Uterine Biopsy and delayed bleeding???

Is to be examined.  Good plan to be seen today

Elia, have you researched a gyn/oncologist? If you decide to get a second opinion on this whole situation, you may want to consider having that opinion with a gyn/onc.  I'm not saying that because I think you have cancer.  I just think that more opinions are better, and you may as well have an expert opinion.

Elia111 said:

Yes I have already called a

Yes I have already called a gyn/on . They said I need a referral so I am going to see what this new doctor says on Monday. I am at my wits end. I have been up all night GUSHING blood. I am crying and frustrated!!! Why, in 2020 in America, can a woman not get the care she needs!!! We have good Insurance. I just don't get it!!

If you have been up all night gushing blood then it is time to go to an ER or an Urgent Care at the very least. Your doctor would probably advise the same because they wouldn't necessarily be able to stop such bleeding in the office.

Elia111 said:

Update post *new doctor, more questions

So I received my biopsy report. Thankfully- all normal. Am I relieved? No. I know from extensive research that in-office biopsies are not fool proof. 
Yesterday was my appointment with a new doctor just to get some differing opinions. Surprisingly he agreed with the former doctors course of treatment and disagreed with my argument that the in-office biopsy isn't reliable. I was confused to say the least. I do however like his bed side manner much more. He is thourough and not dismissive like my former gyn , so I am going to see him from now on. 

So his suggestion to me were my options of hysterectomy (due to the still extreme flows and large ovarian cyst on an ovary) EA, or hormones. I can't do hormones due to my migraines , so I'm left with the decision of going through the hyst and being 100% sure if anything was there it would be removed , and if there WAS something undetected from the Endo biopsy, an ablasion could result in spreading cancer! 

I realize that this is probably no longer the right board for me to be on, but I just wanted to post my update in case anyone out there was experiencing the same as me. Thank you to all who've helped me, and I sincerely hope and pray for positive outcomes to each lady on here! Xo

From: https://csn.cancer.org/node/321235

"The risk factors for endometrial adenocarcinoma are:

1.) Hormone imbalance.  Most think this is just about over-exposure to estrogen, but it's been becoming clearer that other hormones like insulin and insulin growth factor are involved in the development of cancer.

Things that increase over-exposure to estrogen are:

• early-onset mestruation (before age 12)
• No pregnancies
• never having taken birth control (need a minimum of 2 years on it and protection benefits can last up to 10 years)
• late menopause (increases the # of menstral cycles over a lifetime)
• elevated BMI because fat cells also produce estrogen
• Diagnosis of PCOS (poly cystic ovarian syndrome)

Things that indicate insulin and insulin growth factor resistence:

• pre-diabetes or diabetes
• PCOS
• Metabolic syndrome

Other risk factors for endometrial cancer:

• Positive for Lynch Syndrome (genetic factor) or close family members having the same type of uterine cancer.
• Exposure to endocrine disruptors in your environment
• Tomixifen treatment for breast cancer
• Age (risk increases around the time of menopause and afterwards)
• History of endometrial hyperplasia
• History of pelvic radiation for another cancer
• High fat diet (contributes to weight issues and thereby increase over exposure to estrogen)
• Sedentary life style (excercise facilitates glucose uptake by cells by increasing insulin sensitivity besides burning calories)"

Most of us are blindsided by a uterine cancer diagnosis because it doesn't get the attention that cervical and breast cancer get. There is currently no screening test for it. Knowing the risk factors for the most common form of uterine cancer, endometrial adenocarcinoma, may give you a clue as to where you stand for your own risk of developing this cancer and may help you to decide between the options you've been given. You may also want to consider having genetic testing (insurance doesn't cover it, unfortunately) to see how that may be adding to your risk. Right now, you have the time to get such testing and weigh the pros and cons of a prophylactic hysterectomy, so stay on top of this. You are your own best advocate, so it's in your interest to learn what you can and not let your doctor's play "let's wait and see". It's your life at stake, not theirs, so sometimes you have to be that "squeeky wheel" when your gut is telling you something is not right.

If you do end up deciding on having a hysterectomy, consider asking/pushing for a referral to a gyn-oncologist to have it done. Surprises happen. You may find this thread of interest: https://csn.cancer.org/node/322208

As long as there is any concern about cancer perhaps being missed by your biopsy, it would be better to have your surgery done by someone who could conclusively rule it in or out and has the special skills for handling tissue during surgery in a manner that won't spread cells where they are not wanted.

Elia111 said:

Thank you for your amazing

Thank you for your amazing responses and for the guidance and tips. I feel like real life survivors are better informed than doctors who simply follow a play book and what's good for one, is good for all!

@cindi I have read of women like you that in hind-site wish they'd of just had the hysterectomy and been done with it. I have to say, I am truly leaning in that direction! What peace of mind to never worry about it again! Although he did say if I went that route that he would still leave one ovary. And if I do go that route, I will definately seek out the gyn/oncologist as Mabound recommended . Provided insurance will cover. 
 
Thank you for extending my invitation to stay. You all are so wonderful and supportive that I feel I would truly be missing out if I had to leave! 

 

Hi Elia:

I had been complaining of pain for about a year.  My gyne did a laproscopy and indicated my uterus was tilted and that I had a lot of scarring.  He suggested a hysterectomy.   I had to wait 7 months before having it done because he wanted me on Lupron to soften the lesions to aid in surgery.   The hysterectomy went well.   However, upon my follow-up I learned I had endometrial adenocarcinoma Grade 2, Stage 3A.   Then I had to do another surgery for staging.   They did not think prior to my hysterectomy that I had cancer.   I was 45 years old at the time.