Squamous Cell Carcinoma of the Ear Canal

I am a 12 year survivor of Nasophylangeal Cancer with metatsis to the lung.  I have also had a bladder cancer and been cancer free for four years up until a week ago.   I was experiencing some wierd stufdf in my right ear and my ENT doctor found an agreesive growth in the far inner portion of my ear canal.  Biopsy confirms squamous cell carcinoma and today I am having a CAt Scan and a MRI done to determine scope of the tumor.  The technocal terms used is "SCC of the EAC" and is consdiered a post-irratiated tumor derived from extensive radiation treatments for the NPC.  As this is pretty rare situation I am hoping to find other like patients to get a better understanding of the symptoms and expectations goping forwrd.  My doctor is very forth coming =, but I want to hear it from those with first hand experience.  All the medical reserarch I have done is not very encouraging for outcomes, although vary from drastic surgery to well, you know.

Please respond if you or someone close to you has gone through this particular cancer.  Thank you!

Comments

  • wbcgaruss
    wbcgaruss Member Posts: 2,482 Member
    I Do Not Know

    Anyone who has had what you are describing in the inner ear. I can't recall any postings on the forum about it either but I could have missed it. I Am sorry you are faced with this and I hope you find some answers. I pray your medical team can work you through this with a successful outcome-Take Care-God Bless-Russ

  • fstetson
    fstetson Member Posts: 3
    edited April 2021 #3
    wbcgaruss said:

    I Do Not Know

    Anyone who has had what you are describing in the inner ear. I can't recall any postings on the forum about it either but I could have missed it. I Am sorry you are faced with this and I hope you find some answers. I pray your medical team can work you through this with a successful outcome-Take Care-God Bless-Russ

    Thank You

    I cant seem to find anything online as well, a couple of articles at best.  I appreciate your well wishes, Thank YOU!  God Bless you as well

  • wbcgaruss
    wbcgaruss Member Posts: 2,482 Member
    edited April 2021 #4
    Well I Did A Search

    And here is the link https://www.google.com/search?client=firefox-b-1-d&q=SCC+of+the+EAC  seems like a lot of info can be found but I didn't find any personal accounts from anyone. Take Care-God Bless-Russ