading, never positive or negative. CEA test is not even given for endometrial cancer, and is not expressed as a positive or negative, it is numerical. Scan results are not expressed as positive or negative, they simply report what they see. You must think we are a bunch of idiots who just swallow your lies.  This is a board for serious, honest people, women actually suffering who have to look at these posts and see easily disproven lies. Sadly, managment does not allow me to express how I really feel about you, but suffice it to say you fool no one. 

This information does not tally.  The CA 125 caught my eye too.  

Dak82 said:

Wow!

You ladies were on top of this scam! I have noticed that FB pages are full of discussions of alternative treatments primarily in the form of supplements to enhance various treatments. Always do your own research! Really? Bubbly machines?

Cheers,

Deb

But I really don't do sugar like that anymore, of course! Seriously, I've researched the bubble water machines, and someone is definitely trying to make a sale here. I am not persuaded. Sheesh! You can't BS a group of women as knowledgable as those in this site. We've done our homework, and then some. 

Well, this fraud sure is good for a laugh now, isn't she? Some of your responses to her are a hoot!