Have I pissed of the universe?????

Dear Fluff., I'm so very sorry, to read of what you have been through!   I always read your posts to see how you are doing!  Bc I'm also a endometerial cancer survivor. Too!   Stage 4B Figo 2.    Dx June 2018.  Had chemo hysterectomy more chemo,  I'll be NED. 2 years. As of April 18, 2021.  My cancer is also hormon4 driven.  ER PR +.  I've been on letrozole ince April 2019. side effects. Weight gain, and hair thinning. So not great, MY Onc claims. That they all have same side effects. ,  not sure i believe it !  I just wanted to tell you that my ??? are for you! As you fight as a cancer survivor !  You have been through much more than I have,  my heart ❤️ just goes out to you!  Please continue to keep us posted. As I continue to pray that you can put on some weight,  and feel healthy. !   Sincerely. Yetti?

I have been wondering how. you are doing.  I wonder if medical marijuana would help. your appetite.  Meringues are protein and sugar and so light I wonder if you could tolerate them.   And I thought of you when I read that article mentioned that succeeded in reducing serous endometrial tumors by a third.  In the US we have a right to try law.  I wonder if Denmark has such a law.  I cannot see any reason in the Universe.   I am so sorry to hear about your difficulties.  I am glad you have come here to share your problems.  Hugs to you.  

Fluff...what an awful time you are having! I feel so bad for you...wish I could say something that would help.

You did ask about the stoma. I had a temporary one for about a year. It was the result of sepsis and not cancer related. Is yours temporary or permanent? I didn't  like having it, but learned to live with it. Learned what to avoid eating...that was for sure, and dairy products were one of them.

In reference to the need for protein and gaining weight...I had to take in roughly 100 grams of protein daily in order to recover from my sepsis related surgery wound. I also need to maintain a high daily intake due to my 2015 weight loss surgery.

I found protein shakes at Amazon under the brand Cellucor. You can mix them with almond milk, sherbert, ice cream or even water with ice cubes in the blender. You can also use the powder in baking...if you were able to eat...like the chocolate flavor in brownies, the peanutbutter flavor can be mixed in with peanutbutter and put on toast or a muffin, etc.

I hope the dietician can recommend ideas you may not have tried to help you eat and ENJOY as it really sucks to not be able to do the very basic things in life...especially when they are crucial to you feeling better.

My thoughts and prayers are with you that things turn in a better direction very soon. Enough is enough, right?

My prayers are always with you. I come here all the time to see how you're doing. I was hoping your lymphedema was better.

My uterine cancer was easy and for my breast cancer I was only really sick in December after Adriamycin, but Taxol was easy. I've lost my interest in food now that I'm finished with Taxol (and I'm a foodie), but I go on eating because it is required that I keep my weight.

Can you make a full menu for the whole week with different things you could eat and start early in the day, eating five small meals a day? I don't do it with joy anymore, and I even try to forget that I'm eating, while watching a movie or some online class. I take a long time, but I finish my meals.

I remember when I got really sick in December, my boyfriend would make sure I had a small breakfast at 7am (no more waking up at 10am) so that I had time during the day to have five small meals. By 10am he would make me eat some fruit, by 1pm I had a cup of soup in front of me, or a peanut butter sandwich (less jelly); by 2pm he would make me healthy muffins or give me a piece of chicken with scattered vegetables so that I wasn't overwhelmed. And I would end up eating fruit popsicles at 6pm while watching TV. It was a lot of work, but it worked. And of course, it's easier when someone else is providing the meals. I'm not sure I would have had the strength to make all that myself, even though cooking is my whole life.

Keep us posted about the nutritionist. I have to admit that at some point, I didn't listen to mine anymore because she really wasn't in my shoes. I just ate what I could because it's better to eat something than nothing at all.

Oh Fluff! I hate hearing about what a rough time you've been having, but good for you for getting mad about it and channeling that towards not giving in to the beast. It's the beast that's pissed off, not the universere, so keep up the good work!

I know you are taking Tamoxifin, but has anybody discussed you taking Megace? It's a type of hormone therapy indicated for advanced stage hormone sensitive cancer and appetite stimulation. Besides inhibiting the cancer, it has the side effect of stimulating appetite and promoting fat cell production. It can make controlling blood sugars and blood pressure harder if you have issues with those two conditions, but otherwise it is relatively safe to take. It's not effective indefinitely for holding back the cancer, as our dear Cheese Queen experienced, but it could help to make things better for you for awhile. I noticed that I slept so much better during the 18 months I took it ....I miss the uninterupted, dreamless sleep I experienced for the 18 months while I was on it. It won't cure you, but it may give you some relief for a while.

((Hugs)) to you.

Primavera!!  Give that boyfriend of yours a hug from me! He's a real hero!

I'm so sorry you are struggling with so many issues.  I pray that relief will be your's soon.