neuroendocrine/carcinoid

BellaSusie
BellaSusie Member Posts: 3
in Rare and Other Cancers #1
Hello, I recently was diganosed with a carcinoid tumor in my face. It went from my lung to my faced. The area where I live is totally incompetent they played with my life since Feb this year. Then I went to FoxChase Ctr in Phila they did the same thing. I just found this site and I'm tryhing to find out where I can find a competent doctor. If anyone has any thought it would be apreciated. Does anyone know someone who has carcinoid in their face? That would be a big help.

Comments

  • mr steve
    mr steve Member Posts: 285
    #2
    OSU
    Bella Sue,

    My wife has been getting treatment at OSU. Our local Onc recommended OSU or M D Anderson in texas, although hers is islet cell.

    Steve
  • Irishlucky1
    Irishlucky1 Member Posts: 4
    #3
    BellaSusie,
    Hi,
    I have
    BellaSusie,

    Hi,
    I have Carcinoid lung cancer and am being treated at Dana Farber in Boston. Fantastic care facility filled with great caring people and on the cutting edge of cancer treatment. I know that's pretty far from Philly so here are a few of the PA area docs listed on the Carcinoid Cancer Foundation Website. It is a great site for info @ http://www.carcinoid.org/

    Good luck and keep moving forward!

    Douglas L. Fraker, MD (Endocrine and Oncologic Surgery)
    Endocrine Surgeon and Surgical Oncologist
    University of Pennsylvania Health System
    3400 Spruce Street 4 Silverstein Pavilion
    Philadelphia, PA 19104
    Website
    Tel: 215-662-7866
    Tel: 215-615-5858 (appointments)
    Fax: 215-662-3629
    Email: frakerd@uphs.upenn.edu

    Harold A. Harvey, MD (Medical Oncology and Internal Medicine)
    Medical Oncologist
    Penn State Hershey Cancer Institute
    500 University Drive
    Hershey, PA 17033
    Website
    Tel: 717-531-8678
    Tel: 800-243-1455
    Fax: 717-531-5076

    David C. Metz, MD (Gastroenterology, Internal Medicine)
    Professor of Medicine
    Perelman Center for Advanced Medicine
    3400 Civic Center Boulevard South Pavilion, 4th Fl
    Philadelphia, PA 19104
    Website
    Tel: 800-789-7366

    Michael C. Soulen, MD (Interventional Radiology, Radiology)
    Professor of Radiology
    Penn Presbyterian Medical Center
    51 N. 39th Street Division of Interventional Radiology, 4 Wright Saunders Bldg
    Philadelphia, PA 19104
    Website
    Tel: 1-800-789-7366

    Weijing Sun, MD (Hematology- Oncology)
    Associate Professor of Medicine
    Abramson Cancer Center
    3400 Civic Center Boulevard Perelman Center for Advanced Medicine, West Pavilion, 4th Fl
    Philadelphia, PA 19104
    Website
    Tel: 800-789-7366
    Peter N. Waybill, MD (Cardiovascular & Interventional Radiology)
    Vascular Radiologist
    MSHMC Vascular & Interventional Radiology
    500 University Drive
    Hershey, PA 17033
    Website
    Tel: 800-243-1455
    Fax: 717-531-4445
  • tdbowers
    tdbowers Member Posts: 1
    edited November 2020 #4
    Doctors who specialize in carcinoid

    I have never known of anyone with carcinoid on the face.  However, I suggest that you contact Mayo Clinic as they have some excellent carcinoid specialists there.  Mayo has three different clinics in Minnesota, Jacksonville, Florida and Arizona.  Here is a link where you can find out about an appointment.  http://mayocl.in/1mtmR63

    Have you had surgery or any other treatment so far?

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