S/P TAH BSO= Status post total abdominal hysterectomy bil salpingo oophrectomy

Sorry to read about your diagnosis.  I am also an RN who had cancer cells confined to a polyp.   My diagnosis is serous endometrial  intraepithelial carcinoma.   Did your GO tell you your stage?  It sounds like you had no residual malignancy in the hysterectomy specimen.  Is that right?  You can read my story if you click on my name.  

It is really different being the one TOLD you have cancer.  I was shocked at how I felt, and did not know how my patients probably felt.   I am just 3 years out now.  Do you have other questions?

Sue

MAbound said:

Am I understanding this right?

It sounds to me like you are first being sent to a GO after your surgery. Is that right? The cancer found was a surprise?

It sounds like you know the type and grade from the pathology, but I'm not seeing that you were staged or had any sentinal lymph nodes taken for pathology or a pelvic wash and now they are sending you for a PET scan to look for any cancer that may have been missed because the surgery wasn't done by a gyn oncologist?

If that is the case, I would be a bit concerned about just having radiation for a grade 3 tumor, even if it is adenocarcinoma rather than one of the more aggressive types. Radiation only treats what it is aimed at and even a PET scan is no guarantee that they'll see anything microscopic whereas chemo is a systemic treatment and more likely to get stray cells. If nothing else, getting second or even third opinions about how to proceed under such circumstances might be prudent if the cancer found by the pathologist was a surprise.

We're always concerned when someone other than a gyn oncologist does the surgery, because they are the ones who have the specialized training needed to handle the tissue in a manner to guard against cancer cells escaping into the body from the tissue removed during the procedure. I hope I'm just not understanding your circumstances, but wanted to make you aware of those concerns, just in case. Have they saved your tissue in case it's needed for other testing?

There is no stage yet.  Sometimes the gyne oncologist wants to follow up with staging surgery.   And I don't think MRI is the best imaging to find any other lesions.   Incomplete staging at this point.    Wait for the consult results.  So far so good.  At this point, the next step with a Gyne oncologist is a good one.

MAbound expressed my concerns better than I could.  Do clarify for us, wisegal

alicia2020 said:

Hi, Wisegal

I'm glad you found us, sad as we are that you needed to come looking.

I know you want to be optimistic, but I'm a little confused about exactly what your situation is and agree with these wise women who have already responded. Tread carefully with diagnosis and treatment! I'm one of the unlucky women who had to have two surgeries. Hysterectomy first and then a staging surgery. I think the PET can be very helpfu, but I think most of us worry that if you didn't have staging, that no one can really put together the most effective treatment plan. If my GYN ONC had not gone in for the second surgery, I would not have had the benefit of "optimum debulking," have had 4 tiny tumors still growing, and would not have known that all lymph nodes were OK. Hard as the road has been, I believe it's what's allowed me to recently declared as in remission. 

And you probably know this, but it IS very important, that the grade 3 cancer is a very different animal than the lower grades. So it's very important to get your treatment right originally to prevent any recurrence.

We're here for you! Ask anything you like! Hope the PET results are good!

?, Alicia

 

Many of us have a somewhat "reserved" trust of the western medical machine. Having to go back in to do staging or debulking is stressful and can be worrisome.

Alicia, in particular, you've been through this and again, I've read your story many times to glean information.

It seems to me that Wisegal may have gone in for a hystrectomy BSO (bilateral salpingo oopherectomy) because of a symptom? Maybe she was bleeding?

Some material was removed and biopsied, which she expected and anticipated?, but now it's showing up as high grade? 

Perhaps a gyn onc did not do the surgery, but now she's being sent to one for information, advice, staging surgery? That's what I've surmised. Could be wrong!

Okay, let's keep an eye on this thread! Wisegal, you are surrounded by love and friends here. I think it's possible to both choose not to "go there" and get wrapped in dread and worry, but also to be mindful and aware of all the floating variables, particulary as you become extremely knowledgable about how other women have approached their treatments and therapies. You are focusing on health and holistic healing, all good. Just listen and learn, and we will follow your story. The elders here will advise you. 

unknown said:

Just enjoying life one day at a time

Hi everybody, I am just doing research and using my aquacure machine.....focused directly on my pelic area.....lol...high dose hydrogen gas.....I also use 28% sodium chlorite. Both of these show strong positive results in eliminating diseases, all of them. I appreciate everyone's beautiful stories and love....hope to go to PET scan with nothing to show

I am doing the intermittent fasting and today I woke up in ketosis, was so happy....I have about 30 more pounds to lose.

Once I am able to get physically active again,(I am 3 weeks post op) I will be back on the pickleball court getting my Vit D....and golfing. I feel like I could play now, no pain, good energy etc....can drive July 26, Monday. Surgery was June 28th. I see the non gyn onc whose office is practically across the road on Monday, but in his group is a female gyn onc 45 minutes away....I have asked that they share me.....

Anyone heard of a thermogram....kind of better than mammogram as no radiation, nor flattening of the breast. Do you ever wonder why this is not covered by insurance as it detects anything way sooner and could be used in conjusnction with mammograms. So many natural treatments not covered, forced to pay up or take the harsher treatment for free.....we need life to be fair.

 

Thanks sista's.....see you out there, love long and prosper!

 

But just to be fair, there is no scientific evidence that thermograms detect cancer, so there is that.  i will stick with a yearly mammogram.  

https://www.fda.gov/consumers/consumer-updates/breast-cancer-screening-thermogram-no-substitute-mammogram  The whole artilce is quite interesting. I had never heard of thermography before. 

The FDA has taken regulatory action (including issuing warning letters) against health care providers and thermography device manufacturers who have tried to mislead patients into believing that thermography can take the place of mammography. To protect the public health, the FDA’s regulatory actions can include scheduling a regulatory meeting, sending a warning letter or other correspondence, conducting an establishment inspection, or other actions as appropriate.

I was very interested in what you wrote, Tamlem, so I did some Googling and found that just today both the Seattle Times and The New York Times have headlines and articles about Mercola...both titled, "The Most Influential Spreader of Coronavirus Misinformation Online." So, he's apparently more than just a part of the "Disinformation Dozen," he's a ringleader.

❤️, Alicia